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Comments (2,266)

Angular cheilitis has many causes and associated conditions. If you go to the NIH.gov website you...

https://connect.mayoclinic.org/comment/1006810/

iron deficiency, dry mouth as seen in Sjögrens

Discussion: MCTD and Angular Cheilitis

Support Group: Autoimmune Diseases

Posted: Jan 30, 2024

I haven’t heard if this before .. just wondering if any of you have tried other...

https://connect.mayoclinic.org/comment/1006335/

On a sjogrens program I learned how

Discussion: Lack of saliva cevelimine doesn’t work this is a new device does it w

Support Group: Autoimmune Diseases

Posted: Jan 30, 2024

I’m so sorry. I have the same issue with intense cramping- even across my chest and...

https://connect.mayoclinic.org/comment/1003263/

I have sjorgens and infectious arthritis

Discussion: Bilateral Muscle Pain in Arms, Legs, Neck and Shoulders

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 24, 2024

I am currently just starting IVIg for my Sjogren's caused nueropathy. I have no pain (very...

https://connect.mayoclinic.org/comment/998621/

currently just starting IVIg for my Sjogren ... rheumatologist who looked for, and recognised Sjogren

Discussion: Autoimmune illness and small fiber neuropathy

Support Group: Neuropathy

Posted: Jan 16, 2024

I think you mean seronegative Sjogren’s. Yes there is such a thing: https://www.sjogrensadvocate.com/post/do-you-have-antibodies-on-your-blood-test#:~:text=Seronegative%20(SSA%2Dnegative)%20Sjogren's,Sjogren's%20in%20people%20without%20autoantibodies.

https://connect.mayoclinic.org/comment/994713/

I think you mean seronegative Sjogren ... text=Seronegative%20(SSA%2Dnegative)%20Sjogren ... 's,Sjogren's%20in%20people%20without

Discussion: is there such a thing as zero negative Sjogren’s?

Support Group: Autoimmune Diseases

Posted: Jan 9, 2024

I haven't been diagnosed with Sjogrens, but I used to itch like crazy. I use a...

https://connect.mayoclinic.org/comment/990140/

I haven't been diagnosed with Sjogrens

Discussion: Showering with Sjogren’s

Support Group: Autoimmune Diseases

Posted: Jan 2, 2024

Due to the lack of saliva, even with a lot of dental care, I lost all...

https://connect.mayoclinic.org/comment/989581/

daughter-in-law’s mother also has Sjogren ... stick with reputable sites like Mayo, Sjogren

Discussion: Showering with Sjogren’s

Support Group: Autoimmune Diseases

Posted: Jan 1, 2024

CellCept is a daily pill, and it’s used for some autoimmune disorders. It’s on the potent...

https://connect.mayoclinic.org/comment/989577/

prescribe something so strong unless the Sjögrens

Discussion: Sjogrens patients, saliva issues, flares?

Support Group: Autoimmune Diseases

Posted: Jan 1, 2024

I have Sjögren's & Myasthenia. My doc put me on " Cell-cept!" NO MORE DRY MOUTH,...

https://connect.mayoclinic.org/comment/989530/

I have Sjögren's & Myasthenia

Discussion: Sjogrens patients, saliva issues, flares?

Support Group: Autoimmune Diseases

Posted: Jan 1, 2024

Does everyone with Sjogren’s have dry skin? I’m awaiting evaluation and just curious. I’ve always had...

https://connect.mayoclinic.org/comment/989263/

Does everyone with Sjogren’s have dry

Discussion: Showering with Sjogren’s

Support Group: Autoimmune Diseases

Posted: Dec 31, 2023

Thankyou so much for responding!I am sorry that you are going through this as well.I was...

https://connect.mayoclinic.org/comment/985120/

through this as well.I was looking at Sjorgens

Discussion: No Doctor can figure out what is wrong with me

Support Group: Infectious Diseases

Posted: Dec 22, 2023

I am so sorry to read about you situation. I have encountered some of the same...

https://connect.mayoclinic.org/comment/982482/

a rheumatologist for evaluation of Sjogren

Discussion: I feel incredibly hopeless.

Support Group: Just Want to Talk

Posted: Dec 18, 2023

I totally get what you’re saying about poor medical care. I am kind of in your...

https://connect.mayoclinic.org/comment/976228/

I have Sjogerns that presents itself

Discussion: Should I continue to take Calcium supplement?

Support Group: Osteoporosis & Bone Health

Posted: Dec 7, 2023

I opted not to have the biopsy done for diagnosis. I just treat myself as if...

https://connect.mayoclinic.org/comment/975703/

I just treat myself as if I have Sjogerns ... The things I do to help my Sjogerns

Discussion: Oral biopsy when immunosuppressed.

Support Group: Autoimmune Diseases

Posted: Dec 6, 2023

I had sjogrens long ago. It took a very long time to get a correct diagnosis....

https://connect.mayoclinic.org/comment/973038/

I had sjogrens long ago.

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 30, 2023

Yes, primary care doc might do initial bloodwork looking for antibodies. I don't understand all the...

https://connect.mayoclinic.org/comment/971739/

I guess Sjogen's has some overlapping

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Nov 28, 2023

Shogrens soul show up on your blood work

https://connect.mayoclinic.org/comment/970313/

Shogrens soul show up on your blood

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Nov 25, 2023

I have Sjogrens, dry eyes - gets worse at night- all light literally painful. Ophthalmologist may...

https://connect.mayoclinic.org/comment/970097/

I have Sjogrens, dry eyes - gets worse

Discussion: How do you deal with dry eyes?

Support Group: Eye Conditions

Posted: Nov 25, 2023

My neurologist has referred me to rheumatologist for Sjogrens eval. I have many symptoms. I’ve been...

https://connect.mayoclinic.org/comment/969776/

referred me to rheumatologist for Sjogrens

Discussion: How do you deal with dry eyes?

Support Group: Eye Conditions

Posted: Nov 24, 2023

Hi, This is Sue. I have had Fibro and RA for 41 years; many combinations of...

https://connect.mayoclinic.org/comment/967813/

Then came Sjogrens, Reynouds and Pseudogout

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 20, 2023