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Comments (2,264)

Well…I’m back to work full time, but unless I’m doing trainings, I basically do research and...

https://connect.mayoclinic.org/comment/665880/

fatigued, but that’s undoubtedly due to Sjogren

Discussion: What do you order when eating at a restaurant?

Support Group: Transplants

Posted: Dec 28, 2021

I didn’t provide a particular link, just suggested you type in LDN groups maybe, I was...

https://connect.mayoclinic.org/comment/665188/

groups maybe, I was made aware via the Sjögren

Discussion: Success with low dose naltrexone for Autoimmune disorders

Support Group: Autoimmune Diseases

Posted: Dec 25, 2021

Rachel, I'm so sadden by what you are going though. I'm having the same kind of...

https://connect.mayoclinic.org/comment/663637/

The rheumatologist ruled out Sjogren

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: Dec 18, 2021

FYI : there are Facebook forums regarding LDN; many with Sjögren’s and other autoimmune issues successfully...

https://connect.mayoclinic.org/comment/663488/

Facebook forums regarding LDN; many with Sjögren

Discussion: Success with low dose naltrexone for Autoimmune disorders

Support Group: Autoimmune Diseases

Posted: Dec 18, 2021

If you have SFN, it seems you should see a neurologist. A rheumatologist can help in...

https://connect.mayoclinic.org/comment/661249/

some potential causes of SFN, such as Sjogren

Discussion: Nerve biopsy test: Is it done by a neurologist or rheumatologist?

Support Group: Neuropathy

Posted: Dec 10, 2021

When you get some answers, please share. I too have been diagnosed with small fiber neuropathy...

https://connect.mayoclinic.org/comment/657888/

diagnosed with small fiber neuropathy and Sjogren

Discussion: Autoimmune illness and small fiber neuropathy

Support Group: Neuropathy

Posted: Nov 28, 2021

Hi @jba, If you would like to connect with others who have RA, we do have...

https://connect.mayoclinic.org/comment/651307/

also is a link to a discussion on Sjogrens ... /connect.mayoclinic.org/discussion/sjogrens

Discussion: Anyone have voice and vocal cord issues with rheumatoid arthritis?

Support Group: Autoimmune Diseases

Posted: Nov 4, 2021

I have many of these symptoms as part of Mixed Connective Tissue Disease, which is a...

https://connect.mayoclinic.org/comment/650056/

Sjogrens affects eyes and mouth, mainly

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 31, 2021

Hello @jba! I was diagnosed with Primary Biliary Cholangitis and stage 3 liver disease in the...

https://connect.mayoclinic.org/comment/649814/

I also have Sjogren’s and Raynaud’s

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 30, 2021

Hi Loke @loke, Welcome to Connect. Connect is a great safe place to meet other members...

https://connect.mayoclinic.org/comment/649702/

discussion/fibromyalgia-20d1d0/ -- Sjogren ... /connect.mayoclinic.org/discussion/sjogrens

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 30, 2021

Hi Lynnie, I have refused the lip biopsy as I don't need more mouth sores. My...

https://connect.mayoclinic.org/comment/649698/

Since I understand that Sjogren'

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 30, 2021

Did you get a lip biopsy as well to test for Sjogrens?

https://connect.mayoclinic.org/comment/649486/

get a lip biopsy as well to test for Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 29, 2021

I hate that sledgehammer! I found out the hard way that I wasn’t drinking enough water....

https://connect.mayoclinic.org/comment/648971/

I have neuropathy from Sjögren’s.

Discussion: Gabapentin

Support Group: Neuropathy

Posted: Oct 28, 2021

I have dry eye from Sjogrens autoimmune and use Klarity C eye drops compounded by Imprimis...

https://connect.mayoclinic.org/comment/648580/

I have dry eye from Sjogrens autoimmune

Discussion: How do you deal with dry eyes?

Support Group: Eye Conditions

Posted: Oct 26, 2021

I have neuropathy from Sjögren’s in my feet and it comes and goes. I have the...

https://connect.mayoclinic.org/comment/647503/

I have neuropathy from Sjögren’s in

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: Oct 23, 2021

Thx again for your answer… I have a very able-bodied husband who is absolutely zero help...

https://connect.mayoclinic.org/comment/643857/

sure you deserve it as well.I have Sjogren ... well as I was originally on it for Sjogren ... first thing I was giving given for Sjogrens

Discussion: feeling defeated

Support Group: Neuropathy

Posted: Oct 10, 2021

Thanks for reaching out, I certainly will. In my above msg, I meant I no longer...

https://connect.mayoclinic.org/comment/643851/

@jetsetter Do you have only Sjogrens

Discussion: feeling defeated

Support Group: Neuropathy

Posted: Oct 10, 2021

Thank you Becky. I hadn’t heard of the Autoimmune Association- https://autoimmune.org/ I wasn’t impressed with their...

https://connect.mayoclinic.org/comment/642796/

with their simplistic definition of Sjogren

Discussion: Does it seem like autoimmune diseases are on the rise?

Support Group: Autoimmune Diseases

Posted: Oct 6, 2021

I’m sorry your day was rough. Those liver enzyme levels are high, but not overly so....

https://connect.mayoclinic.org/comment/642079/

I saw a neurologist who diagnosed Sjogren

Discussion: Does it seem like autoimmune diseases are on the rise?

Support Group: Autoimmune Diseases

Posted: Oct 4, 2021

Thank you for this post. I have been VERY hesitant to undergo any invasive procedures for...

https://connect.mayoclinic.org/comment/642004/

after that appt., I was diagnosed with Sjögren

Discussion: Mayo Pain Rehab Program: Signing off and my comeback afterwards

Support Group: Chronic Pain

Posted: Oct 4, 2021