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35 total results
Comments (34)
@gracie1976 Welcome to Mayo Clinic Connect! I’m so happy you’re heading to Mayo. Do you already...
https://connect.mayoclinic.org/comment/1436574/
members in Connect who have also have MM ... and amyloidosis. ... search=MM+and+amyloidosis+
How long ... ago were you diagnosed with MM and ... amyloidosis?
I would love to connect with someone who has MM and amyloidosis like I do just...
https://connect.mayoclinic.org/comment/874406/
love to connect with someone who has MM ... and amyloidosis like I do just to exchange
@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,...
https://connect.mayoclinic.org/comment/1041665/
year later finally diagnosed with amyloidosis ... is that almost 20% of patients with MM ... have Amyloidosis…
I had neuropathy in my left foot/toes and terrible nerve pain. The mm and amyloidosis were...
https://connect.mayoclinic.org/comment/104687/
The mm and amyloidosis were diagnosed
Hi @mkempson42, Welcome to Mayo Connect where members come together to offer support and encouragement to...
https://connect.mayoclinic.org/comment/869204/
a couple of members who also have MM ... and Amyloidosis. ... Diagnosed with both multiple myeloma and amyloidosis ... multiple-myelomaamyloidosis/
—Treatment for amyloidosis ... /
– Current diagnosis is Amyloidosis
Hi, I have high Kappa 2.62 and high kappa/lambda ratio 1.94. My last blood work was...
https://connect.mayoclinic.org/comment/1181038/
Cardiologist did not think I have MM ... or amylodosis.
the "Stiff Heart" can be a sign of a variety of ailments. One that is fairly...
https://connect.mayoclinic.org/comment/102944/
fairly easy to check out is cardiac amyloidosis ... If they are over 17 mm, could be. ... Gertz at Mayo MN, or get his book, "Amyloidosis
Well Lori, I made contact with my Oncologist like you suggested. It was something she said...
https://connect.mayoclinic.org/comment/738564/
In what group do you talk about Amyloidosis ... She was hooked on MM because of my ... waiting to see if it’s hereditary Amyloidosis
This isn't going to be much help, I'm afraid. I don't have arachnoiditis, but I do...
https://connect.mayoclinic.org/comment/103294/
but I do have Primary Systemic AL Amyloidosis ... do about pain is get you hooked on MM
My bone marrow biopsy was yesterday. Lidocaine did a fairly good job of dulling the drilling...
https://connect.mayoclinic.org/comment/1150116/
about a week to see if I have SMM, MM ... , or likely AL amyloidosis.
I consulted with three specialists - one at Mayo Clinic. All are MGUS/MM specialists. Even though...
https://connect.mayoclinic.org/comment/770463/
All are MGUS/MM specialists. ... in blood tests, related to but not MM ... , such as amyloidosis as a good example
Hi, @2012can - I'm so glad that you were able to get your neuropathy and other...
https://connect.mayoclinic.org/comment/987954/
as MGUS potentially developing into MM ... about potential development into AL amyloidosis ... somewhat in line with AL, if not bad for MM
I had IgA kappa MGUS for 8 years, diagnosed this summer with SMM. They tested me...
https://connect.mayoclinic.org/comment/1158835/
They tested me for amyloidosis (fat ... I need a kidney biopsy to rule out amyloidosis ... Even tho one doesn't have MM, the ... number of peer-reviewed papers on AL amyloidosis
@lisal64 .. Actually, yours seems to be a rather typical story. The part many folks don't...
https://connect.mayoclinic.org/comment/661954/
many folks don't realize is that MM ... I have MM>Amyloidosis>Gelsolin ... gives a clue to Gelsolin (Finnish Amyloidosis
As you might remember, I have Cancer>MM>Amyloidosis>Gelsolin, among other things. As you know, Gelsolin is a...
https://connect.mayoclinic.org/comment/621871/
you might remember, I have Cancer>MM ... >Amyloidosis>Gelsolin, among other ... As you know, Gelsolin is a form of Amyloidosis ... , a form of MM, a type of Cancer.
If it is SMM then likely waiting to see if it morphs to MM. I don't...
https://connect.mayoclinic.org/comment/1151734/
likely waiting to see if it morphs to MM ... If I have AL amyloidosis then it will ... be treated like MM. ... doesn't think I have kappa AL amyloidosis ... interrupted" by Tom Brokaw on his MM
I have fought high calcium levels most of my 84 years. In the past few years...
https://connect.mayoclinic.org/comment/1054161/
calcium levels. you might ask about MM ... (Amyloidosis, etc.)
I have a co worker with MM Amyloidosis but his was with his lungs. He received...
https://connect.mayoclinic.org/comment/903269/
I have a co worker with MM Amyloidosis
@bonniecanby You should know that the symptoms you mention, anemia, pvc's and lots of pain, are...
https://connect.mayoclinic.org/comment/74558/
pvc's and lots of pain, are typical amyloidosis ... Morey Gertz of Mayo, and the Amyloidosis ... various forms of Amy, incluging MGUS, MM
Hi, blindeyepug. First, sounds more like you have some form of amyloidosis. Second, I will not...
https://connect.mayoclinic.org/comment/95780/
sounds more like you have some form of amyloidosis ... Second, I will not use MM again.
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