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855 total results
Comments (781)
Hi Becky, if you go to this site again that @colleenyoung posted, you’ll see a box...
https://connect.mayoclinic.org/comment/738621/
some current conversations regarding amyloidosis ... Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Aug 17, 2022
Hi Old Karl @oldkarl -- I thought about you when I received an email update from...
https://connect.mayoclinic.org/comment/92438/
with hereditary transthyretin (hATTR) amyloidosis ... progression in patients with hATTR amyloidosis ... polyneuropathy from hereditary transthyretin amyloidosis
Discussion: Anyone here dealing with peripheral neuropathy?
Support Group: Neuropathy
Posted: Sep 11, 2018
@sousou Hi, Saida. Glad to help. And for your question, ABSOLUTELY Amyloidosis causes sever constipation. And...
https://connect.mayoclinic.org/comment/179554/
And for your question, ABSOLUTELY Amyloidosis ... A great place to start is the Amyloidosis ... I hope you have downloaded by Amyloidosis
Discussion: Abdominal pain with severe constipation and weight loss
Support Group: Digestive Health
Posted: Jan 4, 2018
Amyloidosis can be tested with a fat pad biopsy. They take a small bit of abdominal...
https://connect.mayoclinic.org/comment/1378108/
Amyloidosis can be tested with a fat ... on a 1/24 test and because kidney amyloidosis ... had a kidney biopsy and it showed no amyloidosis
Discussion: Testing for Amyloids with MGUS
Support Group: Blood Cancers & Disorders
Posted: Aug 24, 2025
I have had MGUS for 4.5 years. The strategy has been to monitor it with blood...
https://connect.mayoclinic.org/comment/1101928/
How ever mine just added Amyloidosis ... , but not uncommon for MGUS to add Amyloidosis ... people with MGUS to have this because Amyloidosis
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Jul 8, 2024
Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...
https://connect.mayoclinic.org/comment/169956/
waldenströms-macroglobulinemia/ – Waldenstroms and amyloidosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis
Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia
Support Group: Blood Cancers & Disorders
Posted: Oct 20, 2017
Hi @azjulie, welcome to the caregivers group on Connect. We have members here who have experience...
https://connect.mayoclinic.org/comment/112032/
discussion: - Current diagnosis is Amyloidosis ... mayocl.in/2cpKVI7 - Diagnosed with AL Amyloidosis
Discussion: Meet fellow Caregivers - Introduce yourself
Support Group: Caregivers
Posted: Aug 30, 2016
My husband was recently diagnosed on May with Cardiac Amyloidosis in Mayo Clinic-Jacksonville FL His Kappa/Lambda,...
https://connect.mayoclinic.org/comment/898854/
recently diagnosed on May with Cardiac Amyloidosis ... drug Vyndamax has been prescribed for Amyloidosis ... As a Retired RN I never heard about Amyloidosis ... The word Amyloidosis is new to us.
Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?
Support Group: Blood Cancers & Disorders
Posted: Jul 20, 2023