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405 total results
Comments (350)
Glad to hear from someone with similar story. For me the health anxiety might be the...
muscle twitches I instantly went to ALS ... this day but I remind my self for als ... First fear is the Somatic symptoms then
Support Group: Neuropathy
Posted: Apr 10 6:24am
I’ve have muscle twitching for 5 years now…. I have explained my symptoms before on this...
I have explained my symptoms before ... over… I was terrified it might be a als ... and most of them more benign than als ... …..remember ALS is extremely rare the
Support Group: Brain & Nervous System
Posted: Dec 9, 2023
In order to diagnose ALS blood and urine tests may be performed based on the person's...
In order to diagnose ALS blood and urine ... performed based on the person's symptoms
Discussion: Is this ALS?
Support Group: Brain & Nervous System
Posted: Jul 28, 2024
I’m sorry to hear it was such a negative experience. When did you have the consultation?...
with me to come up with a plan for my symptoms ... who’s battled chronic fatigue, et al ... creative ways to address my worst symptoms
Hello, @bob100! My name is also Sherry, and I was also diagnosed with AL amyloidosis in...
Sherry, and I was also diagnosed with AL ... amyloidosis in 2019 after six years of symptoms ... would love to know if others with AL
Posted: Mar 28, 2024
Hi, Here are my thoughts: 1.). The keto diet stressed your system, you had high proteins...
retention and swelling is tied to ALS ... I do not think you have ALS and your ... symptoms are tied to keto diet/high
Support Group: Autoimmune Diseases
Posted: Mar 4, 2024
Hi, Fala (@fala) I've no doubt you're 100% correct, that it all comes down to trial...
cannabis, lidocaine, Diclofenac, et al ... #39;ve no foot pain, and my sole PN symptom
Support Group: Neuropathy
Posted: Oct 2, 2023
I, just like many of you, have had a constant 24/7 twitching across the board. It...
started to develop a scalloped tongue (a symptom ... cancer to thinking it was possibly MNS/ALS ... I know logically that ALS has far different
Support Group: Brain & Nervous System
Posted: Sep 29, 2023
Hi @cadabra Sorry to hear of your swallowing issues and fears. 8 years ago I thought...
fears. 8 years ago I thought I had ALS ... #39;ve had for decades even though symptoms ... All no fun, but not ALS and it really ... about him until after I thought I had ALS
Discussion: Fearing ALS
Support Group: Brain & Nervous System
Posted: Jul 23, 2023
Welcome to Connect, @tollie It sure helps to feel that you’re not alone when you have...
number of members in our forum with Al-Amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis/symptoms-causes ... / ~~ Recently diagnosed with AL ... / ~ Diagnosed with AL Amyloidosis ... contains videos with information about AL
Hello @drigg97 I have just read your posting. I am hoping you are doing better and...
dealing with very similar unexplained symptoms ... This symptom started after first experiencing ... have ruled out some big items, no als
Support Group: Brain & Nervous System
Posted: Apr 7, 2023
My grandma who has been Lou Gehrig’s disease for 2 years at the age of 75...
years at the age of 75 had all her symptoms ... centre . org after undergoing their ALS ... God Bless all ALS Caregivers.
Support Group: Caregivers
Posted: Mar 17, 2023
Hi. This sounds a bit similar to what happened to me. I had a bad viral...
bad viral illness including stomach symptoms ... illness (especially stomach) causes the symptoms ... terrified at first, too, that I had ALS
Discussion: ALS Like Symptoms
Support Group: Brain & Nervous System
Posted: Jan 6, 2023