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40 total results
Comments (33)
While waiting for other members to respond to your question about upper body pain associated with...
https://connect.mayoclinic.org/comment/1364893/
Here’s the search for Polycythemia Vera ... + pain. ... search=Polycythemia%20Vera%20pain& ... www.mayoclinic.org/diseases-conditions/polycythemia-vera ... Health:
https://www.verywellhealth.com/polycythemia-vera-disorder-overview
Hi, yes, those headaches can be debilitating and painful. I’m sorry you’re suffering with many symptoms....
https://connect.mayoclinic.org/comment/1126359/
headaches can be debilitating and painful ... symptoms. have you been tested for polycythemia ... vera?
@sen1991 Welcome to Mayo Clinic Connect. Ow! Having pain in the big toe can be pretty...
https://connect.mayoclinic.org/comment/840862/
Having pain in the big toe can be pretty ... what Mayo Clinic has to say about polycythemia ... vera: https://www.mayoclinic.org/diseases-conditions ... /polycythemia-vera/symptoms-causes/syc ... 20355850
You will see that indeed pain
To determine if I still had polycythemia vera or myelofibrosis a bone marrow biopsy was done...
https://connect.mayoclinic.org/comment/876362/
To determine if I still had polycythemia ... vera or myelofibrosis a bone marrow ... month later I have extreme lower back pain ... up straight making mobility very painful
Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...
https://connect.mayoclinic.org/comment/194373/
disease, essential thrombocythemia, polycythemia ... vera, primary myelofibrosis and others ... hands and feet; leg wounds or ulcers; pain ... essential thrombocythemia (ET) or polycythemia ... vera?
Welcome to the CALR club. Me, too. Good news with CALR is that we don't have...
https://connect.mayoclinic.org/comment/1225257/
CALR patients also cannot progress to polycythemia ... vera. ... Glad that is not painful for you.
Several weeks after a stroke I was diagnosed with central pain syndrome Entire left side of...
https://connect.mayoclinic.org/comment/1353670/
stroke I was diagnosed with central pain ... body feels constant stinging, burning pain ... options for treatment
Neurologist, pain ... in there, but so frustrated
Have polycythemia ... vera too.. which doesn’t cause pain
Hi @cherren11. I’d like to welcome you to Mayo Connect though I’m certainly sorry to hear...
https://connect.mayoclinic.org/comment/1025672/
Were you diagnosed with polycythemia ... vera? ... What type of pain are you having now
I read all your comments. I feel your pain and difficulties. My heart goes to each...
https://connect.mayoclinic.org/comment/1526845/
I feel your pain and difficulties. ... Our son has Polycythemia Vera as I have
Have you been diagnosed with PV? Your platelets are just slightly high and not dangerous. I...
https://connect.mayoclinic.org/comment/846633/
I do have joint/muscle pain. ... I was diagnosed with Polycythemia Vera
Hi, my pain, which my neurologist ids as Central pain syndrome, began six weeks after I...
https://connect.mayoclinic.org/comment/1006423/
Hi, my pain, which my neurologist ids ... as Central pain syndrome, began six ... had a stroke caused by unidentified Polycythemia ... Vera
Entire left side of my body, ... toes, has constant burning, stinging pain
Think I posted this before but.. I was diagnosed with central pain disorder about six weeks...
https://connect.mayoclinic.org/comment/1149057/
I was diagnosed with central pain disorder ... I had no pain when I left
Several ... developed severe burning tingling pain ... suggestion from my
oncologist ( I have polycythemia ... vera, which I learned caused my stroke
Hi Janie Don’t know if it’s the same, but about a month after my stroke I...
https://connect.mayoclinic.org/comment/1100727/
what my neurologist calls central pain ... syndrome or thalamus pain syndrome ... My pain is the same all the time; hope ... stroke was a result of undiagnosed
Polycythemia ... Vera, no other underlying medical conditions
Wow! Thanks so much for the information Lori! I had done some research on my own...
https://connect.mayoclinic.org/comment/1365958/
test anomalies, (and consequently the Polycythemia ... Vera). ... potential diagnosis on the upper body pain ... I am in limbo on the upper body pain
Hi @kimitammy, Welcome to Connect. It can sometimes be overwhelming dealing with the pain which makes...
https://connect.mayoclinic.org/comment/279875/
sometimes be overwhelming dealing with the pain ... you were also diagnosed in June with polycythemia ... vera and the doctors may finally have
Sorry for all you’ve going through,@krag1949 It is quite an adjustment for you! Here is m...
https://connect.mayoclinic.org/comment/1573597/
with hydroxurea (HU):
Diagnosed with polycythemia ... vera February 2026. ... Mayo does list joint pain as one of ... doctor about taking any meds for the pain
Hospital missed Polycythemia Vera Nov 2020 but; Mother/ Wife age 50 Hospitalized for cellulitis 2x (same...
https://connect.mayoclinic.org/comment/795964/
Hospital missed Polycythemia Vera Nov ... I've been screaming in pain when ... working)- It's weird but I have bone pain
Hi @b52770 I’m sure this is a time of anxiety for you and your husband with...
https://connect.mayoclinic.org/comment/1626802/
filters your blood, so when you have polycythemia ... vera, the excess cells tend to collect ... pretty uncomfortable from pressure and pain
I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...
https://connect.mayoclinic.org/comment/1044688/
was originally miss diagnosed with polycythemia ... Vera. ... mild symptoms (itching, abdominal pains
Robyn Scherber, MD - Living with an MPN Sept. 12, 2019 - Polycythemia Vera Disease Progression...
https://connect.mayoclinic.org/comment/807931/
Living with an MPN
Sept. 12, 2019 - Polycythemia ... Vera Disease Progression
Looked around ... me - feel out my rare diagnosis vs Polycythemia ... Vera
Watch for signs;
97% Y/ N ... Depression
65% Y/ N Abdominal Pain
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