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Comments (3,687)

Yes, there is. A Mayo connect member, one of the vaccine inured who gave me a...

https://connect.mayoclinic.org/comment/756231/

gave me the name of a Facebook group, Neuro

Discussion: Anyone else gone gluten and dairy free to help improve symptoms

Support Group: Autoimmune Diseases

Posted: Oct 2, 2022

A Facebook group of Covid vaccine injured people is called Neuro V Long-Haulers for all COVID...

https://connect.mayoclinic.org/comment/756220/

Covid vaccine injured people is called Neuro

Discussion: Anyone else gone gluten and dairy free to help improve symptoms

Support Group: Autoimmune Diseases

Posted: Oct 2, 2022

Sadly, I agree that so many disorders and diseases end up being handled by treating the...

https://connect.mayoclinic.org/comment/755550/

I am fortunate that, so far, my Neuro

Discussion: Non-Length Dependent Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Sep 30, 2022

anyone have dry mouth and eyes burning from the small fiber neuro and excessive urination and...

https://connect.mayoclinic.org/comment/755010/

eyes burning from the small fiber neuro

Discussion: Non-Length Dependent Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Sep 28, 2022

I will check with my Neuro and see. I am still at the "what might be...

https://connect.mayoclinic.org/comment/754932/

I will check with my Neuro and see.

Discussion: Non-Length Dependent Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Sep 28, 2022

Hi Rachel. Thank you for your response. The clinic is called The Recovery Project in Lansing...

https://connect.mayoclinic.org/comment/753505/

five day program that consists of neuro ... understand, the focus is to retrain the neuro

Discussion: When have I seen enough doctors for symptoms

Support Group: Just Want to Talk

Posted: Sep 24, 2022

pemelaz - The neuro doc at Mayo did not offer an alternative med for my PN....

https://connect.mayoclinic.org/comment/750953/

pemelaz - The neuro doc at Mayo did

Discussion: Can Neuropathy be cured?

Support Group: Neuropathy

Posted: Sep 18, 2022

The sensory overload you are experiencing may be due to brain stem inflammation. I have a...

https://connect.mayoclinic.org/comment/747867/

I'm a member of the Neuro V Long-Haulers

Discussion: Any longhaulers noticing vision changes?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 10, 2022

Hi dear friend in pain. Carlos , here. Thank you so much for posting about KRATOM....

https://connect.mayoclinic.org/comment/745963/

order one for the best results for NEURO

Discussion: Neuropathy Pain at Night: What helps?

Support Group: Neuropathy

Posted: Sep 5, 2022

As noted in my other posts, my foot neuropathy started all of a sudden in left...

https://connect.mayoclinic.org/comment/745247/

right. this is getting worse. seen by neuro

Discussion: Lumbar Neuropathy … how to heal … ugh

Support Group: Neuropathy

Posted: Sep 4, 2022

@jeep Thank you for the follow-up on your pineal cyst journey the last 10 years. I've...

https://connect.mayoclinic.org/comment/744577/

have a follow-up with neurology and a neuro ... was told 8mm is very small by the neuro-radiologist

Discussion: Pineal Cyst: What symptoms led to your diagnosis?

Support Group: Brain Tumor

Posted: Sep 2, 2022

Yes, I have been reading the site on MCI. Very informative. I’m reading everything I can...

https://connect.mayoclinic.org/comment/741517/

The MCI dx was from the Neuro/Psyche

Discussion: Cerebral amyloid angiopathy: What do you take for headaches?

Support Group: Stroke & Cerebrovascular Diseases

Posted: Aug 25, 2022

Hi Becky, Thank you so much for reaching out. I can do this… My Rheumy and...

https://connect.mayoclinic.org/comment/737926/

I can do this… My Rheumy and Neuro

Discussion: Autoimmune Psoriatic Arthritis in sacrum….

Support Group: Bones, Joints & Muscles

Posted: Aug 16, 2022

No improvement, things just continue to decline. I have a MRA scan to check blood flow...

https://connect.mayoclinic.org/comment/737687/

Other than that, even my neuro-Opthalmologist

Discussion: Brain not "showing me" my peripheral vision

Support Group: Eye Conditions

Posted: Aug 15, 2022

I too had a CSF leak repaired. After surgery my body was confused about how much...

https://connect.mayoclinic.org/comment/737553/

leak Facebook page I read where a neuro-radiologist

Discussion: What causes too much Cerebal Spinal Fluid (Hydrocephalous)? Fix?

Support Group: Brain & Nervous System

Posted: Aug 15, 2022

HI Nanette, I have mPeripheral Neuropathy, I;am on Gaptetin 100mg. I take 2 100mg at bed...

https://connect.mayoclinic.org/comment/736610/

having my MD DR to referee me to a neuro

Discussion: Burning Mouth Syndrome (BMS): Anyone found any relief?

Support Group: Skin Health

Posted: Aug 12, 2022

@jmb73 It's my pleasure to read your post, Jane. That's what Connect is here for, to...

https://connect.mayoclinic.org/comment/734660/

appointment August 15th with your neuro-spine

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Aug 6, 2022

That is so interesting! I tried generic and had neuro reaction immediately ("sensitivity"). I took brand...

https://connect.mayoclinic.org/comment/733776/

I tried generic and had neuro reaction

Discussion: Exploring other treatment options, rather than AI med

Support Group: Breast Cancer

Posted: Aug 3, 2022

Sorry to find another sufferer from an adverse neurological reaction to the Covid vaccines! I recommend...

https://connect.mayoclinic.org/comment/732711/

I recommend joining the Neuro V Long-Haulers

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Jul 31, 2022

I have chronic imbalance issues. My neuro put me on a “low dose” of ,25 to...

https://connect.mayoclinic.org/comment/731140/

My neuro put me on a “low dose” of

Discussion: What is the best way to taper off Klonopin?

Support Group: Depression & Anxiety

Posted: Jul 26, 2022