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Comments (33)
While waiting for other members to respond to your question about upper body pain associated with...
Here’s the search for Polycythemia Vera ... + pain. ... search=Polycythemia%20Vera%20pain&amp ... www.mayoclinic.org/diseases-conditions/polycythemia-vera ... Health: https://www.verywellhealth.com/polycythemia-vera-disorder-overview
Posted: Aug 6, 2025
@sen1991 Welcome to Mayo Clinic Connect. Ow! Having pain in the big toe can be pretty...
Having pain in the big toe can be pretty ... what Mayo Clinic has to say about polycythemia ... vera: https://www.mayoclinic.org/diseases-conditions ... /polycythemia-vera/symptoms-causes/syc ... 20355850 You will see that indeed pain
Posted: Apr 10, 2023
To determine if I still had polycythemia vera or myelofibrosis a bone marrow biopsy was done...
To determine if I still had polycythemia ... vera or myelofibrosis a bone marrow ... month later I have extreme lower back pain ... up straight making mobility very painful
Posted: Jun 11, 2023
Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...
disease, essential thrombocythemia, polycythemia ... vera, primary myelofibrosis and others ... hands and feet; leg wounds or ulcers; pain ... essential thrombocythemia (ET) or polycythemia ... vera?
Posted: Feb 1, 2021
Welcome to the CALR club. Me, too. Good news with CALR is that we don't have...
CALR patients also cannot progress to polycythemia ... vera. ... Glad that is not painful for you.
Posted: Jan 30, 2025
Several weeks after a stroke I was diagnosed with central pain syndrome Entire left side of...
stroke I was diagnosed with central pain ... body feels constant stinging, burning pain ... options for treatment Neurologist, pain ... in there, but so frustrated Have polycythemia ... vera too.. which doesn’t cause pain
Support Group: Chronic Pain
Posted: Jul 22, 2025
Hi, my pain, which my neurologist ids as Central pain syndrome, began six weeks after I...
Hi, my pain, which my neurologist ids ... as Central pain syndrome, began six ... had a stroke caused by unidentified Polycythemia ... Vera Entire left side of my body, ... toes, has constant burning, stinging pain
Support Group: Chronic Pain
Posted: Jan 30, 2024
Think I posted this before but.. I was diagnosed with central pain disorder about six weeks...
I was diagnosed with central pain disorder ... I had no pain when I left Several ... developed severe burning tingling pain ... suggestion from my oncologist ( I have polycythemia ... vera, which I learned caused my stroke
Hi Janie Don’t know if it’s the same, but about a month after my stroke I...
what my neurologist calls central pain ... syndrome or thalamus pain syndrome ... My pain is the same all the time; hope ... stroke was a result of undiagnosed Polycythemia ... Vera, no other underlying medical conditions
Support Group: Neuropathy
Posted: Jul 7, 2024
Wow! Thanks so much for the information Lori! I had done some research on my own...
test anomalies, (and consequently the Polycythemia ... Vera). ... potential diagnosis on the upper body pain ... I am in limbo on the upper body pain
Posted: Aug 7, 2025
Hi @kimitammy, Welcome to Connect. It can sometimes be overwhelming dealing with the pain which makes...
sometimes be overwhelming dealing with the pain ... you were also diagnosed in June with polycythemia ... vera and the doctors may finally have
Support Group: Neuropathy
Posted: Dec 7, 2019
Sorry for all you’ve going through,@krag1949 It is quite an adjustment for you! Here is m...
with hydroxurea (HU): Diagnosed with polycythemia ... vera February 2026. ... Mayo does list joint pain as one of ... doctor about taking any meds for the pain
Posted: May 13 8:25am
Hospital missed Polycythemia Vera Nov 2020 but; Mother/ Wife age 50 Hospitalized for cellulitis 2x (same...
Hospital missed Polycythemia Vera Nov ... I've been screaming in pain when ... working)- It's weird but I have bone pain
Posted: Jan 12, 2023
Hi @b52770 I’m sure this is a time of anxiety for you and your husband with...
filters your blood, so when you have polycythemia ... vera, the excess cells tend to collect ... pretty uncomfortable from pressure and pain
Posted: Jul 22 9:35am
Robyn Scherber, MD - Living with an MPN Sept. 12, 2019 - Polycythemia Vera Disease Progression...
Living with an MPN Sept. 12, 2019 - Polycythemia ... Vera Disease Progression Looked around ... me - feel out my rare diagnosis vs Polycythemia ... Vera Watch for signs; 97% Y/ N ... Depression 65% Y/ N Abdominal Pain