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225 total results
Comments (205)
I just came across your post - I know it’s been a few years. I had...
I had Covid, shingles and Covid again ... I’ve been down a really long rabbit ... hole - ME/CFS, POTS, MCAS, Hashimoto
Posted: Oct 17, 2025
@dlydailyhope I was unusually fortunate to have been diagnosed within the first 6 months nearly 40...
Back then it was called CFS then CFIDS ... and more recently ME/CFS. ... ’s not uncommon for people with ME/CFS ... Never had COVID but get all the Covid ... https://solvecfs.org/me-cfs-long-covid
Support Group: Neuropathy
Posted: Oct 15, 2025
I am so sorry your son had this. It is very frightening since you don't know...
I have had ME/CFS since the early 1980& ... #39;s and Long Covid following two bouts ... of Covid within months of each other ... I see a Naturopath for ME/CFS and Long ... Covid.
Hello, I know this is an older post, but I'm currently experiencing similar symptoms as you...
attack and tested positive for mono and Covid ... a combination of mono relapse, ME/CFS ... mast cell activation syndrome), and long ... Covid, but I don't have a current ... anxiety, sniffing like I did when I had Covid
Support Group: Infectious Diseases
Posted: Sep 20, 2025
Joan, I don’t know how I did it either! It was so hard! Completely missed out...
My ME/CFS was initially triggered by ... I always wondered if Long Covid is a ... activated or reactivated EBV combined with Covid
Posted: Aug 30, 2025
I can't speak to this firsthand, but I learned of a Center in Arkansas called the...
that focuses on CRPS; they also treat Long ... Covid, Dysautonomia, ME/CFS and other
Discussion: CRPS
Support Group: Neuropathy
Posted: Jul 19, 2025
Hi, yes, you've raised an excellent question. I had what I consider to be the same...
the same illness, then called "CFS ... few days to even bother testing for Covid ... the pretty much identical-feeling Long ... Covid phenomenon. ... decades of research (including that on CFS
I found the Bateman Horne Center has support groups for Long Covid that meet twice a...
Horne Center has support groups for Long ... Covid that meet twice a month on Zoom ... resources on their website for ME/CFS ... and Long Covid
Dang, you’re going through a lot too! Have you done the Radiance Diagnostics test that tests...
All my other Covid tests were negative ... theradiancediagnostics.com/order-test/covid-long-haulers-s1 ... He’s a ME/CFS, LC, chronic illness specialist ... fully clearing the spike proteins from Covid ... that when the monocytes engulf the Covid
Posted: Mar 6, 2025
Just want to weigh in with a point about nomenclature. Chronic fatigue is often an accompanying...
is often an accompanying symptom of Long ... Covid. ... Chronic Fatigue Syndrome (CFS), on the ... that has no direct relationship with Covid ... fatigue many of us experience post Covid
Yes, it was the foundation to my healing for ANS dysfunction from long covid. Going on...
covid. ... Google the article "How Long Covied ... for me, then Internal Med Long Covid ... Clinic/ME CFS clinic at Mayo helped ... me with my other long covid symptoms
For those who wish additional information on PEM: Definition: Post-Exertional Malaise (PEM) is a worsening of...
encephalomyelitis/chronic fatigue syndrome (ME/CFS ... ) and long COVID. ... Pacing-and-Management-Guide-for-ME_CFS ... 9.pdf https://www.cdc.gov/me-cfs
Support Group: Fibromyalgia
Posted: Feb 1, 2025
I am so sorry to hear your stories of doctors not being helpful. That was my...
That was my experience too - long covid ... Finally went to the Stanford ME/CFS ... and Long Covid clinic and all that changed ... Covid. ... covid treatment.
My best wishes to each and every one of you and all you have long COVID....
every one of you and all you have long ... COVID. ... am the parent of a daughter who had CFS ... syndrome), which is now included with long-COVID ... Unfortunately, there is no "cure" for long-COVID
Dear singularity: I'm so sorry to hear of the difficulties you are having with long-COVID. You...
the difficulties you are having with long-COVID ... practitioner who has a strong interest in long-COVID ... Unfortunately, there is no known treatment for long-COVID ... My adult daughter had CFS. ... It took a long time for all of us to
Posted: Nov 1, 2024
Hi Christine- Thank you so much for your kind note, for sharing your story, and for...
I don’t have CFS, so I don’t think I ... to blame myself…just like with your long ... COVID being “too long” >_< .
Hello to all of you on this thread. I appreciate your stories and struggles. This is...
counting) medical diagnosis due to my Long ... Covid. ... I have hyperandrogenic POTS due to Long ... Covid. ... But, PEM/CFS interfere with these exercises
I am a long covid sufferer and have CFS now and PEM. I can’t answer your...
I am a long covid sufferer and have ... CFS now and PEM. ... going to travel to Jacksonville for covid ... who did you see there that diagnosed CFS