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Comments (2,423)

Hi @tsc, thank you that's very helpful. May I ask how you knew when you developed...

https://connect.mayoclinic.org/comment/1183277/

ask how you knew when you developed GCA

Discussion: Precursor symptoms to PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 2, 2024

Hi Jen, it is a bitch too, haha. I’m possibly starting the Actemra and will be...

https://connect.mayoclinic.org/comment/1176801/

I have symptoms of GCA and hope Actemra

Discussion: I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 20, 2024

I met with Dr Abril at Mayo today, he told me that by going off prednisone...

https://connect.mayoclinic.org/comment/1023271/

going off prednisone I will have the GCA

Discussion: Upcoming surgery prevents prednisone use

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 26, 2024

Welcome @nancy334, Sorry to hear you are still struggling with PMR after 3 and half years....

https://connect.mayoclinic.org/comment/944762/

find helpful: --- Rinvoq for PMR and GCA

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 9, 2023

Hi @macadoo, I had fatigue with PMR and GCA, and it was caused by anemia, which...

https://connect.mayoclinic.org/comment/735689/

macadoo, I had fatigue with PMR and GCA

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 9, 2022

Thank you for your post, all of my symptoms of PMR and GCA came after my...

https://connect.mayoclinic.org/comment/754251/

post, all of my symptoms of PMR and GCA

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 26, 2022

I started 60mg prednisone Jan 2025, and monthly infusions of Actemra since February. The point of...

https://connect.mayoclinic.org/comment/1346036/

The point of Actemra is to reduce GCA

Discussion: Any experience with Actemra - for my mom who is 90 years old

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 11 4:16pm

First go-round w PMR/GCA my doctor put me on 80 mg of omeprazole to protect my...

https://connect.mayoclinic.org/comment/1346813/

First go-round w PMR/GCA my doctor put

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 12 6:58pm

I think a lot of people are able to stop Actemra and still have a "sustained...

https://connect.mayoclinic.org/comment/1343986/

lucky if they can get Actemra and for GCA

Discussion: Infusion vs injection of tocilizumab (Actmera)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8 7:01pm

I don't have GCA to my knowledge but certainly PMR. My vision is slightly blurred but...

https://connect.mayoclinic.org/comment/1343528/

I don't have GCA to my knowledge

Discussion: PMR Remission

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8 7:17am

I started methoprednosone at 48 mg daily when first diagnosed with pmr/gca. Then would reduce 1...

https://connect.mayoclinic.org/comment/1351832/

daily when first diagnosed with pmr/gca

Discussion: Headaches from Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 3 days ago

I received Actemra for PMR 4 years ago.. Actemra was requested and approved. Actemra works very...

https://connect.mayoclinic.org/comment/864851/

other autoimmune disorders but not GCA ... tocilizumab in Giant Cell Arteritis (GCA ... PMR is mediated by IL-6 mimicking GCA ... recommendations for treatment for GCA

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 22, 2023

I also had low grade fever, night sweats, scalp tenderness, and frontal headaches. No jaw issues...

https://connect.mayoclinic.org/comment/1304964/

Doc doesn't think I have GCA.

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15 5:45pm

I am on day 29 of a 60mg Prednisone Rx, trying 55 in two days. I...

https://connect.mayoclinic.org/comment/1307776/

adequately educated on the urgency of a GCA