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181 total results
Comments (160)
Welcome to Connect @jstpeachey! I know I shouldn’t but I just have to use your @name...
https://connect.mayoclinic.org/comment/889456/
countrygirlusa had an auto transplant for AL ... Amyloidosis which is a ‘cousin’ of
I started the same way , I think you should get a kidney biopsy to play...
https://connect.mayoclinic.org/comment/1478886/
I had one and they found AMYLOIDOSIS ... and I have type AL .......
Good afternoon, I had 16k in my urine (protein). So I was instructed by my general...
https://connect.mayoclinic.org/comment/1480505/
a kidney biopsy and they detected AMYLOIDOSIS ... AL.
Cardiomyopathy can lead to a cough and mucus buildup in the throat due to fluid backing...
https://connect.mayoclinic.org/comment/1448239/
Amyloidosis (AL or ATTR).
Hello @gala75, Welcome to Connect. I know it's difficult to be in so much pain and...
https://connect.mayoclinic.org/comment/768054/
@oldkarl has discussed amyloidosis in ... Hereditary ATTR Amyloidosis Testing ... www.hattrguide.com/diagnosing-hattr-amyloidosis ... /
Amyloidosis Foundation
— http: ... //amyloidosis.org/facts/al/
Diagnosis
@feb ... Kathy, sounds to me that you have what is known by a bunch of...
https://connect.mayoclinic.org/comment/685009/
of different names besides Finnish Amyloidosis ... , Anemia, Platelet 4, skin lesions al ... especially, the existence of the GSN - Amyloidosis
Wow, y’all are so inspiring. I was Diagnosed with Sytemic Amyloidosis AL. It is not a...
https://connect.mayoclinic.org/comment/1058433/
I was Diagnosed with Sytemic Amyloidosis ... AL.
Thank you. I have been educating myself daily on AL and its affect on the body...
https://connect.mayoclinic.org/comment/88320/
have been educating myself daily on AL ... Sherry was diagnosed with AL back in ... We later found out it was Amyloidosis ... AL confirmed by kidney and bone marrow
@sueinoregon Keep plugging Sue. I am also from Oregon, (Lincoln County) Sounds to me like you...
https://connect.mayoclinic.org/comment/215257/
I could easily guess some form of Amyloidosis ... Chain such as Crohn's, Lupus, AL ... some wonderful videos on diagnosis of Amyloidosis
@grokking LA Sorry to hear about what you have, but don't be too upset. Truth is,...
https://connect.mayoclinic.org/comment/194230/
Truth is, half or more of folks with AL ... available from Mayo, NIH, Alnylam, Boston Amyloidosis ... at https://www.bit.Ly/1w7j4j8 "Amyloidosis ... So with systemic AL of any sort, the ... about 10 years old, and expensive, is Amyloidosis
for @micheledeville When I went to to Mayo-AZ, things were very different. I went there having...
https://connect.mayoclinic.org/comment/95461/
to learn as much as I could about amyloidosis ... Rochester that said "We cannot rule out AL ... (light chain) amyloidosis, Gelsolin ... other systemic, primary, familiar" amyloidosis
Hopefully, you can get treatment quickly. My treatment has improved the AL Almyloidosis but my gfr...
https://connect.mayoclinic.org/comment/1269485/
My treatment has improved the AL Almyloidosis
Lori, Thank you for the article, and for your inquiry also I am still uncertain as...
https://connect.mayoclinic.org/comment/775063/
The wild type and AL cardiac amyloidosis
How to decide which Mayo clinic to visit with several comorbidities ( Lymphoma, amyloidosis- cardiac TTRw...
https://connect.mayoclinic.org/comment/769929/
several comorbidities ( Lymphoma, amyloidosis ... - cardiac TTRw & AL, pancreatic
Thank you very much I will re read the information The last diagnosis from the oncologist...
https://connect.mayoclinic.org/comment/748997/
20mg each day, along with cardiac amyloidosis ... with a smaller concomitant amount of AL
After receiving a chemo treatment last February, he had an infusion reaction that required a 3...
https://connect.mayoclinic.org/comment/645353/
monitored
He has wild type cardiac amyloidosis ... with a small component of AL and is
I was just diagnosed with systemic amyloidosis al I start chemo 4-8-24 am scared. They said...
https://connect.mayoclinic.org/comment/1042422/
I was just diagnosed with systemic amyloidosis ... al
I start chemo 4-8-24 am scared.
You are so right!!! I found out about a year ago that I have wild type...
https://connect.mayoclinic.org/comment/986909/
year ago that I have wild type ATTR ( Amyloidosis ... out that my 71 year old brother has ALS
Yes. The physicians are looking for the type of Amyloid my husband has. He was diagnosed...
https://connect.mayoclinic.org/comment/910069/
He was diagnosed with Cardiac Amyloidosis ... Now they wznt to know if he has the AL
For a patient with MZL also with wtttr and AL cardiac amyloidosis in persistent Afib and...
https://connect.mayoclinic.org/comment/845254/
patient with MZL also with wtttr and AL ... cardiac amyloidosis in persistent Afib
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