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Comments (1,069)

I also have PV and shortness of breath but you are right, if you stop for...

https://connect.mayoclinic.org/comment/791345/

I also have PV and shortness of breath ... I have had PV since 2019

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2023

Here's a good article, PV is opposite of anemia basically, this article explains what to eat...

https://connect.mayoclinic.org/comment/892561/

Here's a good article, PV is opposite ... so its foods to limit if you have PV

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2023

Erythrocyte sedimentation rate (ESR), C-reactive protein (CRP) and plasma viscosity (PV).

https://connect.mayoclinic.org/comment/668390/

protein (CRP) and plasma viscosity (PV

Discussion: Joint inflammation and muscle pain after COVID

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 6, 2022

Jakafi has been a game changer for me. Really helped with side effects of PV.

https://connect.mayoclinic.org/comment/1010006/

Really helped with side effects of PV

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Because PV is considered an abnormality, the blood they take from you is not allowed to...

https://connect.mayoclinic.org/comment/851241/

Because PV is considered an abnormality

Discussion: Blood Donor: Is it safe to donate blood if you have a blood condition?

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

Hi everyone Yes @saucy mine was itchy skin before I was diagnosed with PV. More than...

https://connect.mayoclinic.org/comment/822126/

itchy skin before I was diagnosed with PV ... before I was informed that I have PV ... So PV started with sugar disease, which

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2023

My son was diagnosed with PV at 28. It scared him a great deal. He went...

https://connect.mayoclinic.org/comment/1472047/

My son was diagnosed with PV at 28.

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Jan 1 10:39am

Hi there, I've only just recently been diagnosed with PV and I don't feel the cold...

https://connect.mayoclinic.org/comment/787089/

just recently been diagnosed with PV ... Not sure how long I've had PV but

Discussion: Anyone with PV have insensitivity to cold?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2022

I was put on hydroxyurea when first diagnosed with JAK2/PV about a year ago and side-effects...

https://connect.mayoclinic.org/comment/828776/

hydroxyurea when first diagnosed with JAK2/PV ... nypara66 said "crazy how sudden this PV

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

Intolerance to heat and cold is definitely a PV problem. People in my support group all...

https://connect.mayoclinic.org/comment/785865/

Intolerance to heat and cold is definitely a PV

Discussion: Anyone with PV have insensitivity to cold?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2022

You’ve listed many of the symptoms of PV Bloodwork can ease your mind Best of luck

https://connect.mayoclinic.org/comment/1368891/

’ve listed many of the symptoms of PV

Discussion: polycythemia Vera

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

Hello @katrink, While you’re waiting for other members with PV to comment on any difficulties they...

https://connect.mayoclinic.org/comment/1399546/

’re waiting for other members with PV ... mpnresearchfoundation.org/polycythemia-vera-pv ... / With your diagnosis of PV is there

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2025

Hello my fellow PV club members. I would like to add another theory to the mysterious...

https://connect.mayoclinic.org/comment/1100679/

Hello my fellow PV club members. ... theory to the mysterious cause of PV ... disability claim pending to get my PV ... Who is to say what the cause of PV is ... My PV has little effect on me and I

Discussion: Contracting/developing polycythemia vera

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024

I saw elsewhere that you have PV. If it reduces the frequency of plateletpheresis sounds like...

https://connect.mayoclinic.org/comment/1321725/

I saw elsewhere that you have PV.

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

Any one with PV have a knee replacement at 74 years and how did it work...

https://connect.mayoclinic.org/comment/1191706/

Any one with PV have a knee replacement