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257 total results
Comments (238)
Welcome @sjr1981, Sorry to hear that you have severe pain with your neuropathy. I'm assuming you...
you wait for other members to share what ... helps them manage the severity of the ... also did a scan of Connect using "polyneuropathy ... what helps" and came up with a ... search=polyneuropathy+what+helps.
Support Group: Neuropathy
Posted: May 13 6:50pm
Hello @megidigo, I can't even imagine how difficult this disease has been for you. I do...
search of Connect for Sensorimotor Polyneuropathy ... what helps and it found 21 comments ... search=%20Sensorimotor%20Polyneuropathy ... %20what%20helps.
Support Group: Neuropathy
Posted: Mar 26 7:49am
Hi, Recently I have trialed dulaglutide for T2 diabetics which has enhanced the neurologicl problems I...
problems I had managed to ignore for what ... I have autonomic polyneuropathy, FND ... is the ones that have any idea of what ... moves I likely won't need their help ... I'm sitting here wondering what
Support Group: Neuropathy
Posted: Jun 20 7:16pm
@megidigo Hi. I am so sorry for your situation. I can tell you that things you...
diagnosed with severe sensorimotor axonal polyneuropathy ... What changed for him was initially testosterone ... He also told me that what helps his
Support Group: Neuropathy
Posted: Jun 9 11:36pm
Hello @suzyq515, Welcome to Connect. Sorry to hear that you are dealing with two conditions but...
both dermatomyositis and sensorimotor polyneuropathy ... for each one though and it might be helpful ... to learn what others have shared. ... search=sensorimotor%20polyneuropathy ... neurologist suggested any treatment to help
Support Group: Neuropathy
Posted: Jun 22 5:37pm
@SusanEllen66 Hi, Don't be sorry, I have never bothered to wonder why me. It is what...
#039;t send the signal and autonomic polyneuropathy ... through data I have collected and it is helping ... understand it presently the only likely help ... already pulling back from buying aids to help ... It is likely that the autonomic polyneuropathy
Support Group: Neuropathy
Posted: Jun 21 3:33am
@tessie63 Hi, Sadly, I have been advised not to use the seeds as the stomach is...
We have little idea what caused the ... autonomic polyneuropathy and FND but ... issues have all added their "help ... A result of what is going on my glucose ... even more glucose into the system to help
Support Group: Neuropathy
Posted: 6 days ago
@horowitz71 Hi, I understand what you are saying and the feelings you have. I've been putting...
@horowitz71 Hi, I understand what ... I figure they can't withhold what ... doesn't feel lonely Autonomic polyneuropathy ... is to try and stay positive as that helps ... always easy to do but certainly some help
Support Group: Neuropathy
Posted: Jun 9 3:40pm
@drbf I also have bone on bone in both knees and severe neuropathy. I've currently started...
(Chronic Inflammatory Demylitating Polyneuopathy ... that being angry about this is not helping ... rod is rolled on my feet, (not sure what
Posted: 5 days ago
Hi, What to "look forward to"with autonomic polyneuropathy apart from the obvious! Considerable lag with intructions...
Hi, What to "look forward to&quot ... ;with autonomic polyneuropathy apart ... this is from diabetes or autonomic polyneuropathy ... , but it is what it is just another ... Does this mean I will get the help I
Support Group: Neuropathy
Posted: 4 days ago
@dcdusek Sorry New to this thread, I Think?? Anyway I have Late Stage Lyme, have been...
He calls it Polyneuropathy. ... Helps a little, but not relay! ... Can anyone give me any insight of what ... has helped for you1 Thanks, Sundance
Support Group: Chronic Pain
Posted: May 1 11:53am
Hi, My main issue is that from time to time I have bouts of temporary paralysis....
speak, didn't have any concept of what ... been until I figured it out with the help ... As I have autonomic polyneuropathy it
Support Group: Neuropathy
Posted: May 23 11:50pm
Hello, @ogl I remember when I, too, was full of sadness. And disbelief. I had been...
diagnosis to chronic large-fiber axonal polyneuropathy ... I suppose you might say that what helped ... able to call it a "disease" helped
Support Group: Neuropathy
Posted: May 26 1:44pm
@pm56 IVIG with a thrombosis warning, is what I’m on! So, because I also have episodes...
IVIG with a thrombosis warning, is what ... have, also, Parkinson’s Disease and Polyneuropathy ... heart implant, ‘The Watchman”, to help ... experience that you have shared, is helpful ... to my Dr. about that, and we’ll see what
@sisyphus Hello! Amazing, how you have managed! I am close to 80 years old! I wanted...
neurologist, who, actually listened to what ... She came up with polyneuropathy, and ... donors blood plasma/gammaglobulin to help ... So, finally, I got some help! ... good years, before , well, you know what
Support Group: Depression & Anxiety
Posted: Apr 2 11:57pm
@itsmeagain Hello again! Thanks for being so supportive! CVID is an immune deficiency disease, that is...
Common Variable Immune Deficiency is what ... Chronic Inflammatory Demyelinating Polyneuropathy ... Thanks again for being so helpful, and
@itsmeagain Thanks for your encouraging reply! I have used Alpha Lipoic Acid before, for tinnitus, so,...
coupled with chronic inflammatory polyneuropathy ... Because of what inflammatory arthritis ... degree, but doesn’t live near me, to help ... , I don’t know who to turn to, for help ... What’s so ironic about all this, that
Support Group: Autoimmune Diseases
Posted: Apr 19 9:06pm
Multiple chronic illnesses cause problems especially trying to understand which problem is at hand. I am...
I am 85 and have idiopathic polyneuropathy ... have been unable to find a doctor to help ... What kind of doctor can help plan a ... wish I could find a clinic that would help ... under control and Advil and Ashwaganda help
Support Group: Chronic Pain
Posted: May 25 10:28am
Note: I posted this Start Discussion topic on the Neuropathy Forum earlier today. It was suggested...
It was suggested I might get some helpful ... , has been dealing with idiopathic polyneuropathy ... What was the experience like? ... What was your pre-existing PN? ... What were your sepsis symptoms?
Support Group: Neuropathy
Posted: May 12, 2024
I'm in a similar position--I'm 58, 32 years poz, although I did take early HIV drugs...
years ago, but it's advanced to polyneuropathy ... spinal cord stimulator implanted to help ... I found it helpful to remember that ... pull the threads apart, to determine what
Discussion: HIV and Neuropathy
Support Group: Neuropathy
Posted: Apr 20, 2024