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35 total results
Comments (30)
While waiting for other members to respond to your question about upper body pain associated with...
Here’s the search for Polycythemia Vera ... + pain. ... search=Polycythemia%20Vera%20pain&amp ... www.mayoclinic.org/diseases-conditions/polycythemia-vera ... Health: https://www.verywellhealth.com/polycythemia-vera-disorder-overview
Posted: Aug 6, 2025
@moylandavis Hello, I am 64 years old and live in Germany. However, I have not been...
I do not have polycythemia vera and ... have found that extremely hot, almost painful
Support Group: Skin Health
Posted: Nov 3, 2025
It's been over 2 years on my search for a diagnosis. Started with blood cancer diagnosis...
Started with blood cancer diagnosis (polycythemia ... vera, PV) which the oncologist said ... really helped keep my mind off the pain ... life and I have a high threshold to pain ... Rheumatologist, with the amount of pain
Robyn Scherber, MD - Living with an MPN Sept. 12, 2019 - Polycythemia Vera Disease Progression...
Living with an MPN Sept. 12, 2019 - Polycythemia ... Vera Disease Progression Looked around ... me - feel out my rare diagnosis vs Polycythemia ... Vera Watch for signs; 97% Y/ N ... Depression 65% Y/ N Abdominal Pain
Hospital missed Polycythemia Vera Nov 2020 but; Mother/ Wife age 50 Hospitalized for cellulitis 2x (same...
Hospital missed Polycythemia Vera Nov ... I've been screaming in pain when ... working)- It's weird but I have bone pain
Posted: Jan 12, 2023
Hi to anyone who may be able to shed light on treatment of postherpetic neuralgia (PHN)....
There also have been no pain medications ... I am in pain every minute of every day ... I also was diagnosed with polycythemia ... vera in June and feel that we may possibly ... or ability to exercise due to the pain
Support Group: Neuropathy
Posted: Dec 7, 2019
I got metallosis from a two level disc replacement. Blood testing is not the best option....
burning arteries and veins, chest pain ... in my rt lung and stomach lining, polycythemia ... Vera, rashes, flushing, low lymphocyte
@eakin Movement helps my symptoms, sometimes, not all the time so more movement during the night...
night would male sense to feel less pain ... Pain wakes me up, often, because I move ... Pain in the am can definitely be less ... The more sedentary I am, typical for Pain ... I was diagnosed with Polycythemia Vera
Posted: Oct 11, 2025
Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...
disease, essential thrombocythemia, polycythemia ... vera, primary myelofibrosis and others ... hands and feet; leg wounds or ulcers; pain ... essential thrombocythemia (ET) or polycythemia ... vera?
Posted: Feb 1, 2021
Hi Jim Great insight. My feet and hands r numb. Yet they burn like well standing...
was diagnosed with a disease called polycythemia ... vera and put on a pill called hydroxyurea ... never needed it as I had secondary polycythemia ... left a few year later the incurable polycythemia ... Burning numbness and pain in my legs
Support Group: Neuropathy
Posted: Feb 13, 2020
Hi, my pain, which my neurologist ids as Central pain syndrome, began six weeks after I...
Hi, my pain, which my neurologist ids ... as Central pain syndrome, began six ... had a stroke caused by unidentified Polycythemia ... Vera Entire left side of my body, ... toes, has constant burning, stinging pain
Support Group: Chronic Pain
Posted: Jan 30, 2024
To determine if I still had polycythemia vera or myelofibrosis a bone marrow biopsy was done...
To determine if I still had polycythemia ... vera or myelofibrosis a bone marrow ... month later I have extreme lower back pain ... up straight making mobility very painful
Posted: Jun 11, 2023
Several weeks after a stroke I was diagnosed with central pain syndrome Entire left side of...
stroke I was diagnosed with central pain ... body feels constant stinging, burning pain ... options for treatment Neurologist, pain ... in there, but so frustrated Have polycythemia ... vera too.. which doesn’t cause pain
Support Group: Chronic Pain
Posted: Jul 22, 2025
Hi! I just received my CT-A results showing a significant narrowing of the celiac artery. My...
I do not have the pain most people with ... I do sometimes have pain in my back ... blood tests (even one to check for Polycythemia ... Vera), as well as stool and urine tests ... Does this only deal with the pain?
Support Group: Digestive Health
Posted: Feb 8, 2019
Hi Justin, I have been thinking that maybe I should get another opinion at Mayo because...
Also have painful wrists and hands from ... marrow biopsy in March/16 to check for Polycythemia ... Vera but came back Negative for Jak
I have polycythmia Vera, and 9 different rare diagnosis. Told my doctor I only collected rare...
I have polycythmia Vera, and 9 different ... have 2 things in common, sleep and pain ... including in-laws died of cancer; pain
Wow! Thanks so much for the information Lori! I had done some research on my own...
test anomalies, (and consequently the Polycythemia ... Vera). ... potential diagnosis on the upper body pain ... I am in limbo on the upper body pain
Posted: Aug 7, 2025