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Comments (2,335)

I need something. I’m so tired of being unwell. I have severe digestive motility and it’s...

https://connect.mayoclinic.org/comment/1259117/

I’ve been bordering Sgogrens since 2017

Discussion: Possible Sjogrens Disease

Support Group: Autoimmune Diseases

Posted: Mar 16 6:39am

I've lost count of how many autoimmune diseases I have, not kidding. Maybe 20? I try...

https://connect.mayoclinic.org/comment/1258244/

Plus the usual ones like Lupus , Sjögrens

Discussion: How many autoimmune diseases can you have?

Support Group: Autoimmune Diseases

Posted: Mar 15 1:55am

Does anyone use medical marijuana for Sjögrens? I see in Illinois it is one of the...

https://connect.mayoclinic.org/comment/53245/

Does anyone use medical marijuana for Sjögrens

Discussion: Burning Mouth Syndrome. I have it very severe.

Support Group: Skin Health

Posted: Mar 30, 2019

@samflower I’m sorry you are dealing with this and I feel for you. If it was...

https://connect.mayoclinic.org/comment/1259160/

www.mayoclinic.org/diseases-conditions/sjogrens-syndrome

Discussion: Pulmonologist says I should be dead by now

Support Group: Autoimmune Diseases

Posted: Mar 16 7:47am

Thank you! Took some searching but I did find someone who specializes in sjogrens. See her...

https://connect.mayoclinic.org/comment/1259573/

did find someone who specializes in sjogrens

Discussion: Possible Sjogrens Disease

Support Group: Autoimmune Diseases

Posted: Mar 16 1:18pm

I had a biopsy from an ENT they take four glands out of your mouth. Second...

https://connect.mayoclinic.org/comment/1259017/

Second test an eye doctor test for Sjogrens ... I was positive for Sjogrens.

Discussion: Possible Sjogrens Disease

Support Group: Autoimmune Diseases

Posted: Mar 15 10:46pm

I have MCTD sjogren's, raynauds syndrome, photosensitive skin, fibromylygia, depression and anxiety.

https://connect.mayoclinic.org/comment/56443/

I have MCTD sjogren's, raynauds syndrome

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Aug 1, 2012

Yes for the IVIG, helps a little. I have small fiber neuropathy, Sojgrens. severe, severer pain...

https://connect.mayoclinic.org/comment/1233274/

I have small fiber neuropathy, Sojgrens

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Feb 9 7:39pm

If you do the Quest ANA lab with titer and reflex, you will get ICAP's (International...

https://connect.mayoclinic.org/comment/1230263/

polymyositis overlap, MCTD, SLE and Sjogren

Discussion: My Autoimmune Journey: From 1:5120 to 1:320 ANA

Support Group: Autoimmune Diseases

Posted: Feb 5 5:15pm

Plaquenil Helped me a lot I also use biotene mouthwash, dry mouth spray, and toothpaste. All...

https://connect.mayoclinic.org/comment/1169532/

connective tissue disease with mainly sjogrens

Discussion: Burning mouth syndrome (BMS): Is this an autoimmune disease?

Support Group: Autoimmune Diseases

Posted: Nov 7, 2024

Hi I have lupus and sojgrens the Dr wants me to do infusion the medication names...

https://connect.mayoclinic.org/comment/1224179/

Hi I have lupus and sojgrens the Dr

Discussion: I have S.F.N. and Sojgrens pain moving bowels

Support Group: Autoimmune Diseases

Posted: Jan 28 7:05pm

No, my understanding is that it is harder to get into than Hopkins. What makes you...

https://connect.mayoclinic.org/comment/1238946/

Hopkins Sjogrens center?

Discussion: Myasthenia Gravis

Support Group: Autoimmune Diseases

Posted: Feb 17 9:03am

I was diagnosed with Sjorgens syndrome 14 yrs ago. I was also diagnosed with St4 NH...

https://connect.mayoclinic.org/comment/1239913/

I was diagnosed with Sjorgens syndrome ... now a medical correlation between Sjorgens ... sharing this with others that have Sjorgens

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 18 12:15pm

Thank you for all your hard work and this helpful information I have had LC for...

https://connect.mayoclinic.org/comment/1311164/

upticks in the post Covid auto immune Sjogren

Discussion: Histamine Intolorance

Support Group: Post-COVID Recovery & COVID-19

Posted: May 23 12:32pm

I'm sure by now that you have heard that your temp. is regulated by the automatic...

https://connect.mayoclinic.org/comment/1307675/

My was started by Sjogren's which ... a rheumatologist that knows about Sjogren ... The only treatment for Sjogren's

Discussion: Cannot Regulate Body Temperature

Support Group: Autoimmune Diseases

Posted: May 19 11:04am

So sorry for all you are going through. Both my daughter and I had symptoms very...

https://connect.mayoclinic.org/comment/1313558/

both tested positive for an “early Sjogren ... info about what we learned: “Your Sjogren ... into making a definitive diagnosis of Sjogren ... both ended up being diagnosed with Sjogren ... Sjogren’s and dysautonomia foundation

Discussion: Autoimmune - Advice?

Support Group: Autoimmune Diseases

Posted: May 26 5:07pm

I didn’t take the appointment for the one 200 miles away. I stayed with the Duke...

https://connect.mayoclinic.org/comment/1305606/

out some things, including RA and sjogrens

Discussion: Hard Time Getting an Appointment with a Rheumatologist

Support Group: Autoimmune Diseases

Posted: May 16 3:05pm

I'm really sorry you're suffering so much and you've already got some good advice here. Number...

https://connect.mayoclinic.org/comment/1200226/

I also have a diagnosis of primary Sjogren