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415 total results
Comments (359)
Yes! I posted this, but still have not been able to try Mestinon. I do think...
Dystrophy, all Autoimmune Diseases, ALS ... I have alot of symptoms that mimic NeuroSjogrens
Posted: Mar 1 10:18am
Our Cousin got recently diagnosed with ALS. First symptoms were her body reactions got out of...
Cousin got recently diagnosed with ALS ... First symptoms were her body reactions ... Second symptoms were speech problems ... opinion at the Mayo Clinic, diagnosed ALS
Discussion: Is this ALS?
Support Group: Brain & Nervous System
Posted: Jul 20, 2024
Mike I had all of the same symptoms you have about 1 year ago. I had...
Mike I had all of the same symptoms ... was absolutely convinced that I had ALS ... ledge a little by explaining that ALS ... that he assured me that I don’t have ALS ... was diagnosed a few years ago with ALS
Support Group: Brain & Nervous System
Posted: Jan 26 8:59pm
I've had 2 moderna shots and a booster in March 2022. I got covid in mid-June...
He said 95% chance I have ALS. ... #39;ve known 10+ people with similar symptoms ... I hope the Dr is wrong with the ALS
Posted: Jan 2, 2023
I would get the tests results and input from the doctors before making any assumptions. I...
had some frightening neurological symptoms ... convinced I had either Parkinson’s or ALS ... I got treatment and many of my symptoms ... which contributed to my neurological symptoms
Support Group: Brain & Nervous System
Posted: Jan 19 8:33pm
Glad to hear from someone with similar story. For me the health anxiety might be the...
muscle twitches I instantly went to ALS ... this day but I remind my self for als ... First fear is the Somatic symptoms then
Support Group: Neuropathy
Posted: Apr 10 6:24am
I’ve have muscle twitching for 5 years now…. I have explained my symptoms before on this...
I have explained my symptoms before ... over… I was terrified it might be a als ... and most of them more benign than als ... …..remember ALS is extremely rare the
Support Group: Brain & Nervous System
Posted: Dec 9, 2023
For what it is worth, I found this on TRT in my research. Testosterone, or low...
validated through testing and not symptoms ... Bhasin S, Travison TG, Pencina KM, et al ... [iv] Pozzi et al, ibid.
Support Group: Prostate Cancer
Posted: May 27 4:17pm
In order to diagnose ALS blood and urine tests may be performed based on the person's...
In order to diagnose ALS blood and urine ... performed based on the person's symptoms
Discussion: Is this ALS?
Support Group: Brain & Nervous System
Posted: Jul 28, 2024
Hello, @bob100! My name is also Sherry, and I was also diagnosed with AL amyloidosis in...
Sherry, and I was also diagnosed with AL ... amyloidosis in 2019 after six years of symptoms ... would love to know if others with AL
Posted: Mar 28, 2024
Hi, Here are my thoughts: 1.). The keto diet stressed your system, you had high proteins...
retention and swelling is tied to ALS ... I do not think you have ALS and your ... symptoms are tied to keto diet/high
Support Group: Autoimmune Diseases
Posted: Mar 4, 2024
Hi, Fala (@fala) I've no doubt you're 100% correct, that it all comes down to trial...
cannabis, lidocaine, Diclofenac, et al ... #39;ve no foot pain, and my sole PN symptom
Support Group: Neuropathy
Posted: Oct 2, 2023
I, just like many of you, have had a constant 24/7 twitching across the board. It...
started to develop a scalloped tongue (a symptom ... cancer to thinking it was possibly MNS/ALS ... I know logically that ALS has far different
Support Group: Brain & Nervous System
Posted: Sep 29, 2023
Hi @cadabra Sorry to hear of your swallowing issues and fears. 8 years ago I thought...
fears. 8 years ago I thought I had ALS ... #39;ve had for decades even though symptoms ... All no fun, but not ALS and it really ... about him until after I thought I had ALS
Discussion: Fearing ALS
Support Group: Brain & Nervous System
Posted: Jul 23, 2023
Welcome to Connect, @tollie It sure helps to feel that you’re not alone when you have...
number of members in our forum with Al-Amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis/symptoms-causes ... / ~~ Recently diagnosed with AL ... / ~ Diagnosed with AL Amyloidosis ... contains videos with information about AL