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Comments (3,687)
I was diagnosed with ET in February of this year. I did have a bone marrow...
https://connect.mayoclinic.org/comment/1089050/
Hydroxyurea is what I am taking. ... rest for a while that really seems to help ... I'm just wondering what other ET ... I have also experienced more neuropathy ... I don't know what to think.
Hi, gcattnu39 (@gcattnu39) No, feeling cold––or “chilled” might be more accurate (“cold” seems a bit extreme...
https://connect.mayoclinic.org/comment/1095295/
accurate (“cold” seems a bit extreme for what ... tissue), not specifically because of neuropathy ... continue with TENS because it wasn’t helping
Hello @lsm016 and @thighirritationno1, I would like to add my welcome to Connect along with Mike...
https://connect.mayoclinic.org/comment/1097256/
shared with you, you might find it helpful ... to read what other members have shared ... to the list of discussions in the Neuropathy ... https://connect.mayoclinic.org/group/neuropathy
Hello @vid1953, Welcome to Connect. I think you nailed the question most of us had when...
https://connect.mayoclinic.org/comment/1096973/
- what does the future hold for us? ... One thing I think helps no matter what ... as you can about your condition and what ... the discussions in the group to see what ... box to find information specific to what
Hello @petr, Welcome to Connect. Great question and I'm sure we have all thought about what's...
https://connect.mayoclinic.org/comment/1080615/
#39;m sure we have all thought about what ... Finding what helps you manage the symptoms ... as we can about our condition and what ... treatments are available that might help ... mostly numbness and tingling which is what
@snowmass I can totally relate. I am a 54 year old single parent of a 14...
https://connect.mayoclinic.org/comment/1083002/
medication bandaids on when they don’t know what ... neurologist tested me for small fiber neuropathy ... Some have neuropathy from chemo treatments ... What I am doing now for my SFN, spinal ... I was never one to ask for help before
Hello @unhealed44, Welcome to Connect. You are not alone. I think we have all been there...
https://connect.mayoclinic.org/comment/1083832/
all been there being at a loss about what ... to do when it comes to neuropathy. ... Connect after being diagnosed with neuropathy ... suggestion I have is to continue learning what ... It might be helpful to scan through
@angielewis1959, I can relate to your balance issues along with not like hot weather much although...
https://connect.mayoclinic.org/comment/1084711/
along with old age, arthritis and neuropathy ... think it might also be better to ask what ... can be done to help with the balance ... information I found that sort of sums up what ... I think might help answer your question
I certainly understand how you feel. The real debate about the pros and cons of Prednisone...
https://connect.mayoclinic.org/comment/1084322/
It was neuropathic pain but prednisone ... #34;control my pain" without the help ... What is the harm of a few more years
It was thru one of the sources that listed doctors that treated PN-can do the research...
https://connect.mayoclinic.org/comment/1082035/
here and some people say that they helped ... Were you tested to see which type of neuropathy ... What city was it in?
@annie1 I have lumbar stenosis and DDD. I have been getting injections to delay surgery as...
https://connect.mayoclinic.org/comment/1085299/
spine surgeon say that surgery would help ... nutritional deficiencies, small fiber neuropathy ... You may want to look into what can be ... Are you doing physical therapy to help
@snowmass I think we have communicated before. I have TOS and have had a cervical spine...
https://connect.mayoclinic.org/comment/1087466/
Myofascial release helps a lot, but ... problems on my own by replicating what ... I also helped a lot with my spine surgery ... Neuropathy - "Myofascial Release
Welcome @arkansaslady, It sounds like you are doing a great job of keeping up with your...
https://connect.mayoclinic.org/comment/1094150/
and what might provide some relief. ... few discussions where you can learn what ... others have shared about what helps ... with neuropathy. ... search=neuropathy%20what%20helps.
@dstone501957 Have you had your thyroid TSH, T3, T4 and TPO levels checked? I have Hashimoto’s...
https://connect.mayoclinic.org/comment/1094328/
I also have idiopathic small fiber neuropathy ... and peripheral neuropathy. ... unfortunately is no cure for small fiber neuropathy ... Doesn’t really help much and has long ... spine and head to look more closely at what
@dstone501957 P.S. My autocorrect changed my MRI to MEI. I have had head, cervical, thoracic, lumbar...
https://connect.mayoclinic.org/comment/1094338/
carnitine supplements for small fiber neuropathy ... SFN and peripheral neuropathy seems ... so many symptoms I can't tell what ... is causing what anymore. ... care of myself, treat symptoms to help
Sorry to hear of your plight. Hope you can find some relief. No one, including foot...
https://connect.mayoclinic.org/comment/1094477/
including foot doc, seems to know what ... special shoes to your feet in order to help ... relieve neuropathy, and other issues
Welcome @soldman1, I haven't tried Nerve Savior but I don't have pain with my neuropathy only...
https://connect.mayoclinic.org/comment/1097078/
but I don't have pain with my neuropathy ... there are any studies or proof that it helps ... It might be helpful to read what they ... The Foundation for Peripheral Neuropathy ... complementary and alternative treatments for neuropathy
I’m sorry this is happening to you. I thought I’d share my experience with FGFR3 if...
https://connect.mayoclinic.org/comment/1093844/
share my experience with FGFR3 if it helps ... What makes you categorize your symptoms ... I have small fiber neuropathy and also ... attributing it to the FGFR3) because of what ... There’s also a Peripheral Neuropathy
It seems like every time I have edema, I have neuropathy too, like my feet are...
https://connect.mayoclinic.org/comment/1082727/
like every time I have edema, I have neuropathy ... And what helps it?
Welcome @pwolford, I'm sorry to hear you have joined the neuropathy club. You are not alone...
https://connect.mayoclinic.org/comment/1084752/
sorry to hear you have joined the neuropathy ... cure there are many things that might help ... is learn as much as you can about neuropathy ... and what treatments are available that ... Support Group that you might find helpful
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