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Comments (2,418)

I started on 60 mg. of Prednisone last July 2024. Beginning of December, I was at...

https://connect.mayoclinic.org/comment/1302833/

things that I used to do before PMR/GCA

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12 7:42pm

I personally take a biologic called Actemra (tocilizumab). My rheumatologist had to get authorization to prescribe...

https://connect.mayoclinic.org/comment/848172/

However, Actemra is FDA approved for GCA ... targeted approach to the treatment of PMR/GCA

Discussion: The impact of Prednisone on A1C

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 23, 2023

Hi @mzamyl I am sorry to hear about your pain. I can't imagine living with the...

https://connect.mayoclinic.org/comment/656876/

diagnosis of Giant Cell Arteritis (GCA ... Untreated, GCA can cause stroke and/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 23, 2021

I have been on prednisone for PMR and now the added diagnosis of GCA for almost...

https://connect.mayoclinic.org/comment/1336255/

PMR and now the added diagnosis of GCA

Discussion: Decreasing Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 27 9:41am

Marilynredder2367 - Sorry to hear you ended up with GCA after your PMR...that seems to happen...

https://connect.mayoclinic.org/comment/970765/

- Sorry to hear you ended up with GCA ... pointed out, at least I'm aware of GCA

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 26, 2023

I had a raging case of GCA, which was misdiagnosed for about nine months, at which...

https://connect.mayoclinic.org/comment/859024/

I had a raging case of GCA, which was ... could not take pred and had both PMR/GCA

Discussion: What's your experience with Actemra for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12, 2023

Thank you @johnbishop @tinkerbell and @654321 for your response. It really helps to have others with...

https://connect.mayoclinic.org/comment/197289/

another patient of his diagnosed with GCA ... At the peak of my pain with GCA however ... Had I known about GCA and blindness

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 19, 2019

Hi @sticksandbugs, From what I've read, PMR often occurs after there's an injury, illness or something...

https://connect.mayoclinic.org/comment/1183274/

All three of us developed GCA.

Discussion: Precursor symptoms to PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 2, 2024

I have never had IL-6 testing done. It does seem like it could be a useful...

https://connect.mayoclinic.org/comment/1132059/

is "implicated" in PMR and GCA

Discussion: methotrexate or kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28, 2024

Thanks. It is really good to be off Prednisone. But there seems to be no clear...

https://connect.mayoclinic.org/comment/972449/

The main GCA/Actemra study in the New

Discussion: GCA conserns

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 29, 2023

I have been on a PMR journey for almost 1 1/2 years. I like (and consult)...

https://connect.mayoclinic.org/comment/959446/

of members who have or had PMR and GCA

Discussion: Confused about PMR symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 5, 2023

Hi @marymckeith, I'm sorry to hear of your struggle. The black hole for me was psychological,...

https://connect.mayoclinic.org/comment/925951/

supposed to resolve symptoms of PMR/GCA

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 7, 2023

I don't wish to suggest that Actemra is a perfect solution for PMR/GCA. My rheumatologist didn't...

https://connect.mayoclinic.org/comment/921731/

Actemra is a perfect solution for PMR/GCA

Discussion: Does adrenal insufficiency with unregulated inflammation cause flares?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 30, 2023

I also am tapering down. From 20 ml prednisone with LDN Am sitting/staying at 12.5 (back...

https://connect.mayoclinic.org/comment/865201/

I do want to find out it I have GCA

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23, 2023

Sounds like you’ve got a lot going on at once. As did I I didn’t know...

https://connect.mayoclinic.org/comment/808548/

time I believe I was exploding with GCA

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9, 2023

Success with any meds other than prednisone? Diagnosed Feb ‘22 with classic symptoms limited to shoulders...

https://connect.mayoclinic.org/comment/764411/

current symptoms that would suggest GCA

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 23, 2022

Typical start dose is 15-20 mgs. for PMR. Much higher for GCA. Your objective should be...

https://connect.mayoclinic.org/comment/599210/

Much higher for GCA.

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 4, 2021

here is my insight today..i trained at a hospital that had a very solid rheumatology service..but...

https://connect.mayoclinic.org/comment/286774/

service..but i never saw a case of PMR..GCA

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 17, 2021

Hello @jfarreast, Welcome to Mayo Clinic Connect. I have been tested for Giant Cell Arteritis (GCA)...

https://connect.mayoclinic.org/comment/151191/

been tested for Giant Cell Arteritis (GCA

Discussion: Giant cell arteritis:I’m afraid and would appreciate any advice

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2020

I have several comments about your post. 10 mg is a low starting dose for PMR....

https://connect.mayoclinic.org/comment/1244288/

I have PMR and GCA, and I was on the

Discussion: Prednisone Taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 24 7:30am