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274 total results
Comments (260)
Hi Carrie @sherlock, welcome to Mayo Clinic Connect. I have small fiber PN but I only...
https://connect.mayoclinic.org/comment/156821/
Neuropathy > Anyone been diagnosed with CIDP ... has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare ... continues to worsen even with the IVIG treatments ... Did your neurologist offer any other treatment
Discussion: Living with Neuropathy - Welcome to the group
Support Group: Neuropathy
Posted: Nov 26, 2018
My diagnosis of CIDP was also combined with a diagnosis of lymphoma so when I started...
https://connect.mayoclinic.org/comment/195819/
My diagnosis of CIDP was also combined ... diagnosis of lymphoma so when I started my treatment ... Rituximab for the lymphoma it cured my CIDP ... My CIDP was gone completely in 2 months
Discussion: CIDP SINCE AUGUST 2015
Support Group: Neuropathy
Posted: Apr 12, 2018
Yes, I looked them up and have the other symptoms . I have the demylenization, as...
https://connect.mayoclinic.org/comment/1224580/
neuros who are certified to treat CIDP ... I just wish there was a treatment available
Discussion: CIDP diagnosis
Support Group: Autoimmune Diseases
Posted: Jan 29 10:22am
I have CIDP & on monthly IVIG. Two neurosurgeons have given me the green light to...
https://connect.mayoclinic.org/comment/1175492/
I have CIDP & on monthly IVIG. ... the surgery one week after the IVIG treatment ... d be interested to hear from other CIDP
Discussion: Has anyone with CIDP had Knee replacement?
Support Group: Autoimmune Diseases
Posted: Nov 18, 2024
Sometimes the cure seems worse than the ailment, especially when we read the fine print on...
https://connect.mayoclinic.org/comment/730389/
My initial treatment was 1000ml IV steroids ... who have also been diagnosed with CIDP ... CIDP (Chronic Inflammatory Demyelinating ... where it discusses treatments and the ... deter your husband from beginning his treatment
Discussion: CIDP and concerns about treatment risk factors
Support Group: Neuropathy
Posted: Jul 25, 2022
Hi there @silkanowtz! I'm sorry to hear of your ongoing neuromuscular problems. I've met many GBS...
https://connect.mayoclinic.org/comment/1170767/
into the chronic form of GBS which is CIDP ... appt. with one recommended by the GBS/CIDP ... give me plenty of time to research CIDP ... if the doctor has the wrong tests, treatment
Discussion: CIDP diagnosis after severe GBS long ago, where do I start?
Support Group: Neuropathy
Posted: Nov 9, 2024
@nbailey7uh2edu3 - Have you seen these articles? -- BCMA-CD19 bispecific CAR-T therapy in refractory chronic inflammatory...
https://connect.mayoclinic.org/comment/1152216/
/article/pii/S2949928324000440 -- CIDP ... dual-target CAR-T cell therapy for the treatment ... https://medicalxpress.com/news/2024-06-cidp-explores-dual-car-cell.html
Discussion: Clinical Trials for Neuropathy
Support Group: Neuropathy
Posted: Oct 5, 2024
I would be interested to know if your mom has any numbness in her toes, feet,...
https://connect.mayoclinic.org/comment/1092658/
I have CIDP, an autoimmune form of peripheral ... hope she gets proper diagnosis and treatment
Discussion: My mom can't walk, doctor's don't know why
Support Group: Autoimmune Diseases
Posted: Jun 23, 2024
rfsau, I urge you to get to a neurologist ASAP, one who specializes in neuromuscular disorders,...
https://connect.mayoclinic.org/comment/1081710/
There is an uncommon condition called CIDP ... disabilities if progresses without treatment ... several others on Mayo Connect with CIDP
Discussion: Do GP's routinely blame Perip Neuro on alcohol?
Support Group: Neuropathy
Posted: Jun 6, 2024
I had a trial (80% relief!), and an implant of an Abbott SCS (75% relief for...
https://connect.mayoclinic.org/comment/1077976/
on just in case it's helping my CIDP ... CIDP is the pits! ... have to be proactive with medical treatments
Discussion: Spinal Cord Stimulator Removal
Support Group: Chronic Pain
Posted: May 30, 2024
I know i'm responding to an old post, but am looking for fellow CIDP'ers. I have...
https://connect.mayoclinic.org/comment/1065359/
old post, but am looking for fellow CIDP ... been diagnosed and going through IVIG treatments ... The treatsments seem to be working in
Discussion: Anyone been diagnosed with CIDP? It's very rare
Support Group: Autoimmune Diseases
Posted: May 10, 2024
I was immediately diagnosed with CIDP (2 Neurologists). I did one series of 16 IVIG infusions...
https://connect.mayoclinic.org/comment/1060592/
I was immediately diagnosed with CIDP ... IVIG infusions and that was the only treatments ... I apparently have a CIDP variant. ... CIDP has "many" different aspects
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: May 2, 2024
I have been diagnosed with CIDP and am currently getting an IVIG infusion every 4 weeks,...
https://connect.mayoclinic.org/comment/1053220/
I have been diagnosed with CIDP and ... infusion every 4 weeks, WHile this treatment ... my trunk) are associated with the CIDP
Discussion: Muscle Spams and Neuropathy
Support Group: Neuropathy
Posted: Apr 18, 2024
Scott22 @Scott22 I was diagnosed with CIDP and after testing the neurologist said that it’s idiopathic....
https://connect.mayoclinic.org/comment/1050475/
Scott22 @Scott22 I was diagnosed with CIDP ... For all of you that are having treatments ... you diagnosed with a cause for your CIDP ... So if you are getting treatment, what ... treatment and is it helping.
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: Apr 14, 2024