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2,353 total results
Comments (2,254)
I have extreme, unbearable sweating with activity, not related to tapering. I have been on Prednisone...
sweating with activity, not related to tapering ... I have been on Prednisone for only 2 ... Prednisone wore off at 2-3 am causing ... I do not like prednisone and want off ... places, like skin peeling, scraped off
Posted: Sep 15, 2023
Hi, I am wanting to taper off my prednisone. I will do it under a Drs...
Hi, I am wanting to taper off my prednisone ... and the time frame to taper. ... I can be patient and taper in small ... off of prednisone? ... pain is much better, have been on prednisone
Posted: Feb 15, 2023
My first experience with an autoimmune disorder wasn't PMR or GCA. It was triggered by an...
I took incredibly high doses and tapered ... off quickly for recurrent flares of ... I also took Prednisone for trigeminal ... My cumulative dose of Prednisone was ... I'm happy to be off Prednisone.
I feel for you! I have been on prednisone daily for 35 years and can not...
I have been on prednisone daily for ... Trouble T 5 in a taper I don’t believe ... go down 1 at a time after 10 in a taper ... Get OFF it if possible!!
Support Group: Autoimmune Diseases
Posted: Jan 1 5:50pm
My rheumatoligist said that taking the prednisone in the AM keeps the body on its normal...
rheumatoligist said that taking the prednisone ... rythym to stay stable as you start to taper ... off the prednisone.
Posted: Jan 1 8:59am
I was thinking that I would never get off Prednisone after taking Prednisone daily for more...
was thinking that I would never get off ... Prednisone after taking Prednisone ... With Actemra you may be able to taper ... off Prednisone faster than you think ... depends more on how long you have taken Prednisone
Posted: Dec 28, 2024
Your CRP and ESR levels aren't that useful when taking Actemra. Anti-Il-6 therapy will reduce CRP...
in a better direction after I got off ... Prednisone. ... It took me about a year to taper off ... Prednisone after Actemra was started ... Some people remain on low dose Prednisone
Posted: Dec 9, 2024
"It sounds like you have a keeper for a rheumatologist. That is half the battle. I...
There is no way I can do 40-60 mg prednisone ... saw an endocrinologist who helped me taper ... off prednisone after Actemra allowed ... me to decrease my prednisone. ... I have now been off Prednisone for close
Posted: Nov 17, 2024
Hi @dengland, Your description of your PMR journey sounds similar to mine but you were a...
impressed that you have been able to taper ... your prednisone dose because I am still ... ridiculous and inflammatory markers go off
Posted: Nov 17, 2024
I appreciate how you are feeling but am thankful they have identified EGPA which does require...
which does require higher doses of prednisone ... infusion clinic.The hardest part was tapering ... down very slowly from the prednisone ... when on both drugs til you can get off ... prednisone.
Support Group: Autoimmune Diseases
Posted: Nov 12, 2024
Kevzara is now an option for me since it was FDA approved for PMR in February...
20cannot%20tolerate%20corticosteroid%20taper ... for Actemra was my being unable to taper ... off Prednisone and that all other alternatives ... I have been off Prednisone for 4 years ... It feels good to be off Prednisone.
Posted: Nov 11, 2024
My blood tests are never consistent with showing PMR. This has been going on for 7...
7 years and I still can't get off ... Prednisone. ... I also am on the 5 mg. trying to taper ... Methotrexate since August to help wean off ... the Prednisone but have been unsuccessful
Posted: Nov 11, 2024
There is an alternative to Prednisone now! It's Kevzara. Patients are initially put on Prednisone and...
There is an alternative to Prednisone ... Patients are initially put on Prednisone ... and a taper is attempted..if it fails ... , Kevzara ia added, the Pred is tapered ... off, and the patient can remain on
Posted: Nov 9, 2024
I like to share my personal experience. I was on Prednisone for more than 12 years...
high dose bursts followed by a fast taper ... to concede that I would never get off ... Prednisone no matter how slowly I tapered ... it was more complicated than a slow taper ... use, there was no tapering method that
I wouldn't listen to everything you read on PMRGCAuk. The forum with all the people sharing...
I mostly stayed on 3 mg of prednisone ... She said I could simply stop prednisone ... without tapering as long as my cortisol ... I did a fast taper from 3 mg to zero ... I have been off Prednisone for almost
Is there anyone that is newly off of prednisone (within the last month) that has experienced...
Is there anyone that is newly off of ... prednisone (within the last month) ... I'm only off Prednisone for two ... was wondering if this is part of the tapering
Posted: Oct 7, 2024
Thank you so much. I took only 25mg of Lyrica at bedtime last night and did...
Hopefully, I can get off Lyrica soon ... group during the 13 months I was on prednisone ... and advice that people gave me about tapering ... off prednisone was so helpful.
Support Group: Spine Health
Posted: Oct 7, 2024
Thanks for your response. I have been on prednisone for 3 years. My last dose was...
I have been on prednisone for 3 years ... ACTEMRA for 3 months and gradually tapered ... my prednisone to zero as of two days ... feel that if I have to stay on ( mg prednisone ... I might be better off?