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Comments (2,219)

Hello Bob, I would think that a hematologist/oncologist would be the definitive expert for you. MGUS...

https://connect.mayoclinic.org/comment/895672/

MGUS is not cancer but it is definitely ... are members in this forum that have MGUS ... MGUS is a strange duck that can be without

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

I believe I will be diagnosed with MGUS shortly, but I think they're ruling out MM....

https://connect.mayoclinic.org/comment/983650/

I believe I will be diagnosed with MGUS ... reading this puts me at HIGH risk MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2023

Greetings! I am losing a lot of my energy as well but I attribute this to...

https://connect.mayoclinic.org/comment/878337/

should not be having symptoms from MGUS ... fatigue and neuropathy who also have MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

CRISPR was easier for sickle cell anemia because it was one mutation on one chromosome. There...

https://connect.mayoclinic.org/comment/1164770/

different mutations that can influence MGUS

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2024

Seeing how your bone biopsy test went and if all the test are back.. What a...

https://connect.mayoclinic.org/comment/1142504/

can’t call it a disease .. not even mgus

Discussion: How high has anyone seen Lambda free light chain go with Mgus?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2024

Not that I know of. No he had MGUS which I read in his notes prior...

https://connect.mayoclinic.org/comment/1111731/

No he had MGUS which I read in his notes

Discussion: T cell large granulocytic leukemia

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Hello: I also have had MGUS for several years, and had a full work up initially...

https://connect.mayoclinic.org/comment/1087053/

Hello: I also have had MGUS for several

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2024

Hi @marshaberi, Welcome to Connect. The condition of MGUS can change over time. So it is...

https://connect.mayoclinic.org/comment/1019982/

The condition of MGUS can change over

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

Do you think the hip pain could possibly be from the MGUS? I have hip pain...

https://connect.mayoclinic.org/comment/1019671/

hip pain could possibly be from the MGUS

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

@tatajess , I posted here too about my mgus, after I read yours...I have paint in...

https://connect.mayoclinic.org/comment/970512/

tatajess , I posted here too about my mgus

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2023

My observation is that my IgA has gone up each time (from 526 in Feb, 542...

https://connect.mayoclinic.org/comment/948810/

could be paraneoplastic syndrome with MGUS

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2023

WOW! I’m so happy to hear you won the battle! Definitely wasn’t lying when I said...

https://connect.mayoclinic.org/comment/890152/

I do have a hematologist for the MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Thank you for your reply! I agree, we will never be the same, but I don't...

https://connect.mayoclinic.org/comment/886610/

I was diagnosed with MGUS 18 months

Discussion: Emotional health after cancer: How are you doing really?

Support Group: Cancer: Managing Symptoms

Posted: Jun 28, 2023

Afraid I have no answers but I suffer the same numbness in both hands and both...

https://connect.mayoclinic.org/comment/855792/

Diagnosed with MGUS and D.A.D.S. after

Discussion: Severe numbness in hands from neuropathy

Support Group: Neuropathy

Posted: May 7, 2023

My daughter was just diagnosed with MGUS. Her specialist that are treating her said she had...

https://connect.mayoclinic.org/comment/823639/

My daughter was just diagnosed with MGUS

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2023

Yes MGUS can cause numbness. I have had the numbness for about three years now. It...

https://connect.mayoclinic.org/comment/813678/

Yes MGUS can cause numbness.

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2023

@wyom1998 Multiple myeloma is abbreviated to mm by many people. I believe what you are asking...

https://connect.mayoclinic.org/comment/664992/

myeloma patients, they started with MGUS

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2021

If you don't mind me asking, what are your IgA/M/G numbers? I am considered a MGUS...

https://connect.mayoclinic.org/comment/1250774/

I am considered a MGUS patient on the ... I also recently read a very small MGUS ... study where the only person with IgM MGUS

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Mar 5 7:45am

I’m sure you will receive numerous responses from our members but I will tell you how...

https://connect.mayoclinic.org/comment/1229057/

with my health anxiety in regard to MGUS ... search back through some posts on MGUS ... had success controlling or reversing MGUS

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 4 7:07am

I also was diagnosed with Mgus IgG lamda in June 2023. My IgG is 2500 and...

https://connect.mayoclinic.org/comment/1295653/

I also was diagnosed with Mgus IgG lamda

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 3 10:26am