Actemra – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

2,073 total results

Comments (2,008)

I had a long history of reactive arthritis with uveitis diagnosed 20 years before PMR was...

https://connect.mayoclinic.org/comment/970574/

eventually got off prednisone after Actemra ... Actemra worked well for PMR so I had

Discussion: Autoimmune changes

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 26, 2023

Yes, this approach makes perfect sense, doesn't it. Yet some doctors want their patients off steroids...

https://connect.mayoclinic.org/comment/1381679/

Hoping that I may get approval for Actemra

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 29 12:52am

Thank you for sharing your experiences. It sounds like you have a good working relationship with...

https://connect.mayoclinic.org/comment/1368125/

Methotrexate and now possibly starting on Actemra

Discussion: Questions for people taking Actemra and Kevzara injections

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11 6:54am

I had PMR for a year before I got diagnosed. I thought it was due to...

https://connect.mayoclinic.org/comment/1371448/

I was treated with prednisone and Actemra

Discussion: PMR, no drugs?

Support Group: Autoimmune Diseases

Posted: Aug 15 3:45pm

@emaureen You certainly seem to be doing great for an 80 year old! Better than me,...

https://connect.mayoclinic.org/comment/1133956/

ago , doctor will be putting me on Actemra

Discussion: newly diagnosed

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 31, 2024

@dadcue Have you researched to see if prednisone could be the cause? It’s crazy the way...

https://connect.mayoclinic.org/comment/1073540/

My husband is on Actemra to help taper

Discussion: Statins - side-effects, PMR, Giant Cell Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23, 2024

My sister was on Red Yeast Rice for a few yaers and was just diagnosed with...

https://connect.mayoclinic.org/comment/986895/

of high dosage prednisone and then Actemra

Discussion: Diagnosed with PMR shortly after starting statin drug.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 26, 2023

The drug inhibits the IL-6 cytokine that that is instrumental in PMR symptoms. If your ESR...

https://connect.mayoclinic.org/comment/936791/

Actemra is another option to research

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 26, 2023

I was diagnosed in Sept 2024 with GCA. I started off with 60mg of Prednisone after...

https://connect.mayoclinic.org/comment/1246468/

I am also injecting Actemra weekly!

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27 9:21am

I started my Actemra infusions in January 2024. I chose the infusions. If I would have...

https://connect.mayoclinic.org/comment/1344679/

I started my Actemra infusions in January ... Actemra has been a game changer for

Discussion: Actemra

Support Group: Autoimmune Diseases

Posted: Jul 9 5:27pm

I just met with my new rheumatologist now that I have GCA as I just got...

https://connect.mayoclinic.org/comment/1365329/

My rheumy recommends the monthly Actemra ... Has anyone eventually gotten off Actemra

Discussion: Questions for people taking Actemra and Kevzara injections

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 6 8:53pm

Thank you for all of this information. I have been on prednisone and actemra for almost...

https://connect.mayoclinic.org/comment/1082911/

I have been on prednisone and actemra

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 8, 2024

I’m so sorry to hear you’ve had relapses. My husband was diagnosed with PMR in May...

https://connect.mayoclinic.org/comment/1037201/

treatment initially) and also started Actemra

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 20, 2024

Thanks for the reply, John, and for the wisdom you’ve gleaned from your experiences with PMR,...

https://connect.mayoclinic.org/comment/1006520/

will soon go on a biologique such as Actemra

Discussion: Advice/experience about going back on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 30, 2024

Interesting that your eyes had high pressure but no damage. Also interesting that your eyedrops helped...

https://connect.mayoclinic.org/comment/832052/

anyone tries to get me cleared for Actemra

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 25, 2023

I had normal SED rate for the first year I had PMR. Only CRP was elevated....

https://connect.mayoclinic.org/comment/756697/

three months into the biologic drug Actemra

Discussion: Do I really have PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 3, 2022

The doctor put in a new diagnosis code. I have the code number and need to...

https://connect.mayoclinic.org/comment/1289680/

other people's experiences on the Actemra

Discussion: Insurance coverage for Actemra infusion with straight Medicare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25 12:25pm

Thanks so much for your response. Do you think the Ofev has helped your lung function?...

https://connect.mayoclinic.org/comment/845051/

starting a new medication for my RA, Actemra

Discussion: Prescribed Ofev, anyone have experience with this drug?

Support Group: Lung Health

Posted: Apr 18, 2023

@johnbishop , this is my first major pain flair and I will discuss with Rheumatologist at...

https://connect.mayoclinic.org/comment/145038/

a clinical trial of Tocilizumab (Actemra

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25, 2020

Wow, it's really amazing that you were able to get off of prednisone so quickly. I...

https://connect.mayoclinic.org/comment/1238785/

I think the Actemra has the GCA and

Discussion: New to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 17 2:47am