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2,134 total results

Comments (1,973)

I have Sjogren's small fiber neuropathy manafesting as sensory ataxia. For over two years now no...

https://connect.mayoclinic.org/comment/923063/

I have Sjogren's small fiber neuropathy

Discussion: Questions on IVIg treatment for what I have: Axonal sensory-motor

Support Group: Neuropathy

Posted: Sep 2, 2023

I likely had this for a few years, but was newly diagnosed with a lip biopsy....

https://connect.mayoclinic.org/comment/954287/

when she thought she had ruled out Sjogren ... How can I connect with other Sjogren

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 26, 2023

I too had a lot of unexpected "negatives" in my work up (Sed rate,CRP, ANA, HLAB27)...

https://connect.mayoclinic.org/comment/908022/

and that plus my symptoms equalled Sjogren ... Fiber Neuropathy she called it and Sjogren

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Aug 5, 2023

@ateaseana Welcome to Mayo Clinic Connect. I see that someone has already answered your question! Have...

https://connect.mayoclinic.org/comment/955421/

Sjogren’s is usually best managed by

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 28, 2023

I understand!!!!!!!!!!!!!! I have no life anymore! Husband does not understand, feel alone. Family sadly is...

https://connect.mayoclinic.org/comment/952015/

Laminectomy, pain, Small Fiber Neuropothy, Sojgrens

Discussion: Psychological effects of living with neuropathy

Support Group: Neuropathy

Posted: Oct 22, 2023

I also run into things I see and trip over things I see. And am now...

https://connect.mayoclinic.org/comment/953107/

And am now being tested for Sjogren&

Discussion: Post Covid weird symptoms

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 24, 2023

Hello @jacee780 and welcome to the NETs support group on Mayo Connect. I was personally diagnosed...

https://connect.mayoclinic.org/comment/955365/

Having another disorder, like Sjogren

Discussion: Anyone have a small pancreatic IPMN cyst that turned out to be cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28, 2023

About Sjogren's and pain, I just learned the other day that some pain docs are using...

https://connect.mayoclinic.org/comment/956866/

About Sjogren's and pain, I just

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 31, 2023

I did a quick search for lactose free hydroxychloroquine and found that Amneal in Australia makes...

https://connect.mayoclinic.org/comment/951193/

quite a few other individuals with Sjogrens

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Oct 21, 2023

Yes I do as well. I have all of the symptoms you mentioned. Going on 10...

https://connect.mayoclinic.org/comment/950825/

they run the newer blood test for Sjogren ... could even qualify insurance wise if Sjogren ... But Sjogren's seems to fall thru

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Oct 20, 2023

@parisl , What were your symptoms? I have 3 diagnosed autoimmune disorders, but my blood tests...

https://connect.mayoclinic.org/comment/1008678/

with Rheumatologist in the summer for Sjogrens

Discussion: Anyone else with autoimmune flare ups?

Support Group: Digestive Health

Posted: Feb 3 6:46am

My symptoms are somewhat different than most. My hearing is distorted, ears feel clogged with pressure,...

https://connect.mayoclinic.org/comment/1008587/

kinds of tests (tested three times for Sjogrens

Discussion: Has anyone tried some form of antiviral cocktail regimen for their LC?

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 2 7:56pm

Hello! I'm new to the group and not sure I'm posting this correctly to be honest....

https://connect.mayoclinic.org/comment/1004205/

I was diagnosed with Sjogrens about

Discussion: Dercum’s Disease: Let's create a support group

Support Group: Chronic Pain

Posted: Jan 26 1:16pm

I have dry eyes, swollen mouth glands, dry mouth, and other symptoms. I do wonder about...

https://connect.mayoclinic.org/comment/1007012/

I do wonder about Sjogren's.

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Jan 31 6:49am

@burlingtongirl You might try contacting the Genetic and Rare Diseases organization. They may be able to...

https://connect.mayoclinic.org/comment/1018917/

rarediseases.info.nih.gov/ Also, see this newsletter for Sjogren

Discussion: Body and scalp itchimg

Support Group: Autoimmune Diseases

Posted: Feb 19 9:51pm

The fog was not from a cataract. It “may be” from dry eyes with Sjogren’s. My...

https://connect.mayoclinic.org/comment/1018411/

It “may be” from dry eyes with Sjogren

Discussion: Macular pucker after cataract surgery

Support Group: Eye Conditions

Posted: Feb 19 9:03am

I was prescribed pilocarpine- 2 to 3 tablets daily-for extreme dry mouth. It worked very well,...

https://connect.mayoclinic.org/comment/1020111/

as you learn about All the Effects Sjogren

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 21 7:15pm

Your blood work can show or not show Sjogren's. Sometimes my SSA, SSB tests are normal...

https://connect.mayoclinic.org/comment/971544/

Your blood work can show or not show Sjogren ... I have had Sjogren's for over 30

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Nov 28, 2023

Hi StillAway, I’ve had long term Covid for almost 3 months. I also have Fibromyalgia, Sjögrens...

https://connect.mayoclinic.org/comment/996397/

I also have Fibromyalgia, Sjögrens (

Discussion: Long Covid pain

Support Group: Chronic Pain

Posted: Jan 12 11:59pm

The problem swallowing and the feeling of ants don’t sound like fibro symptoms to me. Coincidentally,...

https://connect.mayoclinic.org/comment/823578/

Coincidentally, I have Sjogren’s, fibro

Discussion: Fibromyalgia and adhesion & fascial issues

Support Group: Fibromyalgia

Posted: Mar 9, 2023