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269 total results
Comments (255)
Hi! I have a rapidly progressing autoimmune mediated peripheral neuropathy and have found IVIG totally eliminates...
I have a rapidly progressing autoimmune ... mediated peripheral neuropathy and ... Unfortunately it hasn't stopped the progression ... of my neuropathy but it has slowed ... found 74% of people with short fiber neuropathy
Support Group: Neuropathy
Posted: Nov 22, 2019
@lindachakra before I met with a neurologist and was diagnosed with idiopathic small fiber peripheral neuropathy...
idiopathic small fiber peripheral neuropathy ... supplements I take which I think have slowed ... or stopped the progression (subjective ... Groups > Neuropathy > Myofascial Release
Support Group: Neuropathy
Posted: Mar 5, 2019
@wisfloj I've given up my quest to determine the root cause of my idiopathic small fiber...
idiopathic small fiber peripheral neuropathy ... There really is no cure for neuropathy ... Neuropathy = dead, damaged or compressed ... keep mine from getting any worse or slowing ... down the progress.
Support Group: Neuropathy
Posted: May 30, 2019
I have the same thing small fiber neuropathy (autonomic neuropathy) and severe axonal sensorimotor polyneuropathy. There...
I have the same thing small fiber neuropathy ... (autonomic neuropathy) and severe axonal ... with prednisone for over six months slowed ... the progression but not the nerve pain
Support Group: Neuropathy
Posted: Oct 13, 2023
I’ve been on IVIG Infusion therapy for two years. I’ve been diagnosed with immune mediated peripheral...
diagnosed with immune mediated peripheral neuropathy ... in my symptoms, I’m hopeful it is slowing ... down the progress of my condition.
Support Group: Neuropathy
Posted: Oct 15, 2023
@stwalker717 I wonder if you were given Tylenol and Benadryl before each infusion. That's standard procedure...
wheelchair - I don't think that sf neuropathy ... your neurologist mention autonomic neuropathy ... expect any number of problems as it progresses ... the hope or expectation that it will slow ... down the progression.
Support Group: Neuropathy
Posted: Dec 13, 2023
No, it did not. It lowered the A1C which might cause the neuropathy to slow down...
lowered the A1C which might cause the neuropathy ... to slow down its progress. ... But I'm doing all I can to slow ... the progression.
Support Group: Neuropathy
Posted: Aug 14, 2023
Neuropathy has many causes and symptoms. A primary one is diabetes (which I don't have). Considering...
Neuropathy has many causes and symptoms ... feeling in my hands and feet that is progressing ... I try to slow the progression through
Support Group: Autoimmune Diseases
Posted: Jul 17, 2023
Hello @ranchan, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
one that a lot of us who have had neuropathy ... idiopathic small fiber peripheral neuropathy ... seemed to get a little better and the progression ... seems to have slowed or stopped but
Support Group: Neuropathy
Posted: Aug 29, 2021
Good evening @romans8. I am so devastated to hear about your insurance denial. I have been...
maintain my financial support for my "neuropathic ... you and I both know, SFN and other neuropathies ... are progressively painful. ... Then in the evening, I slow it down
Support Group: Chronic Pain
Posted: Dec 5, 2023
I took the three together in one giant cocktail. I also started getting the neuropathy mostly...
I also started getting the neuropathy ... years down the road I am having a slow ... progression of worsening neuropathy
Support Group: Breast Cancer
Posted: May 18 11:01am
Hi all! Brand new MGUS IgA here, with severe neuropathic foot itch (bottom balls of feet)...
Brand new MGUS IgA here, with severe neuropathic ... in any recommendations or papers on slowing ... progression and symptom relief. ... protein (fenofibrate, Velcade) also slow ... or help with neuropathy.
Posted: Sep 17, 2023
@leemoore13 We all want our children to enjoy their youth, but the fact is, with a...
numerous strokes, is nearly blind and has neuropathy ... daily airway clearance can halt or slow ... the progression of Bronchiectasis,
Support Group: MAC & Bronchiectasis
Posted: Mar 25 5:44pm
Hi Rachel @rwinney, That's kind of what my Mayo neurologist told me was going to happen...
Pain & Discomfort of Peripheral Neuropathy ... numbness seems to have receded some and slowed ... or stopped the progression of my PN
Support Group: Neuropathy
Posted: Feb 21, 2020
to harley22 I was diagnosed June 2023 after an EMG test with Sever Demyelinating and Axonal...
He ordered a complete Neuorpathy bloodwork ... months now and I believe I might have slow ... down the progression of this disease
Support Group: Autoimmune Diseases
Posted: Apr 11 12:56pm
"Finally, a diagnosis" certainly applies to me. About 12 or 13 years ago I first noticed...
His conclusion: Axonal Peripheral Neuropathy ... not a cure, but they do seem to have slowed ... down the progression of the problem
Support Group: Neuropathy
Posted: May 25 5:01pm
Hi Yulander, Welcome to Connect. Can you share what the new medication is? I don't have...
autoimmune disease - small fiber peripheral neuropathy ... to help my autoimmune disease and slow ... down progression.
Support Group: Brain & Nervous System
Posted: Oct 25, 2016
Hello all, My heart goes out to each of you! I truly understand, I received a...
that I am improving but it is a very slow ... diet helps relieve the symptoms of neuropathy ... research on care and treatment of neuropathy ... important that you communicate your progress
Support Group: Neuropathy
Posted: Oct 21, 2022
Hello My name is Logan. I have been diagnosed with diabetic neuropathy, categorized as severe. Hospitalized...
have been diagnosed with diabetic neuropathy ... Diabetic neuropathy has no known cure ... The goals of treatment are to: Slow ... progression Relieve pain. ... That is just how it progressed. click
Support Group: Neuropathy
Posted: Dec 17, 2022
Hi, I'm new so unsure of protocols here--but what is Kcals? I have neuropathy in my...
I have neuropathy in my feet--just from ... know there were different types of neuropathy ... I'm interested in slowing progress
Support Group: Neuropathy
Posted: Jan 27, 2022