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Comments (1,973)

Hi @jba, If you would like to connect with others who have RA, we do have...

https://connect.mayoclinic.org/comment/651307/

also is a link to a discussion on Sjogrens ... /connect.mayoclinic.org/discussion/sjogrens

Discussion: Anyone have voice and vocal cord issues with rheumatoid arthritis?

Support Group: Autoimmune Diseases

Posted: Nov 4, 2021

I have many of these symptoms as part of Mixed Connective Tissue Disease, which is a...

https://connect.mayoclinic.org/comment/650056/

Sjogrens affects eyes and mouth, mainly

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 31, 2021

Hello @jba! I was diagnosed with Primary Biliary Cholangitis and stage 3 liver disease in the...

https://connect.mayoclinic.org/comment/649814/

I also have Sjogren’s and Raynaud’s

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 30, 2021

Hi Loke @loke, Welcome to Connect. Connect is a great safe place to meet other members...

https://connect.mayoclinic.org/comment/649702/

discussion/fibromyalgia-20d1d0/ -- Sjogren ... /connect.mayoclinic.org/discussion/sjogrens

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 30, 2021

Hi Lynnie, I have refused the lip biopsy as I don't need more mouth sores. My...

https://connect.mayoclinic.org/comment/649698/

Since I understand that Sjogren'

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 30, 2021

Did you get a lip biopsy as well to test for Sjogrens?

https://connect.mayoclinic.org/comment/649486/

get a lip biopsy as well to test for Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 29, 2021

Sjogrens can be present without a definite positive diagnosis after labs. Sjogrens can present in a...

https://connect.mayoclinic.org/comment/636273/

Sjogrens can be present without a definite ... Sjogrens can present in a multitude ... but most often a formal diagnosis of Sjögren

Discussion: At a loss, multiple consultations still no answer...any idea?

Support Group: Autoimmune Diseases

Posted: Sep 17, 2021

Rheumatologist thought the swelling was due to my Sjogrens flare but no invasive tests were recommended.

https://connect.mayoclinic.org/comment/608714/

thought the swelling was due to my Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jun 12, 2021

I hate that sledgehammer! I found out the hard way that I wasn’t drinking enough water....

https://connect.mayoclinic.org/comment/648971/

I have neuropathy from Sjögren’s.

Discussion: Gabapentin

Support Group: Neuropathy

Posted: Oct 28, 2021

I have dry eye from Sjogrens autoimmune and use Klarity C eye drops compounded by Imprimis...

https://connect.mayoclinic.org/comment/648580/

I have dry eye from Sjogrens autoimmune

Discussion: How do you deal with dry eyes?

Support Group: Eye Conditions

Posted: Oct 26, 2021

I have neuropathy from Sjögren’s in my feet and it comes and goes. I have the...

https://connect.mayoclinic.org/comment/647503/

I have neuropathy from Sjögren’s in

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: Oct 23, 2021

Hi @burlingtongirl I’m glad you finally got a diagnosis. I’m my case, Sjögren’s syndrome has been...

https://connect.mayoclinic.org/comment/855668/

I’m my case, Sjögren’s syndrome has

Discussion: Intermittent right side facial swelling

Support Group: Autoimmune Diseases

Posted: May 7, 2023

Hi @earoll99 , Thank you for your message! I have been tested for Lupus and that...

https://connect.mayoclinic.org/comment/856629/

Lupus and that was ruled out and also Sjogren

Discussion: Intermittent right side facial swelling

Support Group: Autoimmune Diseases

Posted: May 8, 2023

@shelleyas, I add my welcome. You may wish to also connect with other members talking about...

https://connect.mayoclinic.org/comment/337980/

My mom has Sjrogren's and likely

Discussion: Severe brain fog with possible MCTD

Support Group: Autoimmune Diseases

Posted: Mar 31, 2021

Hi. In the past year I’ve learned my burning mouth syndrome was a misdiagnosis. I have...

https://connect.mayoclinic.org/comment/849617/

I have Sjogrens.

Discussion: Burning Mouth Syndrome (BMS): Anyone found any relief?

Support Group: Skin Health

Posted: Apr 26, 2023

Yes acupuncture has helped me. I have auto-immune Lupus/Sjogrens and have flare ups of wide spread...

https://connect.mayoclinic.org/comment/864786/

I have auto-immune Lupus/Sjogrens and

Discussion: Has anyone tried acupuncture for neuropathy?

Support Group: Neuropathy

Posted: May 22, 2023

Hi @fightingfibro0505 I'm so sorry to hear what you're going through. Have you been to a...

https://connect.mayoclinic.org/comment/864829/

POTS (autonomic dysfunction) and/or Sjögren

Discussion: Health seems to be deteriorating: CSS? Fibro related?

Support Group: Chronic Pain

Posted: May 22, 2023

@bustrbrwn22, I can’t imagine your struggles, but as long as you can remain positive that’s the...

https://connect.mayoclinic.org/comment/631421/

researching how other institutions treat Sjogren

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Aug 30, 2021

Hello @jeanniene. I have “extraglandular” Sjogren’s which erupted dramatically a few months after my liver transplant...

https://connect.mayoclinic.org/comment/629329/

I have “extraglandular” Sjogren’s which ... Sjogren’s Advocate is a good website ... more about the systemic nature of Sjogren

Discussion: Organ pain from auto immune?

Support Group: Autoimmune Diseases

Posted: Aug 23, 2021

Have had RA &Sjogren’s since 2003. On MTX and lo dose PRED since then. Follicular lymphoma...

https://connect.mayoclinic.org/comment/629213/

Have had RA &Sjogren’s since 2003

Discussion: Bronchiolitis obliterans aka Popcorn Lung

Support Group: Lung Health

Posted: Aug 23, 2021