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183 total results
Comments (160)
Now having a diagnosis, I just filled out my Bio and will repost here, because it...
https://connect.mayoclinic.org/comment/981394/
Peripheral neuropathy was the presenting ... with no current way to address the neuropathy ... alarmed at the prospect of having AL ... Thus neuropathy isn't a "symptom ... to disorders OTHER than MM, such as AL
Oh, thank you! I'll check that out. I'm scheduled for Dec. 1. Am sick with COVID...
https://connect.mayoclinic.org/comment/969673/
The suspicion is AL amyloidosis. ... doctor originally was for peripheral neuropathy
Ed - I can’t believe the angel of a Neurologist I was led to yesterday. He...
https://connect.mayoclinic.org/comment/937365/
surgery concern for a person with Neuropathy ... and the courses she teaches are in ALS
Before I'm even asked if anyone in my family had neuropathy, Im asked––usually when filling out...
https://connect.mayoclinic.org/comment/887328/
even asked if anyone in my family had neuropathy ... only a few years ago, and who had neuropathy ... My parents, grandparents, et al., all ... #39;t help but wonder: did any have neuropathy
Hello,@summertime4, Mamacita here , aka Jane. I tried to do a little bit of investigative work...
https://connect.mayoclinic.org/comment/98733/
at an article by Ramsey Archibald, @al.com ... But someone with diabetic neuropathy
@fourof5zs Thank you for the info. I am not planning on repeated cortisone shots. I know...
https://connect.mayoclinic.org/comment/98614/
I also have neuropathy and am referred ... Al on here know all about it. ... My sister suggested a cream for neuropathy
@sundance6 I am with you in regards to medications. Some medications help and allow us to...
https://connect.mayoclinic.org/comment/98560/
I have neuropathy, fibermyalgia and ... Al very painful and over the counter ... I was diagnosed with neuropathy several
I’m not exactly sure who to write this to. I’m 70. 15 years ago I lost...
https://connect.mayoclinic.org/comment/216420/
Could be neuropathy, signs of ALS, maybe
Hi @jan52241. Welcome to Connect! I'm sorry to hear you have felt alone in this diagnosis...
https://connect.mayoclinic.org/comment/104684/
also want to look at this thread on AL ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what ... / and this one on neuropathy: https: ... /connect.mayoclinic.org/discussion/neuropathy-pain-in-my-left-foot-and-lower-left-legs
Why you dont give egcg curcumine and reveratrol in your patients? If you look up in...
https://connect.mayoclinic.org/comment/381140/
of Belgium d amylloidosis'localised al ... chemotherapy which caused her a peripheral neuropathy
I don't know if this is relevant to this Support Group, but I have been diagnosed...
https://connect.mayoclinic.org/comment/1231935/
IVIg doesn't work, I may have ALS ... I have foot drop and lots of neuropathy
I was originally diagnosed with neuropathy and two years later changed to ALS. In a wheelchair,...
https://connect.mayoclinic.org/comment/1158564/
I was originally diagnosed with neuropathy ... and two years later changed to ALS.
I was told by my neurologist that ALS is about weakness not numbness. I have read...
https://connect.mayoclinic.org/comment/1169095/
I was told by my neurologist that ALS ... I was tested for ALS about 10 months ... I have read stories of ALS patients ... I still am dealing with neuropathy in ... spinal stenosis or cmpression and neuropathy
@annie1 I looked up what causes muscle twitching and this is what AI summarized: “🤔 Causes...
https://connect.mayoclinic.org/comment/1357325/
Conditions that affect the nerves, such as neuropathy ... like amyotrophic lateral sclerosis (ALS
I’d be a lot more excited if they could cure the common cold. It seems to...
https://connect.mayoclinic.org/comment/1362284/
alleviate some of the symptoms of neuropathy ... spent billions on many diseases like ALS
My hip replacement and subsequent revision surgery was 3 years ago. The last PT I worked...
https://connect.mayoclinic.org/comment/1122704/
(I also have neuropathy which is not ... I have a dear friend with ALS which
@amyinsc, I can only imagine how concerned you are for your father and to see him...
https://connect.mayoclinic.org/comment/1411996/
see him so debilitated by peripheral neuropathy ... discussions:
- Recently diagnosed with AL ... /connect.mayoclinic.org/discussion/al-amyloidosis ... -2/
- Peripheral neuropathy and amyloidosis ... connect.mayoclinic.org/discussion/peripheral-neuropathy-and-amyloidosis
I have had very high serum Vit B6 too (250) for over 8 years at least...
https://connect.mayoclinic.org/comment/1432617/
thought that caused my peripheral neuropathy ... discovered a 2019 paper by Chelban et al
I was grade 2a. 3 lymph nodes removed, a lumpectomy, chemo and radiation. HER2positive. I had...
https://connect.mayoclinic.org/comment/910716/
I felt awful on the AL's. ... I have peripheral neuropathy from the ... don't need more misery from the AL
Good morning Bonnie and thank you for your reply and for sharing your information. My name...
https://connect.mayoclinic.org/comment/1112526/
angiogram became the “thing to see” by Al ... fibromyalgia with occipital headaches, neuropathy
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