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Comments (2,436)

Good morning. I have a BAV. Didn't know about it until my GP heard a heart...

https://connect.mayoclinic.org/comment/1224619/

I have Lupus.

Discussion: discrepancy between echo and CTA

Support Group: Aortic Aneurysms

Posted: Jan 29 10:45am

Avascular Necrosis and osteoporosis I was in my 40s First doctor lied he did not specialize...

https://connect.mayoclinic.org/comment/1256198/

Constantly inflamed now plus I have lupus

Discussion: Hip revision

Support Group: Bones, Joints & Muscles

Posted: Mar 12 11:04am

@happily alive yes I still grab those wipes going into stores, if still available. If I...

https://connect.mayoclinic.org/comment/1169295/

I have lupus and high antibodies for

Discussion: Protecting yourself during winter months with autoimmune disease

Support Group: Autoimmune Diseases

Posted: Nov 7, 2024

The muscle issues were a mystery for me. I never got a diagnosis. My brother has...

https://connect.mayoclinic.org/comment/1045136/

in my family….RA, type 1 diabetes, Lupus

Discussion: Possible Sjogrens Disease

Support Group: Autoimmune Diseases

Posted: Apr 4, 2024

OMG they tested me Five times for LUPUS! Why is that usually a go to for...

https://connect.mayoclinic.org/comment/884627/

OMG they tested me Five times for LUPUS

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2023

I have gone through something similar. I have been diagnosed with a lot of different things....

https://connect.mayoclinic.org/comment/884585/

Lupus is one of them, my test was positive

Discussion: ANA positive then negative then positive...

Support Group: Autoimmune Diseases

Posted: Jun 25, 2023

@tdw10 I did two mastectomies, separately, because my docs wanted to see how my body handled...

https://connect.mayoclinic.org/comment/874123/

which would have concerned my doctors (lupus

Discussion: Atypical Ductal Hyperplasia AND Invasive Lobular Carcinoma

Support Group: Breast Cancer

Posted: Jun 7, 2023

My husband is an internist too, but I got my own PCP last week. I am...

https://connect.mayoclinic.org/comment/841808/

vaxes messing up my autoimmunity, had lupus

Discussion: Two weeks in, frightened by meds, PMR and COVID Booster Shot

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2023

lucy84 @lucy84, Sound like your not alone; list of illness that need IVIG; What conditions does...

https://connect.mayoclinic.org/comment/815437/

demyelinating polyneuropathy (CIPD) - Lupus

Discussion: Most effective way to administer IVIG

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712049/ Apparently this is the first study confirming RF energy triggers neuropathic pain and I couldn't...

https://connect.mayoclinic.org/comment/161490/

my chest which was misdiagnosed as lupus

Discussion: Anyone have the FGFR3 antibody gene?

Support Group: Neuropathy

Posted: May 19, 2020

im sorry u r going thru it-the difficulty getting a dx, as well as dealing with...

https://connect.mayoclinic.org/comment/1258778/

of not getting the correct dx 4 her lupus

Discussion: Possible Sjogrens Disease

Support Group: Autoimmune Diseases

Posted: Mar 15 3:51pm

I got into my old neurologist office. She says at this time that my MS panel...

https://connect.mayoclinic.org/comment/118512/

I think lupus was one.

Discussion: Multiple Sclerosis (MS) - please introduce yourself

Support Group: Brain & Nervous System

Posted: Jul 3, 2019

Lest anyone take away from this that the absence of definitive lab tests for histamine intolerance...

https://connect.mayoclinic.org/comment/893257/

Lupus: An ANA test during a particularly ... lowered counts and were negative for Lupus ... I have no symptoms of Lupus.

Discussion: histamine intolerance after menopause

Support Group: Women's Health

Posted: Jul 10, 2023

@lily2013 Hi, Lily.Your situation is very interesting, but I believe there is hope of some understanding,...

https://connect.mayoclinic.org/comment/182119/

family with connective tissue diseases, Lupus ... family line, there are folks with Lupus ... Another has just been diagnosed with Lupus

Discussion: Facial Swelling - no diagnosis

Support Group: Autoimmune Diseases

Posted: Jan 23, 2018

@06111945cc actually Evenity is not a parathyroid hormone :) @normahorn I don't think it is sadistic...

https://connect.mayoclinic.org/comment/959669/

I have many health issues: lupus, COPD

Discussion: I started Forteo 3 mths ago and have bad side affects

Support Group: Osteoporosis & Bone Health

Posted: Nov 5, 2023

Hello change25 - your symptoms sure must be very worrying and I am sorry I cant...

https://connect.mayoclinic.org/comment/596912/

Internet when they have been discussing Lupus

Discussion: At a loss, multiple consultations still no answer...any idea?

Support Group: Autoimmune Diseases

Posted: Apr 24, 2021

Becsbuddy -. Thanks so very, very much for responding. I have been diagnosed with lupus. Haven't...

https://connect.mayoclinic.org/comment/221453/

I have been diagnosed with lupus.

Discussion: Lupus or not Lupus?

Support Group: Autoimmune Diseases

Posted: Sep 5, 2020

@tallyteresa My oncologist is Mayo Clinic trained, and practiced there for several years before moving out...

https://connect.mayoclinic.org/comment/298672/

condition, plus fibromyalgia and systemic lupus

Discussion: When plans change because of health issues. How do you cope?

Support Group: Just Want to Talk

Posted: Mar 21, 2020

@momij They haven't took my pain meds away yet but it seems inevitable. My neurologist who...

https://connect.mayoclinic.org/comment/96735/

who treats my multiple sclerosis and lupus

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Mar 4, 2018

I’ve been through the gauntlet with doctors so I certainly empathize. I’m also a nurse and...

https://connect.mayoclinic.org/comment/1271754/

With Lupus you have other things far

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 1 12:14pm