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93 total results
Comments (87)
She has weekly seizures in sleep but has had 2 brain surgeries at the age of...
https://connect.mayoclinic.org/comment/242002/
We are a little over 2 weeks on epidiolex
Hi Everyone, My son, age 42 as of this week, was a "normal" 3-year-old who got...
https://connect.mayoclinic.org/comment/195857/
not EEG), our neurologist ordered Epidiolex
@pmracc33186 Hi Piero I am sad to hear that Epidiolex did not bring you benefits. I...
https://connect.mayoclinic.org/comment/1056392/
Hi Piero
I am sad to hear that Epidiolex ... has put me on pure CBD (the same as Epidiolex
Hi @emilyjjj I do very much agree with @jakedduck1. It seems that your daughter is having...
https://connect.mayoclinic.org/comment/1004455/
of weaning off from Vimpat to CBD/Epidiolex
Thanks for the information Jake. I was doing some research and Epidiolex kept coming up. I...
https://connect.mayoclinic.org/comment/624874/
I was doing some research and Epidiolex
She was under the care of palleative care, every type of treatment had failed - she...
https://connect.mayoclinic.org/comment/624745/
Epidiolex is ineffective.
Thank you, Everyone, for your helpful comments. My son has taken Epidiolex for about 2 years....
https://connect.mayoclinic.org/comment/828903/
My son has taken Epidiolex for about
Epidiolex has been approved by the FDA so can be prescribed as per normal process. My...
https://connect.mayoclinic.org/comment/625564/
Epidiolex has been approved by the FDA
Yes, I take Zonisimide (and 1 Lamectal at night )for 20 years 100 mg I am...
https://connect.mayoclinic.org/comment/828141/
I am not familiar with Epidiolex so
Hello Everyone, To answer some questions, my son's EEGs stayed normal for about 3-4 years after...
https://connect.mayoclinic.org/comment/169950/
are in the process of looking into Epidiolex ... Leonard, for all your good info on Epidiolex
Hi Collen, thanks for linking the prior exchanges with my post. Yes, we've used the Epidiolex...
https://connect.mayoclinic.org/comment/195860/
Yes, we've used the Epidiolex CBD
Hi @imstrongbecauseitistheonlychoice, Good Morning I can understand very well what you have been through as I...
https://connect.mayoclinic.org/comment/860528/
Has the doctor of your son tried Epidiolex
@carissadennery, good morning First of all, Happy 2023. I wish you and all in this group,...
https://connect.mayoclinic.org/comment/791689/
Curiosity, the CBD you take is Epidiolex
My brother was born Down Syn is non-verbal, and was picture of health until 2014 (age...
https://connect.mayoclinic.org/comment/195858/
Late 2019 Epidiolex (FDA approved cannabidiol
1️⃣ What percentage of E surgery gives 100% seizure control without any side effects long term?...
https://connect.mayoclinic.org/comment/384011/
6️⃣ Epidiolex hasn'
Hi @pamelastewart5 I am sorry to hear all that about your son. Some AEDs can cause...
https://connect.mayoclinic.org/comment/829869/
CBD/Epidiolex is the medication that
Hello, All, Thank you, Everyone. I learn so much from reading your posts! Concerning my son,...
https://connect.mayoclinic.org/comment/169955/
Lennox-Gesault Syndrome around age 30 and on Epidiolex
HI David, thank you for your response. My son has a BRAF fusion that does not...
https://connect.mayoclinic.org/comment/154147/
and the neurologist wants him to try epidiolex
Hi @sgboster123 First, thank you very much for your blessings!!!! A good time ago I have...
https://connect.mayoclinic.org/comment/846669/
neurologist and he agreed to prescribe Epidiolex
Good Morning @tlb101175 Great to know that your son is seeing an epileptologist very soon! CBD...
https://connect.mayoclinic.org/comment/903935/
He is taking Epidiolex (if I am not
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