To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
202 total results
Comments (197)
I have Vexas and being treated by Mayo doctors. Im currently on Actemra but it's not...
(couldn't walk) so I was given Prednisone ... Symptoms improve but then as I taper ... Pain is difficult to manage when these
Posted: Jul 16, 2023
completely support you in May 2022 I was started on 20mg prednisone GP said I would...
would be affected and gave me the tapering ... musculoskeletal physician said all my symptoms ... took mje 2 years to get off it the taper ... was told I just had to endure the symptoms ... have a life threatneing injury, I manage
Posted: Dec 21, 2024
"With testing, PMR was declared in remission at 10." ---------------------- How was this done? There is...
t "cure" PMR and only "manages ... the symptoms." I guess that means ... to me because she thought prednisone ... same was true whenever I tried to taper ... Prednisone.
Posted: Nov 6, 2024
https://connect.mayoclinic.org/member/00-2c187528c8b85f9a269893/ Hello Ame, I am sorry I have taken so long to respond. I really appreciate...
Thanks for your question about your taper ... was based on the severity of your symptoms ... Did you ever have a prednisone “infusion ... for me, I was still teaching, barely managing ... average time of “remission”, before symptoms
Support Group: Autoimmune Diseases
Posted: Aug 26, 2024
Hello @tiateacake, Welcome to Connect. I don't think it's something you have to get used to...
like something you have to learn to manage ... off of prednisone and managing the ... symptoms - https://connect.mayoclinic.org ... search=prednisone%20tapering%20and%20managing ... %20symptoms.
Posted: Jul 8, 2024
Welcome @andirae, It's not uncommon to have a lot of questions being fairly new to PMR...
off of prednisone. ... can about the condition and how to manage ... the symptoms. ... PMR symptoms and tapering off. ... search=pmr+managing+symptoms.
@pargeo47 I can only speak from our experience - my husband is the one with PMR....
, tapered to 12.5 mg by Feb 2024 when ... he developed a host of new symptoms ... 80 mg per day starting in Feb 2024 tapering ... We've managed to work out a plan ... person has a more mild case of PMR with manageable
Posted: Jun 16, 2024
@sandysomers, I've had 2 instances of PMR. The first time took 3 and half years to...
first time took 3 and half years to taper ... off of prednisone. ... came back and I went back on 20 mg prednisone ... find helpful: --- PMR Dosages and Managing ... Symptoms: https://connect.mayoclinic.org
It depends where you live and how easy it is to be seen by a rheumatologist....
a primary care doctor can probably manage ... to me but didn't manage my symptoms ... lasted 12 years before I was able to taper ... My PMR pain was managed well with prednisone ... managed by my primary care doctor.
I was on a moderately high dose of prednisone for 13 years for PMR. When I...
When I was able to taper down to 3 mg ... link is a good overview about how to manage ... endocrinolgist was certain about my symptoms ... When multiple symptoms correlate with ... I was able to taper off prednisone a
Posted: Feb 5, 2024
Welcome @papasrockyworld, It is definitely a great feeling when that first dose of prednisone kicks in...
off of prednisone. ... Many of us struggle with tapering and ... PMR journey: --- PMR Dosages and Managing ... Symptoms: https://connect.mayoclinic.org ... /discussion/when-and-how-to-taper-prednisone
Posted: Oct 29, 2023
Hello..... I am not new to Connect, as I'm a breast cancer survivor and Connect was...
to share with others on treatments, symptom ... management, etc. ... m afraid the ear problem will mean prednisone ... drugs and I'm a very bad 'drug taker
Echoing the other great advice you’re receiving here(!): -I would get a second opinion. I have...
can you work with your PCP to treat/manage ... Others have said this, but long term prednisone ... with monitored tapering is the standard ... of care… Prednisone in short bursts ... tolerate it would improve but other symptoms
Posted: Jul 1, 2023
Hello @jonnydonny, Welcome to Connect. You will notice that we moved your post to an existing...
. --- PMR Dosages and Managing Symptoms ... Diet and lifestyle can help you manage ... the symptoms when tapering down on ... the prednisone. ... I found keeping a daily log of my prednisone
Posted: May 29, 2023
Hello MaryMV: I have had a somewhat similar experience to share with you. I have had...
Originally was treated with Prednisone ... for several month with a gradual taper ... Had to quit the Prednisone due to severe ... had it with mild/moderate pain but manageable ... came on, my PMR symptoms went down.
Hi @everettcatlin, There are a couple of other discussions you might find helpful for tapering off...
discussions you might find helpful for tapering ... off of prednisone and managing symptoms ... : --- PMR Dosages and Managing Symptoms ... tapering is challenging. ... /connect.mayoclinic.org/discussion/prednisone-tapering-and-remission
Posted: Apr 11, 2023
Welcome @issyb, I see that you have already connected with @marmak on your PMR journey. You...
can read what others have shared on managing ... PMR symptoms and flares. ... have shared. --- PMR Dosages and Managing ... Symptoms: https://connect.mayoclinic.org ... I would not be in a hurry to taper down
Posted: Feb 10, 2023
Hi @pjnewm, Tapering off of prednisone and managing the pain can be difficult. You will notice...
Hi @pjnewm, Tapering off of prednisone ... and managing the pain can be difficult ... has helped them. -- PMR Dosages and Managing ... Symptoms: https://connect.mayoclinic.org ... while my PMR was active and I was tapering
Posted: Feb 2, 2023
Hi Paul, For most people, on the appropriate dosage of prednisone, PMR symptoms will disappear -...
, PMR symptoms will disappear - or be ... gradually while managing symptoms. ... while you are tapering, the prednisone ... will be increased, then tapering will ... After taking prednisone for about a
@jillsteindler, It is a great idea to be prepared for your upcoming appointment with a rheumatologist....
lifestyle changes I can make to help manage ... the PMR symptoms? ... Do you have any suggestions for a tapering ... controlled by the current dose of prednisone ... a daily log to track PMR pain and prednisone