Has anyone had IVIG Infusions for Neuropathy?

So, what you are saying is you don't have the pain and tingling in your legs any longer; but, you now are sleepy, bad headaches and mouth breaking out. Its a great life, isn't it???

Hi @bettyg81pain

Shockwave is a percussive treatment. Think of a Drexel with specific heads. Each head for a different body location. A vibration is sent through your body. There are different levels, so you need not start with the strongest. This can relax the muscle, compressing a nerve and pain is reduced, in theory. My feet flare up with allergy reactions that are more than what is expected. (No one wants to figure out that connection). So, I have Shockwave treatment and my feet reduce to humming, from yelling and screaming over food choices. I have had cold laser treatment. Which worked, Shockwave just works better. I have it done at a physical therapy office. Recently, she used it on my shoulder, and it popped back it to place after! (This sadly, is not the first or last time I will dislocate a joint, not auro immune). Happiness! Long summer with it out, and no one realizing it, because I was not writhing in pain. I need to be a crankier patient. "As if!"

JFN

Mouth no longer breaking out no headache on day 3 today is day 4 loading dose is 5 days

I am taking 500 mgs Tylenol
125 mgs prednisone-IV
50 mgs of Benadryl
5 mgs Valium where I don’t have a seizure I have had seizures since 2002 when I got mrsa bacterial spinal meningitis.
I had no side effects on day 3 loading dose is 5 days today is day 4

No I still have the problems with my feet, hands and ribs, along with cardiac autonomic neuropathy. I just started loading dose is 5 days then every 28 days for two days or it might be every two weeks based on how I do. It takes 4-6 months to start working according to the doctor and infusion pharmacist. My mouth is no longer breathing out and no longer have the headache as of on day 3 that stopped. I have today and tomorrow left for the loading dose first 5 days when you first start IVIG. . Loading dose is your first dose of IVIG. My problem is autoimmune neuropathy.

I did not have a headache and my mouth did not break out. That was day three the loading dose is five days. Today is day four.
I took IViG from age 10–18 so I was hoping no problems.
Premedicated
125 IV prednisone
Benadryl 50 mgs
Tylenol 500 mgs
Phenergran 25 mgs for nausea
Valium 5 mgs I have a history of seizures so they are giving it for prevention

Hi @artemis1886 ,
I drink as much water as possible, 100oz +, the day before, the day of, and the day after my infusion. I also have an over the shoulder bag, not an IV stand, so I move as much as possible, usually right after my blood pressure is checked, so I have a few minutes for it to come back down.

JFN

That would be really nice they sent me a stand with a pump and IV bags When I had my mrsa bacterial spinal meningitis I had the pump that I carried everywhere because the antibiotics were 24/7 for three months then oral antibiotics for another three months. I wish I had the portable pump

My nurse isn’t good at IV sticks. It took her two and a half hours to get an iv into me. She dislodged the IV herself. I told her I had no vein where she was going and she went straight into a tendon three different types and perforated a couple of other veins. Not a great experience. She needs a vein finder. They have hand held ones that are small. She says she is the supervisor but most nursing supervisors are better sticks than that.

I understand, my nurse tripped over the line and yanked the port. It would take an hour to access my port. I also had a different nurse steal my supplies and lie. New nurse, what a difference.

JFN