DIPNECH – search | You searched for comments

sensitivity to everything was due to DIPNECH ... As far as the lung NETs/DIPNECH progression ... octreotide is as life-changing for other DIPNECH ... some point, but not enough data for DIPNECH

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2023

Hi @ahtaylor -- I love your motto! I have always loved the "Never Give Up" poster...

https://connect.mayoclinic.org/comment/867775/

take octreotide as well for lung NETS/DIPNECH

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2023

@markmark007 I take octreotide injections for lung NETS and DIPNECH. My 50+ lung tumors are very...

https://connect.mayoclinic.org/comment/966952/

octreotide injections for lung NETS and DIPNECH ... even without the octreotide but the DIPNECH

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2023

I too have nets and dipnech. I had surgery to remove my right middle lobe in...

https://connect.mayoclinic.org/comment/1215291/

I too have nets and dipnech.

Discussion: Several 6mm nodules found in both upper lobes...

Support Group: Lung Cancer

Posted: Jan 18 3:13am

I’ve been taking octreotide injections for DIPNECH and lung NETs for 4 years. No GI issues...

https://connect.mayoclinic.org/comment/1199060/

been taking octreotide injections for DIPNECH

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2024

Hi @cmc188 I have 50+ lung NETs tumors across both lungs. I also have DIPNECH (really...

https://connect.mayoclinic.org/comment/1199984/

I also have DIPNECH (really rare) which ... You may have DIPNECH too given your ... my medical team was unfamiliar with DIPNECH

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2024

To add to my lung NETs/DIPNECH story, most of my 50+ lung nodules were 1 cm...

https://connect.mayoclinic.org/comment/1215546/

To add to my lung NETs/DIPNECH story

Discussion: Several 6mm nodules found in both upper lobes...

Support Group: Lung Cancer

Posted: Jan 18 10:06am

I was recently diagnosed with (1) early stage lung cancer, (2) emphysema (3) DIPNECH with tumorlets...

https://connect.mayoclinic.org/comment/1181526/

stage lung cancer, (2) emphysema (3) DIPNECH ... the lack of treatment options that DIPNECH

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 28, 2024

Surgery to remove the malignant carcinoid (and right middle lobe) was on Oct 2. Surgeon wants...

https://connect.mayoclinic.org/comment/976626/

pulmonologist is not familiar with DIPNECH

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2023

So sorry to hear about all your issues. I have DIPNECH also, dx’d after my RML...

https://connect.mayoclinic.org/comment/1222859/

I have DIPNECH also, dx’d after my RML ... tumorlets (Nets) throughout lungs, hence DIPNECH ... But now that I have the.DIPNECH diagnosis ... touch base with other people that have DIPNECH

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27 8:50am

I am 75 and was diagnosed 6years ago, I had half my right lung removed and...

https://connect.mayoclinic.org/comment/1142704/

with the lower lung capacity but the dipnech

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

No - I went to MSK and they said it was not needed at this point....

https://connect.mayoclinic.org/comment/1108856/

think to relate symptoms to that (DIPNECH