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183 total results
Comments (160)
Now having a diagnosis, I just filled out my Bio and will repost here, because it...
Peripheral neuropathy was the presenting ... with no current way to address the neuropathy ... alarmed at the prospect of having AL ... Thus neuropathy isn't a "symptom ... to disorders OTHER than MM, such as AL
Posted: Dec 16, 2023
Ed - I can’t believe the angel of a Neurologist I was led to yesterday. He...
surgery concern for a person with Neuropathy ... and the courses she teaches are in ALS
Support Group: Neuropathy
Posted: Sep 27, 2023
Before I'm even asked if anyone in my family had neuropathy, Im asked––usually when filling out...
even asked if anyone in my family had neuropathy ... only a few years ago, and who had neuropathy ... My parents, grandparents, et al., all ... #39;t help but wonder: did any have neuropathy
Support Group: Neuropathy
Posted: Jun 29, 2023
@fourof5zs Thank you for the info. I am not planning on repeated cortisone shots. I know...
I also have neuropathy and am referred ... Al on here know all about it. ... My sister suggested a cream for neuropathy
Support Group: Chronic Pain
Posted: Aug 12, 2019
@sundance6 I am with you in regards to medications. Some medications help and allow us to...
I have neuropathy, fibermyalgia and ... Al very painful and over the counter ... I was diagnosed with neuropathy several
Support Group: Chronic Pain
Posted: Aug 1, 2019
Hi @jan52241. Welcome to Connect! I'm sorry to hear you have felt alone in this diagnosis...
also want to look at this thread on AL ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what ... / and this one on neuropathy: https: ... /connect.mayoclinic.org/discussion/neuropathy-pain-in-my-left-foot-and-lower-left-legs
I was told by my neurologist that ALS is about weakness not numbness. I have read...
I was told by my neurologist that ALS ... I was tested for ALS about 10 months ... I have read stories of ALS patients ... I still am dealing with neuropathy in ... spinal stenosis or cmpression and neuropathy
Support Group: Neuropathy
Posted: Nov 6, 2024
@amyinsc, I can only imagine how concerned you are for your father and to see him...
see him so debilitated by peripheral neuropathy ... discussions: - Recently diagnosed with AL ... /connect.mayoclinic.org/discussion/al-amyloidosis ... -2/ - Peripheral neuropathy and amyloidosis ... connect.mayoclinic.org/discussion/peripheral-neuropathy-and-amyloidosis
Posted: Oct 9, 2025
I have had very high serum Vit B6 too (250) for over 8 years at least...
thought that caused my peripheral neuropathy ... discovered a 2019 paper by Chelban et al
Support Group: Chronic Pain
Posted: Nov 7, 2025
I was grade 2a. 3 lymph nodes removed, a lumpectomy, chemo and radiation. HER2positive. I had...
I felt awful on the AL's. ... I have peripheral neuropathy from the ... don't need more misery from the AL
Support Group: Breast Cancer
Posted: Aug 10, 2023
Good morning Bonnie and thank you for your reply and for sharing your information. My name...
angiogram became the “thing to see” by Al ... fibromyalgia with occipital headaches, neuropathy
Support Group: Brain & Nervous System
Posted: Jul 27, 2024