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177 total results
Comments (156)
Hello @gala75, Welcome to Connect. I know it's difficult to be in so much pain and...
https://connect.mayoclinic.org/comment/768054/
@oldkarl has discussed amyloidosis in ... Hereditary ATTR Amyloidosis Testing ... www.hattrguide.com/diagnosing-hattr-amyloidosis ... / Amyloidosis Foundation — http: ... //amyloidosis.org/facts/al/ Diagnosis
Discussion: Amyloidosis and Polyneuropathy?
Support Group: Autoimmune Diseases
Posted: Nov 1, 2022
@feb ... Kathy, sounds to me that you have what is known by a bunch of...
https://connect.mayoclinic.org/comment/685009/
of different names besides Finnish Amyloidosis ... , Anemia, Platelet 4, skin lesions al ... especially, the existence of the GSN - Amyloidosis
Discussion: Chest and upper back pain with bronchiectasis and pseudomonas
Support Group: MAC & Bronchiectasis
Posted: Feb 27, 2022
Thank you. I have been educating myself daily on AL and its affect on the body...
https://connect.mayoclinic.org/comment/88320/
have been educating myself daily on AL ... Sherry was diagnosed with AL back in ... We later found out it was Amyloidosis ... AL confirmed by kidney and bone marrow
Discussion: Diagnosed with AL Amyloidosis. What can I expect?
Support Group: Blood Cancers & Disorders
Posted: Mar 16, 2019
@sueinoregon Keep plugging Sue. I am also from Oregon, (Lincoln County) Sounds to me like you...
https://connect.mayoclinic.org/comment/215257/
I could easily guess some form of Amyloidosis ... Chain such as Crohn's, Lupus, AL ... some wonderful videos on diagnosis of Amyloidosis
Discussion: New Diagnosis of MAC/MAI & I'm scared
Support Group: MAC & Bronchiectasis
Posted: Sep 10, 2018
@grokking LA Sorry to hear about what you have, but don't be too upset. Truth is,...
https://connect.mayoclinic.org/comment/194230/
Truth is, half or more of folks with AL ... available from Mayo, NIH, Alnylam, Boston Amyloidosis ... at https://www.bit.Ly/1w7j4j8 "Amyloidosis ... So with systemic AL of any sort, the ... about 10 years old, and expensive, is Amyloidosis
Discussion: Zero appetite, not getting adequate nutrition
Support Group: Autoimmune Diseases
Posted: Mar 30, 2018
for @micheledeville When I went to to Mayo-AZ, things were very different. I went there having...
https://connect.mayoclinic.org/comment/95461/
to learn as much as I could about amyloidosis ... Rochester that said "We cannot rule out AL ... (light chain) amyloidosis, Gelsolin ... other systemic, primary, familiar" amyloidosis
Discussion: Chronic Pain members - Welcome, please introduce yourself
Support Group: Chronic Pain
Posted: May 26, 2017
You are so right!!! I found out about a year ago that I have wild type...
https://connect.mayoclinic.org/comment/986909/
year ago that I have wild type ATTR ( Amyloidosis ... out that my 71 year old brother has ALS
Discussion: Chronic pain and upper abdomen? Please see added messages!!!
Support Group: Chronic Pain
Posted: Dec 26, 2023
Yes. The physicians are looking for the type of Amyloid my husband has. He was diagnosed...
https://connect.mayoclinic.org/comment/910069/
He was diagnosed with Cardiac Amyloidosis ... Now they wznt to know if he has the AL
Discussion: Heart Biopsy
Support Group: Heart & Blood Health
Posted: Aug 9, 2023
@lily2013 Hi, Lily.Your situation is very interesting, but I believe there is hope of some understanding,...
https://connect.mayoclinic.org/comment/182119/
disorders such as hATTRwt (hereditary Amyloidosis ... Hereditary because it is in the blood line, Amyloidosis ... with Lupus, Crohn's, Apolipoprotein, AL ... but it is still the gold standard, "Amyloidosis
Discussion: Facial Swelling - no diagnosis
Support Group: Autoimmune Diseases
Posted: Jan 23, 2018