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52 total results
Comments (48)
Hi @lhick - it is not unusual with DDX41 MDS to watch and wait, but you...
Hi @lhick - it is not unusual with DDX41 ... I was diagnosed with DDX41 AML (which ... most likely developed on the back on DDX41 ... Germline DDX41-driven MDS/AML is typically ... the most common somatic variant for DDX41
Hi @sherbs. The DDX41 mutation is isn’t well understood but my transplant doctor at Mayo-Rochester is...
The DDX41 mutation is isn’t well understood ... doctors there involved in a study of the DDX41 ... Does anyone else have AML with ddx41 ... connect.mayoclinic.org/discussion/aml-with-ddx41 ... doctor’s input and mentioning the DDX41
Hi there, I also have a DDX41 mutation. I'm not sure what hospitals you are working...
Hi there, I also have a DDX41 mutation ... experts in the field when it comes to DDX41 ... There are many sub-types of DDX41 mutations
Welcome @thick. There are a few other members in Connect who also have AML with the...
Connect who also have AML with the DDX41 ... From my understanding the DDX41 mutation ... One of our chats was about DDX41 and ... AML with DDx41 mutation; Anyone else ... If you type in DDX41 mutation in the
Hi There... Was diagnosed about a month ago with MDS. I also have a DDX41 mutation...
I also have a DDX41 mutation (no other ... truncating and non-truncating variants of DDX41 ... isn't a great deal of data on DDX41
Hi Folks, I did meet with my team and we discussed many things. Some background. I...
It was discovered that I also have DDX41 ... Unfortunately, that DDX41 mutation puts ... #39;t a lot of cases like mine and DDX41 ... ve done quite a bit of research on DDX41 ... on the forum about what is best for DDX41
As an update, today I went to see the Transplant Team at the Hospital. My MDS...
you take into account that my MDS is ddx41 ... system does not take into account ddx41 ... They feel that if you consider the ddx41 ... they say I'm lucky that I have a ddx41 ... Also, donors are NOT checked for the ddx41
Posted: Apr 27 4:12pm
Hi @rosejen - indeed, DDX41 is not the most common mutation, but there is a sizable...
Hi @rosejen - indeed, DDX41 is not the ... Their observations and conclusions on DDX41 ... This is not the case with germline DDX41 ... You can find an article on DDX41 published ... DDX41 also tends to have a better %
Hi There, My story very much matches yours! I have a lot to share but may...
Diagnosed with MDS in Aug 2024, DDX41 ... mutation than yours but still in the DDX41 ... opposite course of treatment - that DDX41 ... Also that DDX41 patients seem to have ... There are variants of DDX41 mutations
I believe I might be the only (somewhat) active participant on these forums with a DDX41...
participant on these forums with a DDX41 ... opinion, a 'must see' for any DDX41 ... physicians when it comes to handling DDX41 ... better group with understanding of DDX41
Posted: Sep 15, 2025
I’m 58 and was diagnosed with AML DDX41 10 months ago. I have both germline and...
I’m 58 and was diagnosed with AML DDX41 ... I have both germline and somatic DDX41 ... about other people’s experience with DDX41