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Comments (2,008)

I was diagnosed with RA years ago. I’m allergic to NSAIDS so was put on large...

https://connect.mayoclinic.org/comment/673905/

Already tried: Cimzia Actemra Xeljanz

Discussion: PMR and RA

Support Group: Autoimmune Diseases

Posted: Jan 22, 2022

@bt56 I am still taking Actemra; I will have my 12th weekly injection on 5/22. It...

https://connect.mayoclinic.org/comment/88710/

@bt56 I am still taking Actemra; I will

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2020

Part of the reason is that PMR and GCA have a long history of being treated...

https://connect.mayoclinic.org/comment/1257151/

That all changed in 2017 when Actemra ... The FDA approved Actemra (tocilizumab

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13 2:41pm

"It is a tough game, for sure, and there is no standard game plan works for...

https://connect.mayoclinic.org/comment/1279820/

Actemra was more effective for my war ... Actemra is now my only defense against

Discussion: Better to be in some pain or better to up the dose of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 12 7:36am

Had I listened to the folks that promote dead slow I would still be on prednisone....

https://connect.mayoclinic.org/comment/1151454/

haven't had any side effects from Actemra ... I have been on Actemra for 5 years.

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 3, 2024

As @seniormed suggests enthesitis happens where tendons, ligaments, and joint capsules attach to bones. These pains...

https://connect.mayoclinic.org/comment/1378001/

diagnosed until a biologic called Actemra

Discussion: Diagnosed in April with a terrible flare up

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 24 8:31am

I think that we all suffered some adrenal insufficiency. Anything past 2 weeks the body quits...

https://connect.mayoclinic.org/comment/1264192/

eventually restarted with the help of Actemra

Discussion: Adrenal Insufficiency caused by long term Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 22 1:09pm

Methotrexate is used to help prevent inflammation while trying to taper off prednisone. The idea if...

https://connect.mayoclinic.org/comment/1094212/

Then newer biologics like Kevzara and Actemra

Discussion: Tapering Pains Body Response or PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2024

3 months ago that happened to me too …got trigger finger for middle finger on both...

https://connect.mayoclinic.org/comment/1068966/

…I’m on 1 mg of prednisone now and Actemra

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16, 2024

That was not our experience. My husband developed PMR in May 2023 and was put on...

https://connect.mayoclinic.org/comment/1037210/

now on 80 mg prednisone per day and Actemra

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 20, 2024

Interesting that this happened after your Covid Vax and booster I became inflicted with PMR about...

https://connect.mayoclinic.org/comment/984202/

I haven’t been given any info on Actemra

Discussion: Tapering prednisone and stress

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 21, 2023

I just wanted to comment briefly. We have a limited number of guides in investigating an...

https://connect.mayoclinic.org/comment/876585/

I have had no experience with IV Actemra

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 11, 2023

I have labs about every 3 months. I guess that is the best way for them...

https://connect.mayoclinic.org/comment/610087/

and I also have to have labs for the Actemra

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19, 2021

@tedmbrady My husband developed PMR 5/2023 and then GCA (giant cell arteritis) in 2/2024. It's been...

https://connect.mayoclinic.org/comment/1056983/

He's also getting Actemra injections ... the other day that someone received Actemra

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2024

I don't have experience below 10 mg, but have you tried reducing by a half mg...

https://connect.mayoclinic.org/comment/1201287/

thing I have to my advantage is taking Actemra

Discussion: Precursor symptoms to PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 31, 2024

I have GCA. I was diagnosed a year ago after having lost most of the vision...

https://connect.mayoclinic.org/comment/1279953/

I’m also on Actemra and my ESR and CRP

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 12 9:42am

I started at 60mg (due to GCA confirmed through temporal biopsies) and it took me 1...

https://connect.mayoclinic.org/comment/1375942/

another six months after that to get off Actemra ... shot of Reclast as I started Pred/Actemra

Discussion: Still Struggling with that last mile on the path to 0 mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 21 11:48am

"I have had spondyloarthritis most of my life but my PMR symptoms are different; much worse."...

https://connect.mayoclinic.org/comment/1237261/

Actemra allowed me to taper off prednisone

Discussion: Prednisone and Opioids

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15 7:27am

At the start of high doses of pred, I took it all at once in the...

https://connect.mayoclinic.org/comment/868142/

it now for three years, along with Actemra

Discussion: Divided dose or all at once?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28, 2023

About a month after coming off of my prednisone taper for PMR, I started to have...