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256 total results
Comments (242)
While I haven’t been diagnosed with DIPNECH I am 2 years into my treatment journey living...
https://connect.mayoclinic.org/comment/1070929/
While I haven’t been diagnosed with DIPNECH
Sorry to hear about your mom. I too have been looking for a DIPNECH Specialist, preferably...
https://connect.mayoclinic.org/comment/1065374/
I too have been looking for a DIPNECH
Hello @californiazebra, I really appreciate the chronology that you provided as you have been dealing with...
https://connect.mayoclinic.org/comment/1179350/
you have been dealing with lung NETs/DIPNECH
Hi @ocean3131 I also have DIPNECH and you can read my other posts for more details...
https://connect.mayoclinic.org/comment/987810/
Hi @ocean3131
I also have DIPNECH ... need someone who has treated other DIPNECH ... DIPNECH is rare.
I was Dx’d with DIPNECH post op after removal of right middle lobe Oct 2023. PET...
https://connect.mayoclinic.org/comment/1108711/
I was Dx’d with DIPNECH post op after ... The more I read about DIPNECH, the more
You definitely need to get a second opinion from a NETs specialist. Other types of lung...
https://connect.mayoclinic.org/comment/1242687/
treated the same as lung NETs and DIPNECH ... I also have lung NETs and DIPNECH.
This is @amd12. I wasn't actually diagnosed with DIPNECH, but I was told that I seemed...
https://connect.mayoclinic.org/comment/772509/
wasn't actually diagnosed with DIPNECH
Hi @rogo It seems like we’ve communicated in the past. I have DIPNECH and lung NETs...
https://connect.mayoclinic.org/comment/1070950/
I have DIPNECH and lung NETs (typical ... Based on symptoms, I’ve had DIPNECH ... greatly improved so was clearly tied to DIPNECH ... 65 and I don’t expect to die from DIPNECH
@rogo, we share a few similarities. I've also been incorrectly diagnosed with asthma for over 30...
https://connect.mayoclinic.org/comment/1268878/
DIPNECH was suspected by the surgeon ... DIPNECH was a positive finding consisting ... my area who is trained in treating DIPNECH
@gig666 How did your PET scan turn out? Was it a DOTATATE scan specifically for NETs?...
https://connect.mayoclinic.org/comment/1033637/
MIGHT YOU HAVE DIPNECH? ... I also have DIPNECH which is an even ... that makes me wonder if you also have DIPNECH ... That is another sign of DIPNECH. ... couple hundred documented cases of DIPNECH
Ps- I was 74 when I had my right middle lobe removed. Although my tumor was...
https://connect.mayoclinic.org/comment/1255524/
I also have DIPNECH, but at 16 mos post
Hi @californiazebra, This is my firs post here, but my diagnosis and treatment is very similar...
https://connect.mayoclinic.org/comment/1071013/
octreotide during the procedure, but my DIPNECH
I was diagnosed with DIPNECH in November 2024 after a segmental left lung resection for 3...
https://connect.mayoclinic.org/comment/1250339/
I was diagnosed with DIPNECH in November
I was diagnosed with DIPNECH at National Jewish Health (NJH) 3/23. I've been coughing and being...
https://connect.mayoclinic.org/comment/906680/
I was diagnosed with DIPNECH at National ... neuroendocrine cancer similar in pathology to DIPNECH
@spaztwobe I feel your frustration. It took 12 years to correctly diagnose my lung NETs and...
https://connect.mayoclinic.org/comment/1315349/
correctly diagnose my lung NETs and DIPNECH ... not familiar with it all especially DIPNECH
Hi - some people do have a chronic cough with DIPNECH. I do not have a...
https://connect.mayoclinic.org/comment/1250753/
people do have a chronic cough with DIPNECH ... That’s when they also diagnosed DIPNECH ... There are people with DIPNECH who have
AMD, As you like know, diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is an extremely rare...
https://connect.mayoclinic.org/comment/661597/
pulmonary neuroendocrine cell hyperplasia (DIPNECH ... anyone else has direct experience with DIPNECH
Hello @grec, I'm sure you have a lot of questions about this new diagnosis. On Connect,...
https://connect.mayoclinic.org/comment/1048387/
Connect, we have several members with DIPNECH
It seems my first lobectomy 6 years ago was dipnech related nets, my second lobectomy in...
https://connect.mayoclinic.org/comment/1229468/
my first lobectomy 6 years ago was dipnech
I have been diagnosed with a VERY rare lung disease called DIPNECH. Saw the expert at...
https://connect.mayoclinic.org/comment/1162603/
with a VERY rare lung disease called DIPNECH
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