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Comments (2,004)

I start Acterna infusion next Monday. Diagnosed with GCA in May. Was immediately put on 40mg...

https://connect.mayoclinic.org/comment/1368692/

was down to 10mg waiting to start Acterma ... have two questions for anyone taking Acterma

Discussion: Just Started Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11 8:23pm

When I was reducing I did a 1/2 mg every two weeks. I am at 3...

https://connect.mayoclinic.org/comment/1366107/

have been on monthly infusions of Actemera ... In rec states you can get the Actemera

Discussion: Better to be in some pain or better to up the dose of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8 4:42am

https://connect.mayoclinic.org/comment/1368802/

Told I can get it while on Acterma and

Discussion: Just Started Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12 6:00am

I requested the injection form of Mx for those very reasons. Though I dread poking myself...

https://connect.mayoclinic.org/comment/1368946/

started Tyenne (biologic similar for Actmera

Discussion: Methotrexate side effects

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12 9:47am

I have been doing monthly infusions of actemera for a few years. I am also taking...

https://connect.mayoclinic.org/comment/1366109/

have been doing monthly infusions of actemera

Discussion: Actemra weekly shot vs infusions. Experiences?

Support Group: Autoimmune Diseases

Posted: Aug 8 4:48am

I am on actemera, one shot a week, Just finished a year of prednisone. I’m having...

https://connect.mayoclinic.org/comment/1386974/

I am on actemera, one shot a week,

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 7 hours ago

@charlotte61 I just read your post and will share our experience. It is my husband who...

https://connect.mayoclinic.org/comment/1029430/

We've been prescribed Actemra and

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2024

May 2025. Put on 4o mg Prednisone initially. Now down to 15 mg daily. At this...

https://connect.mayoclinic.org/comment/1333274/

Supposed to start Acterma infusions

Discussion: Temporal Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 23 8:37am

Looks like I have a ways to go. Im tapered down to 12.5 from 40 in...

https://connect.mayoclinic.org/comment/1346625/

7.5mg when I am scheduled to start the Acterma

Discussion: Actemra

Support Group: Autoimmune Diseases

Posted: Jul 12 1:59pm

3months prednisone taper post Large Vessel GCA/ PMR diagnosis Nov 2024 . ( no more Pred...

https://connect.mayoclinic.org/comment/1360974/

Nov 24 Simultaneous commencement of Actemera ... Expect to cease Actemera Nov 2025 . ... ie 12 months Actemera treatment.

Discussion: Anyone successfully treating PMR without Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 31 5:53pm

The more I read the more confused I get. So far, my local RA doctor wants...

https://connect.mayoclinic.org/comment/1351738/

GCA ( diagnosed in May 2025) with Acterma

Discussion: Infusion vs injection of tocilizumab (Actmera)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 19 1:20pm

Thanks for the info. I have a lot of questions for the RA doctor at Mayo...

https://connect.mayoclinic.org/comment/1352499/

I want to know that before I start Acterma

Discussion: Infusion vs injection of tocilizumab (Actmera)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 20 1:07pm

I have Medicare and Fed Govt Blue Cross. They insisted I be on Prednisone for three...

https://connect.mayoclinic.org/comment/1350587/

Prednisone for three months before I start Acterma

Discussion: Infusion vs injection of tocilizumab (Actmera)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 17 6:10pm

https://connect.mayoclinic.org/comment/1353480/

to 7.5 mg in three weeks and start Acterma

Discussion: Giant Cell Arteritis Diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 21 4:35pm

I understand nanniepie's hesitancy. I'm also scared to start Actmra too. Methotrexate and Kevzara were terrible...

https://connect.mayoclinic.org/comment/1188175/

I'm also scared to start Actmra

Discussion: Newly diagnosed with PMR taking prednisone 15 mg. Working well. Dr wan

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 10, 2024

Hi Was diagnosed with pmr a year ago . I was well , my symptoms were...

https://connect.mayoclinic.org/comment/1176435/

choice but start high dose pred , and Actmera

Discussion: Do not want to take steroids.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 19, 2024

I’m sorry I don’t have any experience with anti viral medicine. You mentioned you were diagnosed...

https://connect.mayoclinic.org/comment/1242857/

he wants me to take injections of Actimra

Discussion: Antiviral flu medication and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 22 9:09am

Hello @lsm47 I was thinking about your post today while in the pool at the JCC....

https://connect.mayoclinic.org/comment/1161452/

You said are on Acterma for a year now

Discussion: PMR with normal labs and having severe thigh pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 23, 2024

This last go round, my Rheumatologist gave me the option of Acterma, but then decided to...

https://connect.mayoclinic.org/comment/1153626/

Rheumatologist gave me the option of Acterma

Discussion: I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 7, 2024

Hi @csm70 and @becsbuddy, I was taking prednisone for a year and a half, then off...

https://connect.mayoclinic.org/comment/1060935/

I was also offered Acterma this time ... I can always take Acterma if the prednisone

Discussion: Actemra & Methotrexate for GCA treatment

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 2, 2024