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Comments (1,917)
I was on Prednisone for more than 12 years. I wasn't able to get much below...
off Prednisone a difficult challenge ... When I tapered off Prednisone, my endocrinologist ... off Prednisone until my cortisol level ... I had an easier time tapering off Prednisone ... ... no tapering was needed.
Kevzara might be worth a try for "relapsing PMR" Kevzara won't work immediately so prednisone might...
Kevzara won't work immediately so prednisone ... any luck, Kevzara will allow you to taper ... off Prednisone more quickly than you
Posted: May 14 1:49pm
How long were you taking prednisone? Some people have resilient adrenals. My adrenals weren't so resilient...
How long were you taking prednisone? ... 't so resilient after being on prednisone ... After being on 3 mg of Prednisone for ... endocrinologist said I didn't need to taper ... Fortunately, I was able to taper off
Hi @stevieb, I had symptoms of PMR and GCA about a year and a half before...
positive for GCA, I started with 40 mg prednisone ... and tapered off it after a year and ... Now I'm back on 40 mg prednisone
Glad you are having no side effects thus far and hope you wind up with none....
As far as tapering, do get guidance ... from your doctor - we all want to get off ... Your formula is similar to my first taper ... and stopping reacted in 3 days of no prednisone
Support Group: Autoimmune Diseases
Posted: Apr 15 1:28pm
I am about to do my fourth injection in two days so I’m currently on 5...
two days so I’m currently on 5 mg of prednisone ... to know that you were able to get off ... looks like you did the same with your taper
@christopherc, You mentioned struggling at 1 mg of prednisone. My first round with PMR took 3...
You mentioned struggling at 1 mg of prednisone ... with PMR took 3 and half years to taper ... off and the last six months I went ... precise but it did finally allow me to taper ... off of prednisone.
I went to my hepatologist yesterday, 8/8/23. We discussed my significant joint pain along with some...
body wasn’t ready to completely wean off ... of prednisone (transplant 5/3/23). ... day after I finished my last dose of prednisone ... a low dose, 5mg daily, and I will taper ... off again later/soon.
Support Group: Transplants
Posted: Aug 9, 2023
I'm doing monthly infusions of Actemra (tocilizumab) for refractory PMR. Actemra is FDA approved for GCA...
I was able to taper off prednisone. ... I have been prednisone free for 2 years ... I was on prednisone for 12 years and ... I was unable to taper off prednisone ... rheumatologist didn't want me to be on prednisone
Posted: Apr 6 5:52pm
@glinda47 Thank you! We got his inflammation levels back today (CRP and ESR) and they are...
helping him and pray we can get him off ... prednisone. ... on 80 mg starting late Feb and has tapered ... weeks now and will continue with the prednisone ... taper.
Welcome @joycj, We husbands definitely need an encourager. Good for you for helping your husband with...
for helping your husband with his tapering ... down on the prednisone. ... 1/2 mg until I was finally able to taper ... off. ... Mainly to see if I could the tapering
I have been on a monthly infusion of Actemra for about a year. I started with...
I was able to get completely off prednisone ... Not only did I taper off prednisone, ... I hope to never need prednisone again ... possible but I think I'm better off ... it isn't easy to come off of it
Posted: Jan 10 3:08pm
Yes, it is for me. I wake up with extreme pain in my fingers and wrists...
After 2 mgs. of Prednisone, the pain ... is worst when we wake up and then tapers ... off, but this has me living pain free
Posted: Mar 7 2:39pm
Hello @deborah57, I would like to add my welcome to Connect along with @nancy53 and others....
I started at 20 mg prednisone and it ... I was able to taper off of prednisone ... late 2016 and I was back on 20 mg prednisone ... This time I was able to taper off of ... prednisone in 1 and half years in 2018
Posted: Mar 6 9:02am
@pb50 I'm curious about how you use prednisone for flares of RA. I used prednisone for...
I could usually taper off in a month ... call him "if I had any problems tapering ... off" but I never had any problems ... tapers" and had a lot of experience ... off when the pain stopped.
Discussion: Rheumatoid Drs
Posted: Mar 9 11:29am
Actemra (tocilizumab) got me off prednisone. There was a waiver granted because of my "inability" to...
Actemra (tocilizumab) got me off prednisone ... because of my "inability" to taper ... off prednisone which was being used
Posted: Mar 13 12:10pm
Until PMR was diagnosed, I had no problem tapering off prednisone … sometimes from 100 mg...
PMR was diagnosed, I had no problem tapering ... off prednisone … sometimes from 100 ... into remission with a high dose of prednisone ... followed by a fast taper. ... I couldn’t taper off prednisone for
Posted: Apr 26 12:16pm
Hi, I started taking LF a month ago with very good results, i.e., reduced shoulder and...
Switched to Prednisone 20mg and tapered ... off 2-3 times down to 5 mg. ... My Rheumatologist really wanted me off ... prednisone so I stopped completely
Posted: Apr 13 7:48pm