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39 total results
Comments (38)
@gracie1976 Welcome to Mayo Clinic Connect! I’m so happy you’re heading to Mayo. Do you already...
https://connect.mayoclinic.org/comment/1436574/
members in Connect who have also have MM ... and amyloidosis. ... search=MM+and+amyloidosis+ How long ... ago were you diagnosed with MM and ... amyloidosis?
Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?
Support Group: Blood Cancers & Disorders
Posted: Nov 12, 2025
@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,...
https://connect.mayoclinic.org/comment/1041665/
year later finally diagnosed with amyloidosis ... is that almost 20% of patients with MM ... have Amyloidosis…
Discussion: Abnormal bloodwork questions
Support Group: Blood Cancers & Disorders
Posted: Mar 28, 2024
@khowe2000 My heart goes out to you. I was 51 when I was diagnosed with MGUS....
https://connect.mayoclinic.org/comment/1617882/
I have MM diagnosis and now also Amyloidosis ... recently started treatment for both MM ... and Amyloidosis.
Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?
Support Group: Blood Cancers & Disorders
Posted: Jul 11 9:34am
Hi @mkempson42, Welcome to Mayo Connect where members come together to offer support and encouragement to...
https://connect.mayoclinic.org/comment/869204/
a couple of members who also have MM ... and Amyloidosis. ... Diagnosed with both multiple myeloma and amyloidosis ... multiple-myelomaamyloidosis/ —Treatment for amyloidosis ... / – Current diagnosis is Amyloidosis
Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?
Support Group: Blood Cancers & Disorders
Posted: May 30, 2023
Well Lori, I made contact with my Oncologist like you suggested. It was something she said...
https://connect.mayoclinic.org/comment/738564/
In what group do you talk about Amyloidosis ... She was hooked on MM because of my ... waiting to see if it’s hereditary Amyloidosis
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Aug 17, 2022
the "Stiff Heart" can be a sign of a variety of ailments. One that is fairly...
https://connect.mayoclinic.org/comment/102944/
fairly easy to check out is cardiac amyloidosis ... If they are over 17 mm, could be. ... Gertz at Mayo MN, or get his book, "Amyloidosis
Discussion: Stiff Heart - diastolic heart failure
Support Group: Heart & Blood Health
Posted: Jan 7, 2017
Hi, @2012can - I'm so glad that you were able to get your neuropathy and other...
https://connect.mayoclinic.org/comment/987954/
as MGUS potentially developing into MM ... about potential development into AL amyloidosis ... somewhat in line with AL, if not bad for MM
Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio
Support Group: Blood Cancers & Disorders
Posted: Dec 28, 2023
I had IgA kappa MGUS for 8 years, diagnosed this summer with SMM. They tested me...
https://connect.mayoclinic.org/comment/1158835/
They tested me for amyloidosis (fat ... I need a kidney biopsy to rule out amyloidosis ... Even tho one doesn't have MM, the ... number of peer-reviewed papers on AL amyloidosis
Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.
Support Group: Blood Cancers & Disorders
Posted: Oct 18, 2024
@lisal64 .. Actually, yours seems to be a rather typical story. The part many folks don't...
https://connect.mayoclinic.org/comment/661954/
many folks don't realize is that MM ... I have MM>Amyloidosis>Gelsolin ... gives a clue to Gelsolin (Finnish Amyloidosis
Discussion: Multiple Myeloma: Come introduce yourself and let's talk
Support Group: Blood Cancers & Disorders
Posted: Dec 13, 2021