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274 total results
Comments (260)
To @mabelandlynne I am so sorry to hear it has taken so long for you to...
John Bishop sent you the site for GIB-CIDP ... excellent care centers that specialize in CIDP ... treatment. ... Starting treatment as soon as possible ... is very important…….. the GIB-CIDP
Support Group: Autoimmune Diseases
Posted: Mar 12, 2023
Hello Yes, I was diagnosed with CIDP about 10 months ago and have been receiving IgG...
Hello Yes, I was diagnosed with CIDP ... about your husbands diagnosis and treatment ... that the outcome and benefits of the treatment ... great group to follow or join GIB-CIDP.org
Support Group: Neuropathy
Posted: Jul 25, 2022
I just had 5 days of IVIG which was prescribed for CIDP (chronic inflammatory demyelinating polyradiculoneuropathy)....
days of IVIG which was prescribed for CIDP ... there said they had tried stopping the treatments ... this list been treated with IVIG for CIDP ... I know that CIDP is challenging to diagnose ... problems which I was told was post treatment
Support Group: Neuropathy
Posted: May 21, 2022
From what I’ve read there’s a lot of overlap in symptoms reported for long Covid and...
My hope the same can be said for treatments ... been distal so I can’t classify as CIDP ... Now I am laser focused on treatment. ... IVIg and/or plasmapheresis/apheresis treatment
Support Group: Neuropathy
Posted: Apr 21, 2022
Neurologist #1 did an EMG/NCS test, told me I have SFSN and that nothing can be...
extensive blood work, concluded I have CIDP ... is the case, there are no further treatment ... indeed, she indicates no additional treatment
Support Group: Autoimmune Diseases
Posted: Dec 8, 2021
Hi, I have just been diagnosed with CIDP and have started treatment. If you will join...
Hi, I have just been diagnosed with CIDP ... and have started treatment. ... If you will join the International CIDP
Support Group: Autoimmune Diseases
Posted: Oct 16, 2021
Hello @wolfgang, Welcome to Connect. It's good to hear you are searching for answers and learning...
can meet other members discussing CIDP ... CIDP (Chronic Inflammatory Demyelinating ... discusses sorting out your diagnosis and treatment ... of CIDP -- https://www.gbs-cidp.org ... /cidp/all-about-cidp/ Do you mind
Support Group: Neuropathy
Posted: Sep 30, 2021
Hello Colleen, hello group, I'm 59y old, from Vienna/Austria and I have been diagnosed with CIDP...
Austria and I have been diagnosed with CIDP ... and just a year ago I was diagnosed CIDP ... With this treatment I've presently ... anyone share some experience with CIDP
Support Group: Neuropathy
Posted: Sep 30, 2021
Hi @shariday and welcome to Mayo Clinic Connect. It sounds like you’ve just had the rug...
has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare ... regarding the diagnosis and possible treatments
Support Group: Autoimmune Diseases
Posted: May 26, 2021
@jtbt0406 Was a steroid treatment ever discussed with you in regards to CIDP? I see that...
@jtbt0406 Was a steroid treatment ... ever discussed with you in regards to CIDP ... diagnosed with MS (and I know MS and CIDP
Support Group: Autoimmune Diseases
Posted: Oct 25, 2020
Thank you for the support and prayers. There are other treatments however d/t the advanced CIDP...
There are other treatments however d ... /t the advanced CIDP they by passed ... cancer drug that is not an approved treatment ... As for previous illnesses prior to CIDP ... Yes no cure for CIDP
Support Group: Autoimmune Diseases
Posted: Oct 25, 2020
@jimhd Hi Jim, I am so concerned about you. I hope my input is helpful! First,...
First, if you do have CIDP, it sounds ... is crucial in getting this proper treatment ... There are so many more, but perhaps, CIDP
@slavichx Like Colleen, I did not notice your post when you placed it here on 9/15....
Interestingly CIDP came up in two other ... One person with CIDP, @sparshall , said ... important to have the diagnosis and start treatment ... doctors are moving things along toward treatment
Support Group: Neuropathy
Posted: Oct 15, 2020
Rachel, I developed CIDP symptoms in 2016, but wasn’t accurately diagnosed until late December because doctors...
Rachel, I developed CIDP symptoms in ... few doctors have ever seen a case of CIDP ... He has treated a lot of CIDP patients ... want you to start with the cheapest treatment
Support Group: Neuropathy
Posted: Jan 15, 2020
Hello @vradifegari -- I would like to add my welcome to Connect along with @gingerw and...
polyradiculoneuropathy and are looking for other treatments ... demyelinating polyradiculoneuropathy (CIDP ... Neuropathy > Anyone been diagnosed with CIDP ... has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare ... Inflammatory Demyelinating Polyneuropathy (CIDP
Support Group: Neuropathy
Posted: Jun 25, 2019
The IVIG treatments have helped me tremendously. I get a boost of energy every month, no...
The IVIG treatments have helped me tremendously ... SFN which spike before montly IVIG treatments ... It keeps my CIDP from progressing.
Support Group: Neuropathy
Posted: Jan 23, 2019
I have CIDP too and have IVIG infusions 2 days a month. You might want to...
I have CIDP too and have IVIG infusions ... You might want to discuss this treatment
Support Group: Neuropathy
Posted: Jan 22, 2019