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257 total results
Comments (238)
@liz223 Hi, Betty. I hope you're keeping safe from the corona virus. It sounds like Florida...
I have peripheral polyneuropathy, with ... of my lower back, and she showed me what ... runs inside the spine, which could be what ... I hope that you'll get the help ... I'll be interested in knowing what
Support Group: Chronic Pain
Posted: Jul 6, 2020
@madsoann8 Hello Daisy and welcome to Connect. You sure came to the right place for support,...
how long have you been suffering, what ... myself have Small Fiber Progressive Polyneuropathy ... johnbishop will get you started with helpful ... and I hope you find Connect to be a helpful
Support Group: Neuropathy
Posted: Jun 30, 2020
@jamesinsonoma All of the abbreviations can be hard to keep up with. (Adding to what I...
(Adding to what I wrote in the following ... I also have idiopathic small fiber polyneuropathy ... It hasn't helped. ... If you have time, it could be helpful ... go back in the discussion and read what
Support Group: Neuropathy
Posted: May 7, 2020
@kcshoemaker My small fiber polyneuropathy (idiopathic) has been in a crescendo for more than 15 years....
@kcshoemaker My small fiber polyneuropathy ... morphine sulfate contin, which really has helped ... #39;ve had some pain relief that has helped ... you've figured out from reading what
Support Group: Neuropathy
Posted: Apr 29, 2020
Hey Laura @laurask, I'm Rachel and am very glad you found us here on Connect! I...
as I have progressive small fiber polyneuropathy ... more about your diagnosis path and what ... What institutions have you visited? ... you on any medication that you feel helps
Support Group: Neuropathy
Posted: Mar 16, 2020
@debbiehirsch I have CIDP, Chronic Inflammatory Demyelinating Polyneuropathy, or small fiber pn. It shows up for...
Chronic Inflammatory Demyelinating Polyneuropathy ... As for your question, what do you do ... things people do for pain relief, and what ... helps one person may be ineffective
Support Group: Neuropathy
Posted: Jan 27 11:15pm
Despite checking in, I did know of their program. I have polyneuropathy, plantar fasciitis and arthritis...
I have polyneuropathy, plantar fasciitis ... I know absolutely that I will need help ... What program do they have?
Support Group: Neuropathy
Posted: Jan 4 8:53pm
Welcome @kei33, It's OK to be angry. Dealing daily with pain for so long is just...
I think what might help is learning ... as you can about your condition may help ... here on Connect that can relate to what ... 's some information that might help ... diagnosis of severe axonal sensory polyneuropathy
Support Group: Neuropathy
Posted: Dec 21, 2025
Hi Matt, @mtnrunner8981 Finding answers to some of our medical issues can be a real test...
struggle for trying to figure out what ... perusing through these you’ll find some helpful ... could-this-be-amyloidosis/ ~Amyloidosis and Polyneuropathy
Posted: Dec 16, 2025
@melissawolfe1981 and @jw9 , Hello. Nice to meet you both! @melissawolfe1981 -Im so sorry to hear...
relief we have when we finally know what ... Eg: Hashimoto’s, autoimmune Axonal Polyneuropathy ... techniques to reduce stress is very helpful ... That seems to be in keeping with what
Support Group: Autoimmune Diseases
Posted: Nov 2, 2025
Hello @oliver8112000, I'm not a doctor but from what I've read chemotherapy treatments can cause neuropathy...
oliver8112000, I'm not a doctor but from what ... Chronic Inflammatory Demyelinating Polyneuropathy ... also a discussion on CIDP that may be helpful ... Chronic Inflammatory Demyelinating Polyneuropathy ... cidp-chronic-inflammatory-demylinating-polyneuropathy
Support Group: Neuropathy
Posted: Aug 31, 2025
I finally got a stool tested and it is high in fat. No blood, white cells,...
to try and internal doctor and see what ... ago, also diagnosed with idiopathic polyneuropathy ... Whatever it is, I will try anything to help
Support Group: Digestive Health
Posted: Aug 24, 2025
You can test positive my a compressed nerve. My emg repeated when I had sciatic nerve...
sensorimotor dysautonomia peripheral polyneuropathy ... see where the body of the nerve and what ... I have spinal bifida which doesn’t help
Support Group: Neuropathy
Posted: Jun 25, 2025
I have Lupus, Sojourn, Hashimotos, connective tissue disease. Lupus also causes autoimmune asthma. My first asthma...
sensorimotor dysautonomia peripheral polyneuropathy ... I have to have help lifting up my legs ... Just what I always wanted not. ... What I have learned new studies use ... It helps your immune system and builds
Support Group: Autoimmune Diseases
Posted: Jun 18, 2025
Hi, I'm very formiliar with those symptoms, my digestive system rules my life, or it tries...
Get all the test done to eliminate what ... peaches in the evening which seem to help ... eat a gingernut biscuit, the ginger helps ... I have Autonomic polyneuropathy, IBS ... There is no ryme nor reason to what
Discussion: IBS challenges
Support Group: Digestive Health
Posted: Mar 13, 2025
Hi, Seeing it and living it are two vastly different takes of a disease. No one...
No one else can feel what you feel, ... , not a lot of Dr's appreciate what ... m lucky that my disease, Autonomic polyneuropathy ... to contend with and it doesn't help
Hi, Autonomic polyneuropathy is the Autonomic nerve system and the polyneuropathy is all the rest of...
Hi, Autonomic polyneuropathy is the ... Autonomic nerve system and the polyneuropathy ... I'm told I should eat what I can ... feels right as they cannot help anymore ... As it is now I'm undecided what
Posted: Feb 21, 2025
During my research of what to take for my polyneuropathy I learned from Dr Emily Splichal’s...
During my research of what to take for ... my polyneuropathy I learned from Dr ... strengthening exercises which seem to be very helpful ... Hard to say which one helps more, the
Support Group: Neuropathy
Posted: Feb 21, 2025
Hi, Thanks. Unfortunately IBS is a big field with many many causes, hence the no particular...
to understand the old adage, we are what ... have been diagnosed with Autonomic polyneuropathy ... then I have to be careful of just what ... That is what keeps driving me forward ... They can't withhold help or treatment
Discussion: Diet for IBS?
Support Group: Digestive Health
Posted: Oct 3, 2024
Steve, I wish I’d kept my last reply to the medical and not so much the...
idiopathic large-fiber, sensory-dominant polyneuropathy ... I liked that, as that was what I was ... neuropathy was incurable, my attitude was, “What ... I’m asked: Has it helped? ... But helped?
Support Group: Neuropathy
Posted: Oct 1, 2024