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Comments (148)
I already had suffered for over 10 years with ME/CFS after battling a very bad second...
https://connect.mayoclinic.org/comment/1195669/
suffered for over 10 years with ME/CFS ... The ME/CFS got so bad I was ed ridden ... Then 3 years ago I got Long COVID = ... more ME/CFS.
So, interesting. I came to share. I have long Covid or I get it about 9...
https://connect.mayoclinic.org/comment/1175422/
I have long Covid or I get it about ... certain levels it triggers first me/CFS ... autoimmune diseases I have accumulated with long ... Covid (MCAS/HEDS..)
Probably "tincture of time," as one physician put it. And toward the time she recovered, she...
https://connect.mayoclinic.org/comment/1314430/
great deal of interest in working with CFS ... She has been free from long term infections ... not turn into Long-COVID. ... The only way to keep from getting Long-COVID ... is to not get COVID.
Does anyone in this forum have abnormal ANA and high homocysteine? Both my daughter and I...
https://connect.mayoclinic.org/comment/1303936/
Both my daughter and I have ME/CFS and ... I also have Long Covid.
For many years at the recommendation of ME/CFS pioneer, Dr. Paul Cheney, I have used Nexavir...
https://connect.mayoclinic.org/comment/1324950/
years at the recommendation of ME/CFS ... , I have used Nexavir Cream for ME/CFS ... www.nexco-pharma.com/
It is now being used in Long ... Covid also.
Yes. I have these. As far as I can tell these are caused my microclots that...
https://connect.mayoclinic.org/comment/794744/
webmd.com/covid/news/20221207/microclots-may-explain-long-covid-symptoms ... Long-COVID parallels and seems identical ... to ME/CFS. ... break microclots and get folks out of Long-COVID ... factors end up elevated in patients with long-COVID
I am so sorry you experienced this too. It's horrible. The covid vaccine ruined my life...
https://connect.mayoclinic.org/comment/767491/
The covid vaccine ruined my life and ... can be proven definitively, not even cfs ... counts as far as SS is concerned as long
If you find this EBS physician, let me know. Went to one in NYC. Lots of...
https://connect.mayoclinic.org/comment/729884/
Maybe
Long Covid will help in the longrun ... CFS took charge of my life at about
I know just how you feel. Perhaps we have to form our own group somehow. Perhaps...
https://connect.mayoclinic.org/comment/690052/
Perhaps we have to reach out to other ME/CFS ... We are not the same as the Post-Covid ... ME/CFS may be a post-viral syndrome ... it didn't arise
just when post-Covid ... or long covid did.
Yes, it is devastating and yes, I recovered/in remission from CFS but am still cautious about...
https://connect.mayoclinic.org/comment/686057/
yes, I recovered/in remission from CFS ... purposely slow down - which now with Long ... COVID, too, I do anyway. ... I was diagnosed with CFS at Mayo and ... Took a long time, though.
Welcome, @sahilbhaia03. I moved your post to this related discussion about chronic fatigue syndrome so you...
https://connect.mayoclinic.org/comment/662902/
with others members talking about CFS ... been dealing with this for such a long ... silver lining of the pandemic is that CFS ... fatigue is a predominant symptom of long ... COVID.
Correction to my post I meant to say RE activation not deactivation. But I think you...
https://connect.mayoclinic.org/comment/1072239/
I felt like the COVID virus was just ... reactivation of things like EBV are causing long ... covid. ... forerunner for treatment protocol for CFS
I found this article fascinating and self-descriptive - I had CFS (diagnosed by Mayo) in the...
https://connect.mayoclinic.org/comment/1068376/
fascinating and self-descriptive - I had CFS ... diagnosed by Mayo) in the late 80s, have Long ... Covid, and have recently been diagnosed
My heart goes out to you. I know what it feels like to have illness that...
https://connect.mayoclinic.org/comment/1039662/
is also an online publication on ME/CFS ... unraveled-4-chronic-fatigue-fibromyalgia-long-covid-sleep
Please do check out the post-viral-infection syndrome website at www.solvecfs.org This is the US nexus for...
https://connect.mayoclinic.org/comment/1033017/
for research into infections like long-COVID ... ; CFS stands for Chronic Fatigue Syndrome
I was in my best shape and best life before getting Covid Dec 2020. Never had...
https://connect.mayoclinic.org/comment/1032755/
shape and best life before getting Covid ... endocrinologist diagnosed me with Long ... Covid, but said they’re isn’t much ... exertional malaise) that is associated with CFS ... but now also Long Covid.
Hi- I know this is an older post, but thought I’d try reaching out. I was...
https://connect.mayoclinic.org/comment/1021762/
and then thought to check the post-COVID ... precautions I tried to take, I had COVID ... I don’t have CFS, but I have fatigue ... My doctor thinks I either have long ... COVID, or COVID exacerbated my underlying
Sorry to hear you are experiencing this too. I have had that sensation since getting the...
https://connect.mayoclinic.org/comment/938441/
Now they say its “long covid and me/ ... cfs”.
I’m glad to hear you’re finding help with a new provider. My first appointment with a...
https://connect.mayoclinic.org/comment/911273/
experienced by people suffering from ME/CFS ... and Long Covid. ... - Women are affected by ME/CFS at ... estimated 63.2% of individuals with Long ... COVID are female.
I was first seen at Mayo Rochester in 2017? Can't quite remember... And later, I was...
https://connect.mayoclinic.org/comment/1144294/
whole other ball of wax and a very long ... pain and fatigue and even in a post-COVID ... I didn't attend the ME/CFS program ... Sorry, such a long reply >_< .
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