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Comments (2,008)

Eye issues are probably more of a Prednisone thing than an Actemra thing. I had many...

https://connect.mayoclinic.org/comment/1216743/

more of a Prednisone thing than an Actemra ... However, she is very happy that Actemra

Discussion: Eye issues while on prednisone and Anterma

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 19 3:38pm

@dadcue I never heard of a disease caused by the wind. How awful! I'm glad surgery...

https://connect.mayoclinic.org/comment/1104204/

#39;m glad surgery helped and that Actemra ... with that because the prednisone and Actemra

Discussion: Has Prednisone/Actemra worked to completely heal GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 12, 2024

My rheumatologist says it is "unlikely" that I will get off Actemra unless it stops working....

https://connect.mayoclinic.org/comment/1289092/

;unlikely" that I will get off Actemra ... to me now which may work as well as Actemra

Discussion: What is the goal when tapering?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 3:59pm

@paddington asked me to post the following additional information and links that helped him since he...

https://connect.mayoclinic.org/comment/197348/

artery biopsies" on YouTube Actemra ... am likely to be on Prednisone AND Actemra ... GCA treatment plan. -- https://www.actemra.com

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 19, 2020

Hello @amycmoore50nc, Welcome to Connect. I would definitely let your rheumatologist know about your recent symptoms....

https://connect.mayoclinic.org/comment/1109758/

scan through related discussions on Actemra

Discussion: Recently Diagnosed With GCA - Still Experiencing Pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 22, 2024

Hard to say. Many have said a night out or change in excercise or gardening, or...

https://connect.mayoclinic.org/comment/1085028/

couple of PMR drugs now in Kevzara and Actemra

Discussion: Methotrexate to wean off long term Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 11, 2024

Hello, I have been a diabetic for about 12 years, it is genetic in my family....

https://connect.mayoclinic.org/comment/1083309/

prednisone and getting ready to start Actemra

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 9, 2024

I was also on 60 mg/day of Prednisone and am tapering down using weekly injections of...

https://connect.mayoclinic.org/comment/859372/

tapering down using weekly injections of Actemra

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 13, 2023

Hi @artist01, I am so sorry about your eyesight and your strokes. Were you suffering a...

https://connect.mayoclinic.org/comment/646560/

Good to hear that Actemra is working

Discussion: Prednisone Side Effects

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 19, 2021

"Infusions are more expensive than injections and I understand that some insurance companies require the doctor...

https://connect.mayoclinic.org/comment/1362415/

said she still had syringes left when Actemra

Discussion: Questions for people taking Actemra and Kevzara injections

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2 6:05pm

My DNA was always Northern European (Russia, Ukraine, Belarus, Poland) with my grandparents speaking those languages....

https://connect.mayoclinic.org/comment/1376576/

Prednisone (started at 60) and start Actemra

Discussion: PMR appears in people with Commonalities, by chance?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 22 9:56am

@lori62yb Hello Lori, I don’t know why your doctor would say that PMR doesn’t normally present...

https://connect.mayoclinic.org/comment/1231440/

He wants me to try Actemra and I would

Discussion: Can PMR present in the clavicle too?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 7 9:44am

I was diagnosed with PMR and likely GCA in late July 2024. I was on 60...

https://connect.mayoclinic.org/comment/1249692/

rheumatologist PA if she would prescribe Actemra

Discussion: Actrema advice

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 3 4:12pm

I'm currently 70 years old. PMR was diagnosed when I was 52. I took Prednisone for...

https://connect.mayoclinic.org/comment/1216576/

At 65, a biologic called Actemra was

Discussion: Prednisone cumulative dose in PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 19 12:45pm

Yes, it is pretty crazy how much of our lives revolve around meds and supplements now....

https://connect.mayoclinic.org/comment/1201416/

things, and now I inject myself with Actemra

Discussion: Precursor symptoms to PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 31, 2024

My experience with Prednisone is that it works quite quickly - in hours or at most...

https://connect.mayoclinic.org/comment/1145808/

this point, I was also self-injecting Actemra

Discussion: Is prednisone working? only mild relief after 3 weeks (15, 12.5 and

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 22, 2024

It isn't really a choice between two medications because nobody will know what will work the...

https://connect.mayoclinic.org/comment/1131849/

though I only have experience with Actemra

Discussion: methotrexate or kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 27, 2024

Do you think LDN is keeping things tame at the moment? Sounds like you still have...

https://connect.mayoclinic.org/comment/1117410/

Actemra (tocilizumab) works for me and

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 4, 2024

First I'd like to say I do not have PMR but GCA. However, I have two...

https://connect.mayoclinic.org/comment/873919/

used to take weekly injections of Actemra

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2023

Hello! I have had RA for around 15-20 years. Tried to get by with just Celebrex...

https://connect.mayoclinic.org/comment/145525/

So, In August, switched to Actemra infusions

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 11, 2019