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106 total results
Comments (100)
Depending on which area was biopsies and what the biopsies said you may have one of...
https://connect.mayoclinic.org/comment/134337/
you may have one of several types of mastocytosis ... and I highly recommend you join the mastocytosis ... on inspire no matter which form of mastocytosis
@pricejod, there are a number of members talking about mastocytosis in the group https://connect.mayoclinic.org/search/?search=mastocytosis%20 What symptoms...
https://connect.mayoclinic.org/comment/1090922/
a number of members talking about mastocytosis ... search=mastocytosis%20
What symptoms
Hello @christyann715 - I moved your discussion and combined it with your existing discussion titled, "Systemic...
https://connect.mayoclinic.org/comment/1069599/
existing discussion titled, "Systemic Mastocytosis ... connect.mayoclinic.org/discussion/systemic-mastocytosis ... frenchie333 who have all discussed mastocytosis
Your doctor has pretty much ruled out PV, even with the bone marrow biopsy. Hydroxyurea (HU)...
https://connect.mayoclinic.org/comment/1197581/
Ayvakit your doctor recommended for the mastocytosis ... article link I gave you from Mayo for mastocytosis ... the signs and symptoms of systemic mastocytosis ... validity for your doctor to suspect mastocytosis ... enlarged spleen are side effects of the mastocytosis
What is the name of the FB group? My 23 yr old son has systemic Mastocytosis.
https://connect.mayoclinic.org/comment/1069496/
My 23 yr old son has systemic Mastocytosis
Any with MM also have active Mastocytosis? Bone marrow show both.
https://connect.mayoclinic.org/comment/635253/
Any with MM also have active Mastocytosis
MCAS is not the same as the more rare mastocytosis, they are 2 different things per...
https://connect.mayoclinic.org/comment/636990/
MCAS is not the same as the more rare mastocytosis ... Activation Disease as separate than mastocytosis
You might find more help by checking into the mast cell disorder groups and discussions on...
https://connect.mayoclinic.org/comment/134326/
Or ask the mastocytosis society at tmsforacure.org
All my symptoms are autoimmune with my body attacking itself. Last week, my gastro doc suggested...
https://connect.mayoclinic.org/comment/211822/
Last week, my gastro doc suggested mastocytosis
Totally my screw up. I have both multiple myeloma MM stage 1 and systemic mastocytosis. Those...
https://connect.mayoclinic.org/comment/665077/
multiple myeloma MM stage 1 and systemic mastocytosis
I did some digging and found an old newsletter from "Beth"--the other mastocytosis/histamine expert. Here's her...
https://connect.mayoclinic.org/comment/775213/
newsletter from "Beth"--the other mastocytosis
@baz10 These short acronyms can be a problem.. It like code.. 4 letter acronyms have a...
https://connect.mayoclinic.org/comment/83090/
Systemic mastocytosis (SM) is a form ... of mastocytosis in which mast cells
Is this the leukemia that can happen with someone with Systemic Mastocytosis? I am new to...
https://connect.mayoclinic.org/comment/211054/
happen with someone with Systemic Mastocytosis
Hi Wyom1998, welcome to Mayo Clinic Connect. You asked to connect with someone who has both...
https://connect.mayoclinic.org/comment/637877/
who has both multiple myeloma and mastocytosis
Does anyone have systemic Mastocytosis and experience extreme lower back/bone pain? Have you had a bone...
https://connect.mayoclinic.org/comment/1068794/
Does anyone have systemic Mastocytosis
Hello @lookingforanswers2017, Welcome to Connect. I can only imagine your worries, and want to reassure you...
https://connect.mayoclinic.org/comment/134310/
diagnosis and treatment of systemic mastocytosis ... www.mayoclinic.org/diseases-conditions/systemic-mastocytosis ... /systemic-mastocytosis-care-at-mayo-clinic ... reports on depression in patients with mastocytosis
Welcome to Connect, @isabellereine. You’re not crazy but you certainly are complicated! ☺️ For being only...
https://connect.mayoclinic.org/comment/1197279/
has tentatively diagnosed you with mastocytosis ... provided by Mayo Clinic (link below) mastocytosis ... www.mayoclinic.org/diseases-conditions/systemic-mastocytosis ... which is a medication for controling mastocytosis
Hi @dmearney There are a number of doctors who treat Mast Cell Activation Syndrome (MCAS) at...
https://connect.mayoclinic.org/comment/805313/
article from Mayo regarding systemic mastocytosis ... www.mayoclinic.org/diseases-conditions/systemic-mastocytosis
Hi Still ongoing As mastocytosis and carcinoidnsyndorme both rare pathways aren't clear and GPS have no...
https://connect.mayoclinic.org/comment/860513/
Hi
Still ongoing
As mastocytosis
RVD weekly on 28 day cycles x 4 then transplant for MM in December. I am...
https://connect.mayoclinic.org/comment/638311/
frustrated nothing is addressed for mastocytosis
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