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2,602 total results
Comments (2,486)
I'm not sure what to think about this study except that I wouldn't have wanted to...
was a delay in being treated with prednisone ... PMR made it extremely difficult to taper ... off Prednisone in a reasonable amount
I started with Actemra injections at first. I got off prednisone temporarily a year later. I...
I got off prednisone temporarily a year ... condition within weeks of stopping prednisone ... I was unable to taper off prednisone ... I have been off prednisone as long as ... No prednisone and no flares of anything
Discussion: Feeling defeated
Posted: Jan 20 11:11am
I think the prednisone and Actemra both made my top priority problem list immediately when I...
I think the prednisone and Actemra both ... I'm still tapering prednisone, and ... I don't think I'll be off Actemra ... while, so I can't speak to getting off
Posted: Jan 22 11:18am
Welcome @chacha83, I think you just figured out how to post but if you want to...
comprehensive-overview-of-pmr/ -- How to Slowly and Safely Taper ... Off Prednisone but ... no set rules ... discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules
Posted: Jan 17 11:12am
"The result was 7.1 ug/dl, normal range 4.8-19.5. I'm not sure what he was expecting, no...
off Prednisone the first time. ... Almost as soon as I tapered off Prednisone ... As I tried to taper off Prednisone the ... I was able to taper off Prednisone incredibly ... another year after I tapered off the
My PMR began in January of 2022. In April of 2024 I was trying to taper...
In April of 2024 I was trying to taper ... off Prednisone for the second time ... I'm down to 3 mg of Prednisone and ... During the previous two tapers the symptoms ... would return when I reached a Prednisone
Discussion: Kevzara
Posted: Sep 15, 2024
I was diagnosed with EGPA in February of 2024 after about 14 years of advancing symptoms...
It took 9 months to taper SLOWLY off ... prednisone. ... taper which restored my sense of smell ... helps you to try Nucala and as you taper ... prednisone, follow great advice on
Support Group: Autoimmune Diseases
Posted: Jan 21 7:11am
@dadcue ,@cgm You know already that we are in that same boat, unfortunately. I was diagnosed...
Like you I was treated with a fast taper ... of prednisone. ... take Actemra so hopefully I can get off ... the prednisone.
Discussion: PMR to RA?
Posted: Oct 12, 2024
I was first diagnosed with PMR June 2023. I was treated with predisone for 9 mos...
I was treated with predisone for 9 mos ... been on it since March 2024 while on Predisone ... and was able to taper off of the Pred ... done this in anticipation of coming off ... #39;s a real remission until I come off
Discussion: Kevzara
Posted: Feb 27 5:27pm
I spent 3-4 months chasing my pain going up and down with my prednisone dose. I...
my pain going up and down with my prednisone ... PT but decided I would stop taking Prednisone ... I tapered from 1.5 to 0 in a few days ... Very happy to be off of pred and looking
I'm 70 now but I was diagnosed with PMR back in 2007 at the age of...
I took prednisone for 12 years until ... the time 2020 rolled around, I was off ... prednisone. ... Fortunately Actemra allowed me to taper ... off prednisone in a year.
I’ve been on prednisone for 2 years and have been only able to taper to 3...
I’ve been on prednisone for 2 years ... and have been only able to taper to ... blurred vision until it starts to wear off ... will burn out eventually and I can be off
Thank you so much for your reply. I started taping last week very slowly. I went...
I started taping last week very slowly ... I’ll continue the slow taper. ... Looking forward to being off of prednisone
Posted: Apr 6 11:33pm
I too have AIP type 1. I did many rounds of predisone and every time they...
I did many rounds of predisone and every ... time they tried tapering off I would
Support Group: Autoimmune Diseases
Posted: Apr 21 10:24am
Flares are hard to define for PMR. Most people just take more Prednisone for any uptick...
Most people just take more Prednisone ... dose without ever expecting me to taper ... off completely. ... for 12 years. before I could taper ... off.
Discussion: PMR and the taper
Posted: Jun 2 4:24pm
Don't get too discouraged. I was on Prednisone for 12 years before learning about Prednisone induced...
too optimistic that I would ever get off ... always encouraged me to keep trying to taper ... off Prednisone. ... I felt so giddy about being off Prednisone ... energy improved the longer I stayed off
"My fear is always GCA and did have some symptoms and a biopsy during my 3rd...
treated quickly with a high dose of Prednisone ... I'm confident that I can taper off ... Prednisone quickly when uveitis flares ... up. "Short term" prednisone ... that involved "long term" prednisone
Posted: Jun 5 7:24am
I can relate to the original comment. I was diagnosed with PMR a little over two...
I just tapered to .5 mg of prednisone ... cortisol levels until I'm totally off ... prednisone. ... point, being on such a low dose of prednisone