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Comments (2,264)

You will find tons of resources here: many of us have had a time getting diagnosed....

https://connect.mayoclinic.org/comment/686618/

/www.smartpatients.com/communities/sjogrens-syndrome ... site was created by a doctor with Sjogren

Discussion: RM states I don't have Sjogren's

Support Group: Autoimmune Diseases

Posted: Mar 5, 2022

It's a long story. In short: in the last 7 years I had Cauda Equina Syndrome...

https://connect.mayoclinic.org/comment/682016/

Process for the Sjogrens diagnosis is ... gastroparesis (apparently some people with Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 18, 2022

Ask your dr to prescribe Evoxac for your dry mouth. It really helps. I also have...

https://connect.mayoclinic.org/comment/681451/

I also have Sjogrens.

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 16, 2022

Sjogrens has done a number on my teeth, it has taken almost all of them. You...

https://connect.mayoclinic.org/comment/680801/

Sjogrens has done a number on my teeth ... You have no control over sjogrens.

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 14, 2022

Thank you for your reply, I hope you get your diagnosis soon. Well, apparently for Sjogren's...

https://connect.mayoclinic.org/comment/680184/

Well, apparently for Sjogren's there

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 12, 2022

I also have multiple autoimmune diseases (lupus/lupus nephritis, Hashimotos thyroiditis, Sjogren's syndrome) and post Covid (nov...

https://connect.mayoclinic.org/comment/680114/

nephritis, Hashimotos thyroiditis, Sjogren

Discussion: Multiple Autoimmune Diseases & Post Covid

Support Group: Autoimmune Diseases

Posted: Feb 12, 2022

My SFN/POTS/dysautonomia is from Sjogrens....this is new for me (the red face pretty much daily). I...

https://connect.mayoclinic.org/comment/679576/

My SFN/POTS/dysautonomia is from Sjogrens

Discussion: Peripheral Neuropathy vs. Erythromelalgia

Support Group: Autoimmune Diseases

Posted: Feb 10, 2022

I also have both , PN and Erythromelagia . It’s a constant daily struggle for sure....

https://connect.mayoclinic.org/comment/679502/

My diagnosis is Sjogrens ( includes

Discussion: Peripheral Neuropathy vs. Erythromelalgia

Support Group: Autoimmune Diseases

Posted: Feb 10, 2022

Mycophenolate is known for having the potential for aggravating infections. So, a precautionary measure. I started...

https://connect.mayoclinic.org/comment/676729/

I have Sjogren’s Syndrome which causes

Discussion: What to do if you test positive for Covid and are immunosuppressed

Support Group: Transplants

Posted: Jan 31, 2022

I totally forgot about the baby shampoo...opthalmologist recommended that as well...so long ago. I was tested...

https://connect.mayoclinic.org/comment/668970/

I was tested three times for Sjogren ... dry eyes and one first cousin with Sjogrens

Discussion: How do you deal with dry eyes?

Support Group: Eye Conditions

Posted: Jan 7, 2022

I was also recently diagnosed with Sjögren’s syndrome, chronic ITP with platelets as low as 11...

https://connect.mayoclinic.org/comment/667998/

I was also recently diagnosed with Sjögren ... didn’t remove all my CRSP pain or Sjögren

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jan 5, 2022

@dancing1 Dryness in any of the mucus membranes can be a real problem and I’m sure...

https://connect.mayoclinic.org/comment/667914/

can be a real problem and I’m sure Sjögren

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jan 4, 2022

I am so struggling with my Sjogrens! I am wondering if any of you have severe...

https://connect.mayoclinic.org/comment/667635/

I am so struggling with my Sjogrens!

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jan 4, 2022

No I just told my neurologist that I will not go back to that rheumatologist because...

https://connect.mayoclinic.org/comment/665722/

in my mouth and said you don’t have Sjogrens

Discussion: Undiagnosed severe pain

Support Group: Brain & Nervous System

Posted: Dec 27, 2021

My main issue is neck pain on my left side. I had it 2 years ago...

https://connect.mayoclinic.org/comment/659214/

I have Sjogren’s, so we have very dry

Discussion: Anyone tried Dry Needling or Acupuncture for Pain or Neuropathy?

Support Group: Neuropathy

Posted: Dec 2, 2021

☺️ I have a new appreciation for when infants are so cranky and cry after their...

https://connect.mayoclinic.org/comment/654622/

your own personal battle with having Sjogren

Discussion: Nights sweats and Shingrix vaccine

Support Group: Autoimmune Diseases

Posted: Nov 16, 2021

Hello Amy @mzaml, Welcome to Connect. I'm happy to hear that you finally were diagnosed with...

https://connect.mayoclinic.org/comment/652949/

connect.mayoclinic.org/discussion/vitiligo-2/ -- Sjogren

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 10, 2021

I am so sorry you are having pain for so long. Many of us have pain...

https://connect.mayoclinic.org/comment/651632/

I have Sjogren’s Syndrome, an auto-immune

Discussion: Chronic pain - no diagnosis

Support Group: Chronic Pain

Posted: Nov 5, 2021

I was Diagnosed with DJD, DDD, Fibromyalgia and SJOGRENS syndrome Which I was informed is a...

https://connect.mayoclinic.org/comment/649682/

Diagnosed with DJD, DDD, Fibromyalgia and SJOGRENS

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 30, 2021

I’m glad you had nothing serious going on Rosemary! I have Sjogren’s Syndrome, which is causing...

https://connect.mayoclinic.org/comment/648925/

I have Sjogren’s Syndrome, which is

Discussion: Liver transplant - Let's support each other

Support Group: Transplants

Posted: Oct 27, 2021