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Comments (2,264)

The cyst removal would not have shown Sjogren's. The lip biopsy takes a sample of the...

https://connect.mayoclinic.org/comment/1272622/

cyst removal would not have shown Sjogren ... If your bloodwork indicates Sjogren&

Discussion: Ana positive

Support Group: Autoimmune Diseases

Posted: Apr 2 12:24pm

I have had Sjogrens for over 25 years. In 2017 I was diagnosed with (ILD) Lymphocytic...

https://connect.mayoclinic.org/comment/1196138/

I have had Sjogrens for over 25 years ... do take hydroxychloriquine for the Sjogrens ... told me could be contributed to the Sjogrens

Discussion: Sjogrens and Lung issues

Support Group: Autoimmune Diseases

Posted: Dec 23, 2024

I was over on the High Coronary Calcium Score: How do others feel emotionally? thread for...

https://connect.mayoclinic.org/comment/984981/

makes no sense given that I also have Sjogrens

Discussion: Extremely high calcium score at 42 - is there any positive here??

Support Group: Heart & Blood Health

Posted: Dec 22, 2023

I was prescribed pilocarpine- 2 to 3 tablets daily-for extreme dry mouth. It worked very well,...

https://connect.mayoclinic.org/comment/1020111/

as you learn about All the Effects Sjogren

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 21, 2024

Having a rare auto immune disease is indeed a conundrum. Many doctors will have no idea...

https://connect.mayoclinic.org/comment/1229799/

Because you have a Sjogren’s and RA

Discussion: Research for rare autoimmune diseases

Support Group: Autoimmune Diseases

Posted: Feb 5 7:36am

I am sorry to hear you are struggling with diagnosis. As I mentioned in my original...

https://connect.mayoclinic.org/comment/1067150/

antibody tests, I tested positive for the Sjogren ... option in med for treatment of my Sjogren

Discussion: Living with LPSVS (long post-COVID vaccination syndrome)

Support Group: Post-COVID Recovery & COVID-19

Posted: May 13, 2024

I too have this. As a result of SFN caused by Sjogren's Disease. According to my...

https://connect.mayoclinic.org/comment/1235191/

As a result of SFN caused by Sjogren

Discussion: Is loss of balance your primary complaint with neuropathy?

Support Group: Neuropathy

Posted: Feb 12 10:47am

suetex,, THANK YOU!!!, MY Rheumatologist did not want me to have the IVIG and the Retuximab,...

https://connect.mayoclinic.org/comment/1148425/

Retuximab, she concerned because my Sjogren

Discussion: Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's

Support Group: Autoimmune Diseases

Posted: Sep 27, 2024

Ive suffered from sjograns since 1989. Many things affected me with sj. But haven't had a...

https://connect.mayoclinic.org/comment/1216672/

Ive suffered from sjograns since 1989

Discussion: Idiopathic Autoimmune Treatment For Symptom

Support Group: Autoimmune Diseases

Posted: Jan 19 2:22pm

I have after much nagging on my part, finally been given the diagnosis of SFN caused...

https://connect.mayoclinic.org/comment/1215681/

given the diagnosis of SFN caused by Sjogren

Discussion: Idiopathic Autoimmune Treatment For Symptom

Support Group: Autoimmune Diseases

Posted: Jan 18 12:02pm

@hamzaw the ANA with reflex panel may be different from the testing you have had. NOt...

https://connect.mayoclinic.org/comment/1218462/

Antibody Sm/RNP Antibody RNP Antibody Sjogren

Discussion: My Autoimmune Journey: From 1:5120 to 1:320 ANA

Support Group: Autoimmune Diseases

Posted: Jan 21 6:44pm

Diagnosed with MCTD several years ago after PCP finally ordered those ANA Titer tests etc ....

https://connect.mayoclinic.org/comment/1204002/

Sjogrens - sinuses etc not fun .The

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Jan 4 6:46pm

This is from the same writer of the last comment. The details are as follows. After...

https://connect.mayoclinic.org/comment/880033/

lack of saliva, it is very similar to Sjogren

Discussion: Fluoroquinolone toxicity

Support Group: Neuropathy

Posted: Jun 17, 2023

I just spent an hour writing about my 3 1/2 year experience nightmare of Levaquin. From...

https://connect.mayoclinic.org/comment/880010/

visual changes, and all the symptoms of Sjogren

Discussion: Fluoroquinolone toxicity

Support Group: Neuropathy

Posted: Jun 17, 2023

@j77 - You might find the discussion started by @penn helpful. -- Managing Small Fiber Neuropathy,...

https://connect.mayoclinic.org/comment/1249770/

- Managing Small Fiber Neuropathy, Sjogren ... /discussion/small-fiber-neuropathy-sojgrens-hashimotos

Discussion: Sjogren's Question

Support Group: Autoimmune Diseases

Posted: Mar 3 6:42pm

I agree that there are only a few doctors. Unfortunately, the doctors only recognize the symptom...

https://connect.mayoclinic.org/comment/1252668/

inflammatory systemic manifestations of Sjogren

Discussion: Sjogren's Question

Support Group: Autoimmune Diseases

Posted: Mar 7 2:44pm

I have gastroparesis, sjogrens and raynauds. I am also gluten and dairy intolerant it makes it...

https://connect.mayoclinic.org/comment/1276690/

I have gastroparesis, sjogrens and raynauds

Discussion: Sjogerns and gastroparesis

Support Group: Autoimmune Diseases

Posted: Apr 7 7:55pm

I've been taking it for about 6 years (for autoimmune diseases such as Crohn's, PMR and...

https://connect.mayoclinic.org/comment/1277847/

diseases such as Crohn's, PMR and Sjogren

Discussion: Please let me know if someone is using LDN

Support Group: Autoimmune Diseases

Posted: Apr 9 11:46am

Sjogren's syndrome and Ehlers-Danlos syndrome both popped into my head but I don't really know. https://www.mayoclinic.org/diseases-conditions/sjogrens-syndrome/symptoms-causes/syc-20353216...

https://connect.mayoclinic.org/comment/1272474/

Sjogren's syndrome and Ehlers-Danlos ... www.mayoclinic.org/diseases-conditions/sjogrens-syndrome

Discussion: Desperate for Advice

Support Group: Autoimmune Diseases

Posted: Apr 2 10:13am

My heart goes out to you. I have experienced the exact, identical thing with regard to...

https://connect.mayoclinic.org/comment/1273787/

I have lupus and Sjogrens and my Sjogrens

Discussion: Desperate for Advice

Support Group: Autoimmune Diseases

Posted: Apr 4 3:14am