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109 total results

Comments (100)

Hello. My Nero doc has put me on Gabapentin and Baclofen ( prob spelled that med...

https://connect.mayoclinic.org/comment/75690/

to anyone yet with our condition (syringomyelia

Discussion: Chiari and syringomyelia with DDD

Support Group: Spine Health

Posted: Nov 22, 2012

Hello Joanne, I posted the one re Daughter ( in twenties) with spinal cysts. . She...

https://connect.mayoclinic.org/comment/646545/

neurologist ,so she learned she has Syringomyelia

Discussion: Spinal cord cysts

Support Group: Spine Health

Posted: Oct 19, 2021

The very best thing you can do is to find yourselves a really good neurosurgeon who...

https://connect.mayoclinic.org/comment/80939/

an MRI scan that the Chair 1. and Syringomyelia

Discussion: Chiari Malformation type 1

Support Group: Brain & Nervous System

Posted: Apr 9, 2017

Hi, I am sorry to hear that you are having so many symptoms of this horrible...

https://connect.mayoclinic.org/comment/80957/

was because by then I had developed Syringomyelia

Discussion: Chiari Malformation type 1

Support Group: Brain & Nervous System

Posted: Jul 30, 2017

@kobefam1103 first and foremost, you are at the best place to have surgery with the best...

https://connect.mayoclinic.org/comment/828775/

decompression surgery for Chiari and Syringomyelia ... stopped the progression of my Chiari and Syringomyelia

Discussion: Upcoming Chiari malformation surgery

Support Group: Brain & Nervous System

Posted: Mar 20, 2023

Hello all, I joined this group in hopes of finding answers to possibly the same condition....

https://connect.mayoclinic.org/comment/70956/

I also have syringomyelia/ cysts in

Discussion: Looking for info or someone with transverse myelitis

Support Group: Brain & Nervous System

Posted: Jan 19, 2019

I felt the same way when I started going to Mayo back in 2005. I live...

https://connect.mayoclinic.org/comment/943060/

I've lived with syringomyelia for

Discussion: Still get worked up

Support Group: Just Want to Talk

Posted: Oct 6, 2023

Today is August 24th. It was four years ago today I was diagnosed with Chiari Malformation...

https://connect.mayoclinic.org/comment/229782/

diagnosed with Chiari Malformation and Syringomyelia

Discussion: Gratitude Discussion Group

Support Group: Just Want to Talk

Posted: Aug 24, 2019

I'm impressed by your understanding and self-awareness. Being young, I'd agree that conserving the use of...

https://connect.mayoclinic.org/comment/767255/

about ASAP.org and having a child with syringomyelia

Discussion: Abuse of Opioids takes away from all the good it can do

Support Group: Chronic Pain

Posted: Oct 30, 2022

@frankthetank112358 Wow & Hello!!! I will start with saying that I think you're right, some of...

https://connect.mayoclinic.org/comment/143171/

www.mayoclinic.org/diseases-conditions/syringomyelia

Discussion: Possible Rare Condition or Just Chronic Pain?

Support Group: Chronic Pain

Posted: Mar 15, 2017

Hello, I am a caregiver for a client who has been diagnosed with syringomyelia. He is...

https://connect.mayoclinic.org/comment/827277/

client who has been diagnosed with syringomyelia ... I am very new to the struggles of syringomyelia

Discussion: Living with Syringomyelia

Support Group: Spine Health

Posted: Mar 16, 2023

Hi, I read your post with interest as I too had this terrible tightness in my...

https://connect.mayoclinic.org/comment/80990/

which showed that I had developed Syringomyelia

Discussion: Chiari Malformation type 1

Support Group: Brain & Nervous System

Posted: Nov 11, 2018

I am trying to find support for my husband- he is 65 and has syringomyelia- he...

https://connect.mayoclinic.org/comment/935186/

support for my husband- he is 65 and has syringomyelia

Discussion: Living with Syringomyelia

Support Group: Spine Health

Posted: Sep 23, 2023

For those exploring Gabapentin, I will just add a bit of my experience with this medication...

https://connect.mayoclinic.org/comment/173449/

dogs with a nerve condition called Syringomyelia

Discussion: Gabapentin use for neuropathy

Support Group: Neuropathy

Posted: Nov 4, 2017

@cwallen9 I was diagnosed with severe ulnar neuropathy in my right hand 9 yrs ago in...

https://connect.mayoclinic.org/comment/270159/

diagnosed with Chiari Malformation and Syringomyelia

Discussion: Responsive doctors at Mayo

Support Group: Neuropathy

Posted: Jul 28, 2019

First and foremost is surgery is NOT a cure. Surgery is done to STOP the progression....

https://connect.mayoclinic.org/comment/1065063/

diagnosed with Chiari Malformation and Syringomyelia

Discussion: Chiari Decompression Surgery Recovery Caregiving

Support Group: Brain & Nervous System

Posted: May 9 7:13pm

I've had a number of trauma injuries over 45 years of life which have resulted in...

https://connect.mayoclinic.org/comment/156108/

addition to Chiari it is suspected I have Syringomyelia

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jul 19, 2017

I just joined Connect. I really know nothing how it works. Was reading some posts &...

https://connect.mayoclinic.org/comment/940023/

Diagnosed 4 days later with Syringomyelia

Discussion: Living with Syringomyelia

Support Group: Spine Health

Posted: Oct 1, 2023

@woundedbear64 I see from a previous post in Living with Syringomyelia that this is one of...

https://connect.mayoclinic.org/comment/942991/

from a previous post in Living with Syringomyelia

Discussion: Still get worked up

Support Group: Just Want to Talk

Posted: Oct 6, 2023

I'm having surgery on Sept 4th and my husband is strongly against it! My headaches aren't...

https://connect.mayoclinic.org/comment/81031/

I think it's from the syrringomyelia

Discussion: Chiari Malformation type 1

Support Group: Brain & Nervous System

Posted: Sep 1, 2019