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181 total results
Comments (160)
Welcome to Connect, @tollie It sure helps to feel that you’re not alone when you have...
https://connect.mayoclinic.org/comment/885970/
number of members in our forum with Al-Amyloidosis ... you can meet other members who have Al-Amyloidosis ... You can find more by typing in Al-Amyloidosis ... /connect.mayoclinic.org/discussion/al-amyloidosis ... / ~ Diagnosed with AL Amyloidosis
Discussion: Kappa light chain is elevated: Anyone dealing with this?
Support Group: Blood Cancers & Disorders
Posted: Jun 27, 2023
@like2dance2, I'm sorry you have not yet heard back from Mayo Clinic. You may wish to...
https://connect.mayoclinic.org/comment/1163095/
with other members diagnosed with AL ... /connect.mayoclinic.org/discussion/al-amyloidosis ... - What is the current protocol for al ... Amyloidosis? ... discussion/what-is-the-current-protocol-for-al-amyloidosis
Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.
Support Group: Blood Cancers & Disorders
Posted: Oct 26, 2024
Hi Becky, Here's a good discussion to connect with others talking about amyloidosis - Diagnosed with...
https://connect.mayoclinic.org/comment/738582/
connect with others talking about amyloidosis ... - Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Aug 17, 2022
Hi @ump2929, Welcome to Mayo Connect. It looks as though your doctor is concerned that you...
https://connect.mayoclinic.org/comment/1471240/
Here is one such discussion on AL Amyloidosis ... : ~Recently diagnosed with AL Amyloidosis ... /connect.mayoclinic.org/discussion/al-amyloidosis ... search=AL+Amyloidosis+ Also, below ... my.clevelandclinic.org/health/diseases/15718-amyloidosis-al-amyloid-light-chain
Discussion: Could this be Amyloidosis?
Support Group: Blood Cancers & Disorders
Posted: Dec 31, 2025
Clifford, you may be interested in this related discussion as you research more about amyloidosis: -...
https://connect.mayoclinic.org/comment/846424/
discussion as you research more about amyloidosis ... : - Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Discussion: Amyloidosis symptoms, negative fat pad biopsy?
Support Group: Blood Cancers & Disorders
Posted: Apr 20, 2023
Hi @tomholder, welcome. There are several discussions about AL Amyloidosis that you may wish to review:...
https://connect.mayoclinic.org/comment/958685/
There are several discussions about AL ... : - Recently diagnosed with AL Amyloidosis ... /connect.mayoclinic.org/discussion/al-amyloidosis ... -2/ - Diagnosed with AL Amyloidosis ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Discussion: Treatment for AL Amyloidosis with severe heart failure
Support Group: Blood Cancers & Disorders
Posted: Nov 3, 2023
Have you seen a hematologist and had a bone marrow biopsy? That is how my AL...
https://connect.mayoclinic.org/comment/824887/
That is how my AL Amyloidosis was diagnosed ... There are other discussions about AL ... Amyloidosis and you can find them by ... doing a search of "Amyloidosis&
Discussion: AL Amyloidosis maybe?
Support Group: Blood Cancers & Disorders
Posted: Mar 12, 2023
Hi @marykatr, your post led me to do a bit of internet searching. I learned that...
https://connect.mayoclinic.org/comment/1183818/
Willebrand Syndrome with Primary (AL ... ) Amyloidosis https://ashpublications.org ... your husband first diagnosed with AL ... Amyloidosis and then von Willebrand
Discussion: Anyone w/ both AL Amyloidosis & Acquired Von Willebrand Syndrome?
Support Group: Blood Cancers & Disorders
Posted: Dec 3, 2024
Welcome, @victorino, to help you connect with other members like @vmarra @jan44 @jebcyn and others, I...
https://connect.mayoclinic.org/comment/1066152/
discussion: - Recently diagnosed with AL ... Amyloidosis: Any advice? ... /connect.mayoclinic.org/discussion/al-amyloidosis ... search=Amyloidosis Congratulations
Discussion: Recently diagnosed with AL Amyloidosis: Any advice?
Support Group: Blood Cancers & Disorders
Posted: May 11, 2024
Hi @raanderson, such a great question (and responses from fellow members). You might also be interested...
https://connect.mayoclinic.org/comment/273515/
living with and caring for some with AL ... amyloidosis in the Blood Cancers &amp ... - Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what ... / - Waldenstroms and amyloidosis https
Discussion: Protecting patient from getting infections from me & others
Support Group: Caregivers
Posted: Aug 27, 2019