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Comments (2,132)

I have seen 2 neurologists for similar symptoms. . Have you gotten an evaluation? Have you...

https://connect.mayoclinic.org/comment/1089951/

I’m also being evaluated for Sjogrens

Discussion: Nerve pain, electric spasms in legs, feet, back, arms etc.

Support Group: Neuropathy

Posted: Jun 19, 2024

Being a "sun worshiper", I have paid the price! I have many auto immune-MS,Lupus, RA, Sjogrens,...

https://connect.mayoclinic.org/comment/1087742/

have many auto immune-MS,Lupus, RA, Sjogrens

Discussion: Getting sick after sun exposure

Support Group: Autoimmune Diseases

Posted: Jun 16, 2024

I hear you. It is so frustrating when your in pain n nauseous everyday for years...

https://connect.mayoclinic.org/comment/1085195/

I have sjogrens n gastroparesis plus

Discussion: Gastroparesis and Autoimmune

Support Group: Digestive Health

Posted: Jun 11, 2024

Yes, I have also read sometimes Sjogrens doesn’t show up on blood tests. I was somewhat...

https://connect.mayoclinic.org/comment/1081498/

Yes, I have also read sometimes Sjogrens ... has improved, and figured maybe not Sjogrens

Discussion: Dry mouth and bitter taste

Support Group: Ear, Nose & Throat (ENT)

Posted: Jun 5, 2024

I also share some of the issues as you! Have you seen a Rheumatologist? I have...

https://connect.mayoclinic.org/comment/1081050/

an appointment to be evaluated for Sjogrens

Discussion: Dry mouth and bitter taste

Support Group: Ear, Nose & Throat (ENT)

Posted: Jun 5, 2024

Hello…my name is Sharon. I’ve been in pain management off & on for a number of...

https://connect.mayoclinic.org/comment/1078663/

I have fibromyalgia, Sjogren’s Syndrome ... stress has caused many flares from the Sjogren

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: May 31, 2024

I have Sjogren’s—sort of. I’m Ro-SSA positive but don’t have very dry eyes/mouth. So I’m kind...

https://connect.mayoclinic.org/comment/1077398/

I have Sjogren’s—sort of. ... Sjogren’s can be associated with myelitis

Discussion: Internal body vibrations all night

Support Group: Neuropathy

Posted: May 29, 2024

Hello Machak, I need answers my self, I have S.F.N., Sjogren's, Hashimoto's and what ever else...

https://connect.mayoclinic.org/comment/1074617/

need answers my self, I have S.F.N., Sjogren

Discussion: Autoimmune illness and small fiber neuropathy

Support Group: Neuropathy

Posted: May 25, 2024

Do you have any positive markers for RA. Sjogrens, Lupus, etc.? A&A blood tests are they...

https://connect.mayoclinic.org/comment/1074571/

Sjogrens, Lupus, etc.?

Discussion: Anyone out there with Autoimmune inner ear disease (AIED)?

Support Group: Autoimmune Diseases

Posted: May 25, 2024

I also have sjogrens and have had similar problems only mine occurs as red blistering at...

https://connect.mayoclinic.org/comment/1069713/

I also have sjogrens and have had similar

Discussion: Does anyone have a solution for blistering around the lips bc of sjog

Support Group: Autoimmune Diseases

Posted: May 17, 2024

Hi awesomemomx2, Thanks for the concern. No, no fractures, thank goodness. Am doing well on the...

https://connect.mayoclinic.org/comment/1067484/

But because of my Sjogren's, i struggle

Discussion: Support For Those Quitting Prolia

Support Group: Osteoporosis & Bone Health

Posted: May 13, 2024

Welcome @jgoodall, A sunny disposition goes along way when dealing with neuropathy and a lot of...

https://connect.mayoclinic.org/comment/1055903/

You mentioned erythromyelagia and Sjogren

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Apr 23, 2024

Hello and thank you for this support group! I have been scanning through the posts to...

https://connect.mayoclinic.org/comment/1055898/

I have Sjogren’s as well.

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Apr 23, 2024

Thanks for the link, although it doesn't look promising - the only local is ASU Health...

https://connect.mayoclinic.org/comment/1054941/

likely medical scenarios are early Sjogren

Discussion: So disheartened

Support Group: Neuropathy

Posted: Apr 21, 2024

Wow, that's horrible! Yes, very similar. I also had frozen shoulder. I was tested for Sjogrens...

https://connect.mayoclinic.org/comment/1052383/

I was tested for Sjogrens and other

Discussion: Cushings Disease - What were your cortisol and ACTH test results?

Support Group: Diabetes & Endocrine System

Posted: Apr 17, 2024

I did not get the vaccine. I do not really trust the pharmaceutical industry and it...

https://connect.mayoclinic.org/comment/1051661/

tested me for Lyme disease, Lupus, Sjogren

Discussion: Living with LPSVS (long post-COVID vaccination syndrome)

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 16, 2024

Please find a new Dr. Hopefully one that has experience with Sjogren's Syndome, rituximab treatments, and...

https://connect.mayoclinic.org/comment/1050554/

Hopefully one that has experience with Sjogren ... As someone with Crohn's, Sjogren

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Apr 14, 2024

I’m so very sorry I wish you could find other doctors. I’m terrible sorry I thought...

https://connect.mayoclinic.org/comment/1049359/

I have Sjogrens, Raynard’s, Small Fiber

Discussion: Can anyone assist me with any help in regards to my skin condition

Support Group: Autoimmune Diseases

Posted: Apr 12, 2024

Please see the info. At the link below. https://sjogrenssyndromenews.com/what-is-sjogrens-syndrome/

https://connect.mayoclinic.org/comment/1048651/

//sjogrenssyndromenews.com/what-is-sjogrens-syndrome

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Apr 10, 2024

Not to alarm you but Sjorgens has been proven to be a precursor to cancer. I...

https://connect.mayoclinic.org/comment/1047242/

Not to alarm you but Sjorgens has been ... I was diagnosed with Sjorgens 12 yrs ... Internal Medicine and he told me when Sjorgens

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Apr 8, 2024