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199 total results
Comments (187)
My son has been diagnosed with Autoimmune GFAP astrocytopathy at 8 years of age. If you...
the week his bladder & bowels stopped ... longer digesting food and his lungs stopped ... rounds of plasmapheresis, 4 rounds of ivig
Discussion: Relapse after GFAP
Support Group: Autoimmune Diseases
Posted: Oct 16, 2025
I know it’s been a few months, @johannhead, since you posted your questions but I thought...
but I thought I’d chime in with my IVIG ... With IVIG, monthly infusions that lasted ... Switching to weekly SCIG stopped all
Posted: Feb 7, 2023
I just had 5 days of IVIG which was prescribed for CIDP (chronic inflammatory demyelinating polyradiculoneuropathy)....
I just had 5 days of IVIG which was ... people I met there said they had tried stopping ... anyone on this list been treated with IVIG
Support Group: Neuropathy
Posted: May 21, 2022
I already had chronic migraines before my infusions started for IVig. I also received the infusion...
migraines before my infusions started for IVig ... I have been taking Metanx ( had to stop ... very much under control, I had to stop ... as bad as it was before I started ivig ... After all the misery having the IVig
Support Group: Neuropathy
Posted: Apr 28, 2022
Thanks for reaching out to me Colleen! I recently was diagnosed with MG. I am a...
and three months ago my hands just stopped ... steroids which I don’t do well on, IVIG ... an insurance company to support the IVIG
Medicare covers the use of IVIG for demyelinating peripheral neuropathy, and TFL (military) covers any left...
Medicare covers the use of IVIG for ... And then I stopped drinking coffee before ... the first day of the IVIG and it worked
Support Group: Autoimmune Diseases
Posted: Jul 8, 2021
Hi! I have a rapidly progressing autoimmune mediated peripheral neuropathy and have found IVIG totally eliminates...
peripheral neuropathy and have found IVIG ... Unfortunately it hasn't stopped ... being able to work full time with IVIG ... neuropathy had positive results from using IVIG ... familiar with SFN but if you can get IVIG
Support Group: Neuropathy
Posted: Nov 22, 2019
Hi - I am still searching for factors that may have come together to cause what...
Had to stop PT after a couple weeks ... Hospitalized for GBS treatment - 5 days of IVIG ... Getting IVIG every month now as a trial
Support Group: Neuropathy
Posted: Oct 21, 2024
No I still have the problems with my feet, hands and ribs, along with cardiac autonomic...
have the headache as of on day 3 that stopped ... first 5 days when you first start IVIG ... Loading dose is your first dose of IVIG
Support Group: Neuropathy
Posted: Sep 30, 2024
This has been a very interesting discussion for me for several reasons. I was diagnosed with...
on a two-week infusion program with IVIG ... Admittedly, I had stopped singing on
Support Group: Neuropathy
Posted: Sep 21, 2024
I have been on IVIG monthly for 2 years. It was prescribed because of an autoimmune...
I have been on IVIG monthly for 2 years ... understand it from my neurologists, IVIG ... stops further inflammation and damage ... of early peripheral neuropathy has stopped
Support Group: Neuropathy
Posted: Jul 12, 2024
Since you live in Colorado I would recommend you get a referral to doctor Ann’s Louise...
Has she considered a study with IViG ... Build up our immunity with the IVIG ... I took IVIG therapy growing up. ... over a year she had two groups one IVIG ... Sometimes my heart stops at night when
Support Group: Neuropathy
Posted: Oct 15, 2023
Yes I too have had several rounds of IVIG infusions. First round was few years ago...
Yes I too have had several rounds of IVIG ... no difference in my symptoms so I stopped ... neurologist, and he felt I should try IVIG
Support Group: Neuropathy
Posted: Oct 12, 2023