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Comments (2,008)

Thank you - that's very useful information. I would like to try Actemra and it is...

https://connect.mayoclinic.org/comment/1271433/

I would like to try Actemra and it is

Discussion: How to Slowly and Safely Taper Off Prednisone but ... no set rules.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1 2:58am

Thank you for your response. I have asked the doctor and she is adamant that he...

https://connect.mayoclinic.org/comment/1025123/

She has put him on Actemra starting

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 29, 2024

Your response is very helpful, I was very afraid to take Actemra, side effects really scared...

https://connect.mayoclinic.org/comment/951659/

helpful, I was very afraid to take Actemra

Discussion: GCA Biopsy while on prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2023

My GP didn't really appreciate my need for an endocrine referral until my cortisol level was...

https://connect.mayoclinic.org/comment/1156038/

Actemra (tocilizumab) is currently treating ... redboat was fortunate to be started on Actemra

Discussion: Can anyone recommend a Rheumatologist at UCSF in San Francisco?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2024

I have severe spinal stenosis that was discovered while I was being treated with Prednisone for...

https://connect.mayoclinic.org/comment/1128074/

Actemra is now controlling my inflammation ... but Actemra can be stopped for the

Discussion: PMR with normal labs and having severe thigh pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 21, 2024

@tsc and @kilh Oh, it's so good to receive your message, Teri. I'm very happy you...

https://connect.mayoclinic.org/comment/670647/

A neurologist put me on weekly Actemra ... 2-year point, and I currently have Actemra

Discussion: One step forward, two steps back. My vasovagal nerve

Support Group: Heart & Blood Health

Posted: Jan 13, 2022

@tsc. Thankyou for your post. In answer to your questions, yes, I had symptoms of extreme...

https://connect.mayoclinic.org/comment/646659/

My rheumatologist has cut my Actemra ... whether that's the result of the Actemra

Discussion: Prednisone Side Effects

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 20, 2021

I was on Kevzara for 8 months last year. It did help my symptoms and seemed...

https://connect.mayoclinic.org/comment/1330869/

Now I'm on Actemra which my insurance

Discussion: Any experiences with Kevzara (sarilumab)?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19 8:21pm

My husband was just given Actemra injections for GCA. We are waiting to confirm he doesn't...

https://connect.mayoclinic.org/comment/1026254/

My husband was just given Actemra injections ... We then were able to get the Actemra

Discussion: Actemra

Support Group: Autoimmune Diseases

Posted: Mar 2, 2024

For what it is worth ... I experienced infections while on prednisone. Most of my infections...

https://connect.mayoclinic.org/comment/964207/

Currently, my only treatmen is Actemra ... #34;standalone" treatment with Actemra

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 13, 2023

For the last 2 summers I have been on 6-7 mg prednisone. I have had a...

https://connect.mayoclinic.org/comment/1348876/

Now I'm on Actemra as well.

Discussion: A Downside to Tapering Prednisone - Mosquito Bites

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 15 1:36pm

Sometimes I don't know how much of a benefit there is to take many medications. My...

https://connect.mayoclinic.org/comment/1141429/

Actemra is the one medications that ... taking 2 medications now not counting Actemra

Discussion: Actemra coverage on Medicare in California?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 14, 2024

I don't know how to control "all other factors being equal." I don't think it exists...

https://connect.mayoclinic.org/comment/1094154/

For me at least, I wish Actemra had ... Technically Actemra still isn't

Discussion: Tapering Pains Body Response or PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2024

"So the ABC’s of this triad of conditions really is fascinating to me." It isn't just...

https://connect.mayoclinic.org/comment/1079539/

I'm just happy that Actemra works ... I'm wondering if I still need Actemra

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024

Sorry to hear about the glioblastoma. I'm a retired neurosurgery nurse. I don't think this concept...

https://connect.mayoclinic.org/comment/1074475/

started on a biologic medication called Actemra ... I still do a monthly infusion of Actemra

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2024

@joycj Our doctor said not to take Advil for pain, only Tylenol, because of the potential...

https://connect.mayoclinic.org/comment/1048981/

in the AM and 30 mg in the PM) with Actemra ... tapered down to 60 mg and still the Actemra

Discussion: Anyone tapered down as directed, but increased back up on their own?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2024

Thanks for these comments. My insurer and medical provider are the same entity, Kaiser Permanente. Getting...

https://connect.mayoclinic.org/comment/834268/

showed that Kaiser would pay $0 toward Actemra ... for 6 months of weekly injections of Actemra

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30, 2023

It sounds to me like you tapered too fast or too far. If you felt good...

https://connect.mayoclinic.org/comment/1331234/

1 mg then, but I'm also taking Actemra

Discussion: Down to 1mg prednisone and then extreme fatigue sets in.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 20 10:43am

I'm glad to hear they are planning the biopsy, the loss is permanent, as I had...

https://connect.mayoclinic.org/comment/859875/

per day three years ago to 3mg and Actemra

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 14, 2023

I was diagnosed with PMR about two years ago. I was dealing with extreme discomfort in...