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Comments (2,004)

To update: I had to stop the kevzara due to allergic reactions at the injection site...

https://connect.mayoclinic.org/comment/1026705/

My Rheumatologist is trying to get actemera

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 3, 2024

I am taking acterma and have been pleased so far. Down to five mg of predisone...

https://connect.mayoclinic.org/comment/1008450/

I am taking acterma and have been pleased

Discussion: Temporal Arteritis, PMR, RA

Support Group: Autoimmune Diseases

Posted: Feb 2, 2024

Unfortunately in my experience over the last 1 1/2 years with PMR there are many different...

https://connect.mayoclinic.org/comment/990361/

going blind with GCA he started me on Actemera

Discussion: Is actemra for GCA worth all the side effects ? Also PA vs MD?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 2, 2024

@redrock Welcome to Mayo Clinic Connect. I personally don’t have experience with actemera, but i know...

https://connect.mayoclinic.org/comment/970932/

personally don’t have experience with actemera ... Here is one discussion on actemera where

Discussion: Actemra

Support Group: Autoimmune Diseases

Posted: Nov 26, 2023

Yes I have had the biopsy You are correct .. mine said GCA healed !! Whatever...

https://connect.mayoclinic.org/comment/865629/

Please let us know how you do with a acterma

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 24, 2023

Thank you so much I did my first Acterma injection tonight. 2 weeks bloodwork, then I’ll...

https://connect.mayoclinic.org/comment/812122/

Thank you so much I did my first Acterma ... Did you have Acterma issues? Carol

Discussion: Giant Cell Arteritis Diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15, 2023

Hello @leetaanderson Yes, jaw pain and when chewing your jaw gets really tired. Also temple pain,...

https://connect.mayoclinic.org/comment/1224812/

I also had Actemera infusions but had

Discussion: what does the community consider a normal SED rate for GCA/PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29 1:51pm

Thank you for the information. Makes me feel much better, as I will be starting the...

https://connect.mayoclinic.org/comment/1281030/

better, as I will be starting the Actemera

Discussion: Taking Prednisone for PMR &!actemra to wean off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 13 2:25pm

I’m starting IV therapy of Actemura in a few weeks I’m currently taking 15 mg of...

https://connect.mayoclinic.org/comment/1194361/

I’m starting IV therapy of Actemura

Discussion: Just Started Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 20, 2024

Hi @jenb I have both PMR and GCA. Before I was diagnosed I had severe itching...

https://connect.mayoclinic.org/comment/1152978/

discontinue Prednisone, even with the Acterma

Discussion: I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 6, 2024

"I had been able to reduce to 5mg a day and still have reasonable comfort, trying...

https://connect.mayoclinic.org/comment/1126388/

A biologic called Acterma (tocilizumab

Discussion: Grouped Into 3 Buckets

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 18, 2024

My wife has uveitis. This created glaucoma. I know dadcue on this site suffers from inflammation...

https://connect.mayoclinic.org/comment/1080299/

Like Acterma or Kevzara.

Discussion: Tapering and Dealing with a Flareup

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3, 2024

I can try to help. Just my info from here and google search. I have not...

https://connect.mayoclinic.org/comment/1079496/

Kevzara and Acterma. ... Acterma works better with GCA.

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024

I had pain in my hands and feet. I go to a fairly busy family Dr....

https://connect.mayoclinic.org/comment/1077155/

Kevzara, Acterma are drugs that target

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2024

I’ve been on it for 8 months now. I’m not sure if it’s really helping or...

https://connect.mayoclinic.org/comment/1072099/

thinks it’s the prednisone not the acterma

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 21, 2024

I have RA for 25 years. I’ve tried about everything. I’m trying to get on Rinvoq...

https://connect.mayoclinic.org/comment/1060209/

Currently taking Acterma and developed

Discussion: Anyone on IV Orencia for RA?

Support Group: Autoimmune Diseases

Posted: May 1, 2024

I did drop a little on the Acterma, a couple months of alternate weeks instead of...

https://connect.mayoclinic.org/comment/1026926/

I did drop a little on the Acterma,

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 3, 2024

I’m Bob … My GCA has caused blindness in one eye and reduced vision in the...

https://connect.mayoclinic.org/comment/1018026/

progressively tapered to 15 and started Actembra ... balance-swelling, etc. and have lived for Actembra ... of reduced Prednisone and starting Actembra

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18, 2024

My doctor wants to try Actemera. How long did it take you to get off that...

https://connect.mayoclinic.org/comment/910074/

My doctor wants to try Actemera.

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 9, 2023

I live in Annapolis and also looking for a PMR specialist. Prednisone therapy and Actemera did...

https://connect.mayoclinic.org/comment/904525/

Prednisone therapy and Actemera did