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286 total results

Comments (268)

My name is Kenzie. I was diagnosed with fibromyalgia at 18, small fiber neuropathy & erythromyalgia...

https://connect.mayoclinic.org/comment/158464/

at 18, small fiber neuropathy & erythromyalgia

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Mar 26, 2020

Hi @akiannejad123 and welcome to Connect. That pain and weakness must be so confusing to have...

https://connect.mayoclinic.org/comment/276869/

severe pain, redness, and swelling (erythromelalgia

Discussion: Anyone have CALR mutation with constitutional symptoms?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2019

It's early morning now.. I woke up at 5:00 a.m. with my feet burning and red.....

https://connect.mayoclinic.org/comment/71931/

neuropathy, as I have, along with Erythromelalgia

Discussion: Burning Feet syndrome

Support Group: Neuropathy

Posted: Jul 4, 2019

I'm interested in trying to reverse my SFN and have seen it mentioned a few times...

https://connect.mayoclinic.org/comment/241216/

I am Type 2 Diabetic and have Erythromelalgia

Discussion: Small Fiber Neuropathy?

Support Group: Neuropathy

Posted: Jun 28, 2019

Massaging my calves makes a big difference in my foot pain.. At first I was afraid...

https://connect.mayoclinic.org/comment/264312/

When my Erythromylalgia is hot and flaring

Discussion: Kneading massage for lower leg and foot neuropathy

Support Group: Neuropathy

Posted: Jun 10, 2019

@babyur4me I am being treated at the Jacksonville Mayo Clinic for Erythromelalgia. At Mayo, I was...

https://connect.mayoclinic.org/comment/213685/

at the Jacksonville Mayo Clinic for Erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: May 26, 2019

@lorirenee1, Hi Lori...I had a normal EMG so they did the skin biopsy for small fiber...

https://connect.mayoclinic.org/comment/256482/

anything definitive as yet except for Erythromelagia ... sending me to a Dermatologist for Erythromelagia

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: May 20, 2019

Hi John.. I'm continuing to post about my experience with Frankincense and Myrrh NEUROPATHY rubbing oil.....

https://connect.mayoclinic.org/comment/260512/

pain along with my other malady of Erythromelalgia

Discussion: Frankincense and Myrrh for Neuropathy pain

Support Group: Neuropathy

Posted: May 7, 2019

Thank you for trying it out.. and I'm sorry it didn't do anything for you. The...

https://connect.mayoclinic.org/comment/260506/

Along with neuropathy I also have Erythromelalgia

Discussion: Frankincense and Myrrh for Neuropathy pain

Support Group: Neuropathy

Posted: May 4, 2019

Ladies, I just ordered the Spenco Java shoes on Ebay.. With Erythromelalgia I have to have...

https://connect.mayoclinic.org/comment/256406/

With Erythromelalgia I have to have

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: Apr 3, 2019

Hi @txbren, I’m tagging @summershaddow who have also mentioned erythromelalgia; I hope they may be able...

https://connect.mayoclinic.org/comment/213655/

summershaddow who have also mentioned erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Dec 5, 2018

In response to the OP, I was diagnosed with Erythromelalgia (EM) one year ago at Mayo...

https://connect.mayoclinic.org/comment/213667/

response to the OP, I was diagnosed with Erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Mar 22, 2019

As a person freshly diagnosed (correctly) with erythromelalgia, I was wondering if the brave souls here...

https://connect.mayoclinic.org/comment/1221312/

freshly diagnosed (correctly) with erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Jan 25 10:50am

This might possibly help you with the burning feet.. It made a world of difference for...

https://connect.mayoclinic.org/comment/1147153/

few years ago, but I started with Erythromelalgia

Discussion: neuropathy related to cervical laminectomy and fusion

Support Group: Neuropathy

Posted: Sep 25, 2024

I had what I thought was erythromelalgia for 20 years. My feet were so painful. I...

https://connect.mayoclinic.org/comment/1097563/

I had what I thought was erythromelalgia

Discussion: Peripheral Neuropathy vs. Erythromelalgia

Support Group: Autoimmune Diseases

Posted: Jul 1, 2024

Hi, I have laso been suffering a lot , my sfn started in legs and progressed...

https://connect.mayoclinic.org/comment/1084003/

legs and progressed to hands, I have erythromelalgia

Discussion: Who else has Autonomic Neuropathy?

Support Group: Neuropathy

Posted: Jun 10, 2024

May I know which specialist diagnosed you with erythromelalgia and Raynaud's? My wife has calf pain...

https://connect.mayoclinic.org/comment/1072993/

which specialist diagnosed you with erythromelalgia

Discussion: Covid Legs and Toes

Support Group: Post-COVID Recovery & COVID-19

Posted: May 22, 2024

Has anyone tried acupuncture for erythromelalgia with success?

https://connect.mayoclinic.org/comment/1066411/

Has anyone tried acupuncture for erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: May 12, 2024

Has anyone been to Mayo Clinic For erythromelalgia Treatment and was successful?

https://connect.mayoclinic.org/comment/1055190/

Has anyone been to Mayo Clinic For erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Apr 22, 2024

I am now into my third month of IvIg infusions. My immunologist, on the basis of...

https://connect.mayoclinic.org/comment/1053401/

Has anyone been diagnosed with erythromelalgia

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Apr 19, 2024