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2,522 total results

Comments (2,334)

I’m concerned that A. You are getting nowhere with current medical care B that you might...

https://connect.mayoclinic.org/comment/989630/

Learn all you can about lupus, Sjögrens

Discussion: Frustrated and continuing to look for diagnosis

Support Group: Autoimmune Diseases

Posted: Jan 1, 2024

I had a Sjögren's flare up so bad that my skin was diagnosed with ICHTHYOSIS Vulgaris:...

https://connect.mayoclinic.org/comment/989540/

I had a Sjögren's flare up so bad ... The two (Sjögren's & Myasthenia

Discussion: Showering with Sjogren’s

Support Group: Autoimmune Diseases

Posted: Jan 1, 2024

Given the brief history only mentioning Sjögrens, I would pose some questions to think about. Any...

https://connect.mayoclinic.org/comment/989437/

the brief history only mentioning Sjögrens ... hot flashes and not related to your Sjögrens

Discussion: Question: weird nighttime ( sleep) experiences,. Anyone else had this?

Support Group: Autoimmune Diseases

Posted: Dec 31, 2023

I was having increasingly high monocytes and then my platletts were low so my oncologist (I...

https://connect.mayoclinic.org/comment/987843/

(I have neuropathy caused by Sjogren

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

I also have Sjogerns and was suffering with dry mouth and eyes. Now, this is just...

https://connect.mayoclinic.org/comment/985391/

I also have Sjogerns and was suffering

Discussion: Advice! Civemeline only works once a day. Pilocarpine not work

Support Group: Autoimmune Diseases

Posted: Dec 23, 2023

Thanks for the nod. I have background in clinical neurophysiology, and managed non nursing departments in...

https://connect.mayoclinic.org/comment/984025/

Sadly I know almost nothing about Sjogren ... And people who really needed it - Sjogrens

Discussion: Just diagnosed with colitis...given Budesonide $$$$

Support Group: Digestive Health

Posted: Dec 20, 2023

I would like to hear from people that have SFN caused by Sjogren's Syndrome- without pain...

https://connect.mayoclinic.org/comment/981072/

from people that have SFN caused by Sjogren

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: Dec 15, 2023

I have these every so often. But I believe they are related to the Small Fiber...

https://connect.mayoclinic.org/comment/974063/

received as a gift with the advent of Sjogren

Discussion: Body vibrations when falling asleep or waking?

Support Group: Sleep Health

Posted: Dec 2, 2023

Hi, just a comment on dry eyes: I do not have Sjorgen's but do struggle with...

https://connect.mayoclinic.org/comment/970971/

comment on dry eyes: I do not have Sjorgen

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Nov 27, 2023

Hello Vivanne, I have S.F. Neuropathy and Sojgren's Syndrome, I was wondering if you legs, feet...

https://connect.mayoclinic.org/comment/967627/

Neuropathy and Sojgren's Syndrome

Discussion: Please help me find out why my left foot feels frozen,, especially the

Support Group: Neuropathy

Posted: Nov 19, 2023

Hello @cpd54, as a fellow dry eye sufferer, I was curious so I took a good...

https://connect.mayoclinic.org/comment/962155/

problems associated with diseases like Sjogren

Discussion: Does anyone use Dry Eye Rescue clinics?

Support Group: Eye Conditions

Posted: Nov 10, 2023

Hi @cpd54 thanks so much for the welcome and luck and hugs sent my way! I...

https://connect.mayoclinic.org/comment/961771/

I have a friend with Sjogrens and know

Discussion: "Dysregulated" immune system?

Support Group: Autoimmune Diseases

Posted: Nov 9, 2023

Follow up question I’ve been trying to get to your schedule, but I’m not there yet....

https://connect.mayoclinic.org/comment/960954/

happy to hear from any others who have Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 8, 2023

I’m not sure how much help this will be. I’m not sure about hair loss from...

https://connect.mayoclinic.org/comment/960935/

I was reading last night about Sjogren ... noticeable when you Google hair looks and Sjogren

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 8, 2023

Hi @nonobaddog My mom was diagnosed with stage 3B (possibly 3C) NSCLC in Feb. She had...

https://connect.mayoclinic.org/comment/960210/

My mom has Sjogren's Syndrome, so

Discussion: Adenocarcinoma NSC Lung Cancer Stage 3. Advice? Success stories?

Support Group: Lung Cancer

Posted: Nov 6, 2023

Have you seen a rheumatologist? I have Sjogren's and have experienced the problem you describe.

https://connect.mayoclinic.org/comment/959007/

I have Sjogren's and have experienced

Discussion: Eyelids stuck to eyeball at night

Support Group: Eye Conditions

Posted: Nov 4, 2023

Hi there also have Sjogrens lupus nueropathy and pots/ Dysautonomia. Have u found relief with ivig...

https://connect.mayoclinic.org/comment/956150/

Hi there also have Sjogrens lupus nueropathy

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 30, 2023

To Dianaislooking: Yes, please tell what they are doing for you. As a fellow Sjogren's fighter,...

https://connect.mayoclinic.org/comment/955678/

As a fellow Sjogren's fighter, and ... someone who has Sjogren's neuropathy

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 29, 2023

I’m newly diagnosed with Sjogrens, would like to meet people, communicate, if possible with patients in...

https://connect.mayoclinic.org/comment/955044/

I’m newly diagnosed with Sjogrens, would ... for rheumatologist familiar with Sjogrens

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Oct 28, 2023

@eileenb1022, I think learning as much as you can about your condition is one of the...

https://connect.mayoclinic.org/comment/954000/

#39;m not sure if you have seen the Sjögrens ... helpful. --- Newly Diagnosed: https://sjogrens.org ... /living-with-sjogrens/newly-diagnosed

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 26, 2023