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Comments (964)
Welcome @simina1234, When I was first diagnosed with small fiber PN I looked into the infrared...
simina1234, When I was first diagnosed with small ... fiber PN I looked into the infrared ... to learn what others have found helpful ... : What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Neuropathy
Posted: Dec 16, 2021
Good evening Chas, @wideawakechas, Yes, my treatments are a form of UVB light delivered to the...
I have episodes of neuropathic itch ... as one element of SFN (small fiber neuropathy ... ) The light treatment helps just like ... sitting on the beach helps. ... Is that what keeps you up all night?
Support Group: Neuropathy
Posted: Nov 25, 2021
My neurologist told me their are no medications that will help with numbness. Prior to be...
their are no medications that will help ... Prior to be diagnosed with idiopathic small ... fiber PN, my PCP prescribed gabapentin ... numbness symptom you might want to read what ... Neuropathy: Numbness only, no pain:
Support Group: Neuropathy
Posted: Oct 19, 2021
Hi Lauren @laurenkay24, I'm not sure if you have had a chance to read through some...
following discussion but it may be helpful ... to learn what has helped other members ... I also have idiopathic small fiber PN ... Journey Stories: What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Chronic Pain
Posted: Oct 10, 2021
Good evening @richardrr. @johnbishop has invited me to get to know you and your neuropathy pain...
invited me to get to know you and your neuropathy ... , John Bishop has no pain with his small ... fiber peripheral neuropathy. ... Here is what has been helping me get
Support Group: Autoimmune Diseases
Posted: Sep 26, 2021
Hello @madgemgunia, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
can help is learning what options you ... / -- Neuropathy Pain at Night: What ... helps? ... Fiber Neuropathy: Book Recommendation ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy-book
Support Group: Neuropathy
Posted: Sep 22, 2021
@joannemm30809 Oh my dear, please don't apologize. You have every right to be frustrated given your...
diagnoses that came along such as small ... fiber neuropathy. ... tested you via skin punch biopsy for small ... fiber neuropathy? ... be educated and know there may be help
Hello @nlangmack, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
only have numbness with my idiopathic small ... fiber neuropathy. ... of discussions that could have some helpful ... to a lot of your symptoms so may be helpful ... -- What happens when you have a disease
Support Group: Neuropathy
Posted: Aug 23, 2021
Good morning @jgraber and welcome to Mayo Connect. We’re a group of patients and patient’s families...
We try to help each other with information ... and resources and what we have learned ... is a link to another discussion on small ... fiber neuropathy that may interest
Support Group: Neuropathy
Posted: Aug 22, 2021
Hello @neverforsaken, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
No matter what type of neuropathy you ... I have small fiber peripheral neuropathy ... What has helped me is to learn as much ... : What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Neuropathy
Posted: Jul 25, 2021
Hi Rick @sam31, Welcome to Connect. I went for 20+ years with the numbness starting in...
: What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... and was diagnosed with idiopathic small ... fiber peripheral neuropathy. ... I posted my story and what has helped
Support Group: Neuropathy
Posted: Jul 5, 2021
Hello Dave @daveage68, I would like to add my welcome to Connect along with @colleenyoung and...
I have small fiber peripheral neuropathy ... What helped me with my neuropathy before ... helped them. ... Journey Stories: What's Yours? ... What helped me was having an exercise
Support Group: Neuropathy
Posted: Jun 13, 2021
Hello @inamae, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
hear your neurologist was not much help ... Fiber Neuropathy turning in to Large ... Fiber Neuropathy: https://connect.mayoclinic.org ... /discussion/small-fiber-neuropathy-turning-in-to-large-fiber-neuropathy ... fiber peripheral neuropathy I too was
Support Group: Neuropathy
Posted: Jun 12, 2021
@terrynelson22, Thanks for sharing a little more about your small fiber neuropathy and what you've found...
for sharing a little more about your small ... fiber neuropathy and what you've ... has helped them. ... Member Neuropathy Journey Stories: What ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Neuropathy
Posted: Jun 11, 2021
Hello @terrynelson22, Welcome to Connect. Thanks for sharing your small fiber neuropathy symptoms. Can you share...
Thanks for sharing your small fiber ... neuropathy symptoms. ... Can you share what types of treatments ... you are using or have tried to help
Support Group: Neuropathy
Posted: Jun 10, 2021
Hello @daviddemello, Welcome to Connect. Thank you for sharing your experience and journey with Axonal Peripheral...
getting diagnosed with idiopathic small ... fiber peripheral neuropathy. ... Journey Stories: What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... does-anyone-find-that-a-brand-of-shoes-helps-your-foot-neuropathy
Support Group: Neuropathy
Posted: Jun 8, 2021
Good afternoon @millis. Welcome to Mayo Clinic Connect. As mentors, we are a group of patients,...
simple test to determine if you have small ... fiber neuropathy (SFN). ... neurologist says he doesn't know what ... John knows a lot about neuropathy... ... It would be helpful if you could respond
Support Group: Neuropathy
Posted: May 22, 2021
Good morning @corkhill1. May I add my welcome to Connect and an opportunity to understand your...
understand your symptoms and share what ... in my journey might be helpful. ... Have you been diagnosed with SFN, small ... fiber neuropathy? ... concerns, The other helpful activity
Posted: May 16, 2021
Thanks for starting this discussion Lacy @lacy2. The information on the Foundation for Peripheral Neuropathy website...
information on the Foundation for Peripheral Neuropathy ... www.foundationforpn.org/) is really helpful ... Another good site is Neuropathy Commons ... I have small fiber peripheral neuropathy ... That and each of us are different so what
Hi Jake @jakedduck1 - I can't say whether it's true or not true but my feeling...
a little on my own symptoms for my small ... fiber peripheral neuropathy. ... fiber PN. ... Terry Wahls helped her Multiple Sclerosis ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Neuropathy
Posted: Feb 19, 2021