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Comments (5,485)
Hi, Barb (@bkfoster) You've asked the $1,000.000 question: How do you stay positive? (Applying COLA, I...
https://connect.mayoclinic.org/comment/882974/
And remember, my diagnosis is relatively ... That's the case with me and my diagnosis ... available on the Foundation for Peripheral Neuropathy ... if my attempt to refine (add to) my diagnosis ... For years (decades before my recent diagnosis
I advocated for aggressive chemotherapy of Folfirinox. This was the formulation used from 2011-2018…not the (m)Folfirinox...
https://connect.mayoclinic.org/comment/882727/
Because of the concern for permanent neuropathy ... recover, hopefully lessen the effects of neuropathy ... Folfirinox or Gemzar/Abraxane, our diagnosis ... chemo well and the major complaint was neuropathy ... I did develop neuropathy in the hands
@marciak9, I've been wearing compression socks since 2018 when I was first diagnosed with lymphedema in...
https://connect.mayoclinic.org/comment/878931/
socks since 2018 when I was first diagnosed ... believe they do anything to help with my neuropathy
@comptomama, I wish you the best. I can relate with many on this thread. I have...
https://connect.mayoclinic.org/comment/877954/
but he never was really helpful in diagnosing ... The order of diagnoses for the constellation ... , hearing loss (2017), small fiber neuropathy ... knowledge/skills to help properly diagnose ... The delay in auto-immune disease diagnosis
Because my original diagnosis was GBS, then CIDP, now it’s SFN (I’m waiting for punch biopsy...
https://connect.mayoclinic.org/comment/876559/
Because my original diagnosis was GBS ... shingles and has it affected your neuropathy ... Well, most sufferers haven’t had neuropathy ... be interested to see how those with neuropathy
I have Axonal Sensory PN; I’ve never been tested for SFN as my Neurologists say you...
https://connect.mayoclinic.org/comment/875858/
lot of the same symptoms as those diagnosed ... and say it’s got nothing to do with Neuropathy ... sudden & crippling idiopathic neuropathy
Hello, I am new to this group but have had long COVID since my first bout...
https://connect.mayoclinic.org/comment/873134/
2020, during which time I also was diagnosed ... I don’t have neuropathy from the diabetes
Hello @bilbo91412, Welcome to Connect. Here are a few other discussions where you can read what...
https://connect.mayoclinic.org/comment/872698/
have shared helps:
--- Small Fiber Neuropathy ... /
--- Neuropathy - What physical activities ... /connect.mayoclinic.org/discussion/neuropathy ... -22/
--- Neuropathy Pain at Night: ... diagnosis and any treatments you'
@lewin I'm sorry to hear that you still haven't found any answers from your doctors and...
https://connect.mayoclinic.org/comment/871582/
I'm not sure if you have been diagnosed ... with Polyneuropathy or Autonomic Neuropathy ... q=autonomic%20neuropathy&dFR[searchCollections
My neurologist didn't request a skin biopsy. My SFN is caused by antibodies and was diagnosed...
https://connect.mayoclinic.org/comment/869247/
SFN is caused by antibodies and was diagnosed ... I am better than when I first had neuropathy
I had a late diagnosis of hyperaldosteronism (approx 10 years) I am developing complications in my...
https://connect.mayoclinic.org/comment/868697/
I had a late diagnosis of hyperaldosteronism ... wondering if this is blood flow related or neuropathic
Hello, all! Two thumbs up for "Knowledge is power!" (I'd put more thumbs up if I...
https://connect.mayoclinic.org/comment/868588/
only last fall that my PN was finally diagnosed ... sensory-acquired axonal peripheral neuropathy
Like you, I have extreme burning pain in both feet (although, one is often worse than...
https://connect.mayoclinic.org/comment/867927/
Neurologists can diagnose, but neuropathy
I changed the way I eat significantly, and this helped a lot with nerve pain (reduced...
https://connect.mayoclinic.org/comment/865771/
neurologist in Canada who has a tool to diagnose ... peripheral neuropathy. ... The diagnosis has always been a guess
I have had idiopathic neuropathy in feet since my total knee replacements in 2016 and 2017....
https://connect.mayoclinic.org/comment/863504/
I have had idiopathic neuropathy in ... My diagnosis is my new knees flattened
Good evening @roslyn2314, Greetings......I just read your posts. Let me see if I understand what you...
https://connect.mayoclinic.org/comment/862303/
You want to know about diagnostic tests ... How was your SFN diagnosis made? ... surgeries that created a traumatic form of neuropathy ... Unfortunately, there is no cure for neuropathy
Appreciate I’m only just coming to this post from 6 yrs ago. But in answer to...
https://connect.mayoclinic.org/comment/861691/
My primary diagnosis isn’t neuropathy
Hi @jmrmackenzie, Welcome to Connect. You might find the link I shared earlier to the Foundation...
https://connect.mayoclinic.org/comment/860849/
earlier to the Foundation for Peripheral Neuropathy ... You mentioned being recently diagnosed
Hi Tessie; I have neuropathy in my hands, feet and ankles, relatively recently diagnosed. I started...
https://connect.mayoclinic.org/comment/860842/
Hi Tessie; I have neuropathy in my hands ... feet and ankles, relatively recently diagnosed ... Then when my neuropathy started I didn ... somebody else comment about their neuropathy ... who has found a way to deal with neuropathy
Hi @janetleela It is a battle to get the Trigeminal Neuralgia diagnosis, but stick with it....
https://connect.mayoclinic.org/comment/859572/
battle to get the Trigeminal Neuralgia diagnosis ... My neuropathy from standing, is still
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