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carol94
@carol94

Posts: 7
Joined: Jul 07, 2016

Neuropathic Pain in upper midriff area

Posted by @carol94, Aug 14, 2016

Is there anyone out there who has been diagnosed with neuropathic pain? If so, in what part of the body do you experience this pain and what treatment are you given? Mine is in the high central area of my midriff. The pain worsens toward evening and is treated with Bentyl. I’ve also met one woman who has this type of pain in the jaw area/ My gastroenterologist tells me very little is known about it. I also have a seizure disorder. I would appreciate hearing from anyone out there who has this disorder. Carol94

REPLY

That pain high in your abdomen coulkd possibly be nerve entrapment—if
it’s at the outer edge of your “six-pack” muscle (rectus abdominus).
If a physician can confirm it by finding a tender spot there, it can be
treated very successfully with a local anaesthetic injection. I believe
this condition was first described at Mayo. Good luck!

Liked by marychapman

Hello, first time responding and using this app so please excuse if doesn’t send or appear correctly. I have had the same type of pain and many GI issues. I was recently told it is visceral hypersensitivity syndrome and prescribed an anti depressant called Elavil. I have not tried it because I am afraid to take the medication after reading all the contraindications. I have hypertension, hypothyroidism, etc. The Dr says it works for many people in a low dose of .25mg taken at night because it makes you tired.Anyone else heard of this?

@patreats5674

Hello, first time responding and using this app so please excuse if doesn’t send or appear correctly. I have had the same type of pain and many GI issues. I was recently told it is visceral hypersensitivity syndrome and prescribed an anti depressant called Elavil. I have not tried it because I am afraid to take the medication after reading all the contraindications. I have hypertension, hypothyroidism, etc. The Dr says it works for many people in a low dose of .25mg taken at night because it makes you tired.Anyone else heard of this?

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How well is the treatment working?

Welcome @carol94 @patreats5674 and @xottawan.
I encourage you to read the messages in this discussion about Peripheral Neuropathy http://mayocl.in/2aWCYXq To quote @johnwburns from that discussion: “There are many possible causes of peripheral neuropathy, such as diabetes, B12 deficiency, certain drugs, autoimmune disease etc but you’ll need a thorough workup to get to a root cause. It may still be spinal but that is TBD. Here is a good article that goes into causes and requisite testing: http://www.todaysgeriatricmedicine.com/archive/070912p14.shtml

I’d also like to bring @bobsconnect @salena54 and @johnbishop into this discussion. @juneia @workwithkids do you have information to share with Pat about Elavil?

Liked by JohnWBurns

@carol94 to connect with other members talking about seizure disorder please see this discussion:
https://connect.mayoclinic.org/discussion/epilepsyseizure-related/

@xottawan

That pain high in your abdomen coulkd possibly be nerve entrapment—if
it’s at the outer edge of your “six-pack” muscle (rectus abdominus).
If a physician can confirm it by finding a tender spot there, it can be
treated very successfully with a local anaesthetic injection. I believe
this condition was first described at Mayo. Good luck!

Jump to this post

On second thought, Carol94 stated that her pain was “high central” in location, and I suggested nerve entrapment syndrome. The latter occurs at the outer edge of the rectus muscles, not on the midline area. I did not mean to mislead you—no harm done, I hope! For those interested, you can look up CNES, which stands for cutaneous nerve entrapment syndrome. The importance of this entity is that it a=is a benign, perfectly harmless condition, easity managed, whereas most other causes of abdominal pain could have more sinister underlying causes.

I too have peripheral Neuropathy, only mine is in the left leg and foot. I also have restless leg, degenerative disc disease, kyphosis of thoracic region, COPD, OSA. The neuropathy is getting worse and the pain in my back is much worse. I am taking gabapentin, pramipexole. fentaNYL. Advair, albuterol, symbicort and am in the process of getting the machine for the sleep apnea. Things seem to be getting worse instead of better. I am wondering if some on the med. are doing it?

@colleenyoung

Welcome @carol94 @patreats5674 and @xottawan.
I encourage you to read the messages in this discussion about Peripheral Neuropathy http://mayocl.in/2aWCYXq To quote @johnwburns from that discussion: “There are many possible causes of peripheral neuropathy, such as diabetes, B12 deficiency, certain drugs, autoimmune disease etc but you’ll need a thorough workup to get to a root cause. It may still be spinal but that is TBD. Here is a good article that goes into causes and requisite testing: http://www.todaysgeriatricmedicine.com/archive/070912p14.shtml

I’d also like to bring @bobsconnect @salena54 and @johnbishop into this discussion. @juneia @workwithkids do you have information to share with Pat about Elavil?

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Elavil can indeed provide relief for some people and just a lot of side effects for others. I was the latter. You say .25 mg but that isn’t even a homeopathic dose. Did you mean 25 mg? That is conservative but then again its all about individual susceptibility to side effects. If you are nervous about it, split the tablet and take half. If you can use it its a good, cheap medication. Review the side effects so you know what to expect. http://www.rxlist.com/elavil-side-effects-drug-center.htm

Note that there is a big difference between side effects at a low dose and side effects at a higher dose.

@patreats5674

Hello, first time responding and using this app so please excuse if doesn’t send or appear correctly. I have had the same type of pain and many GI issues. I was recently told it is visceral hypersensitivity syndrome and prescribed an anti depressant called Elavil. I have not tried it because I am afraid to take the medication after reading all the contraindications. I have hypertension, hypothyroidism, etc. The Dr says it works for many people in a low dose of .25mg taken at night because it makes you tired.Anyone else heard of this?

Jump to this post

Hello Carol,
I have not started taking the Elavil yet. I am still sitting on the fence so to speak. I will keep you updated should I decide to try it. I am excited to have found this forum.

@colleenyoung

Welcome @carol94 @patreats5674 and @xottawan.
I encourage you to read the messages in this discussion about Peripheral Neuropathy http://mayocl.in/2aWCYXq To quote @johnwburns from that discussion: “There are many possible causes of peripheral neuropathy, such as diabetes, B12 deficiency, certain drugs, autoimmune disease etc but you’ll need a thorough workup to get to a root cause. It may still be spinal but that is TBD. Here is a good article that goes into causes and requisite testing: http://www.todaysgeriatricmedicine.com/archive/070912p14.shtml

I’d also like to bring @bobsconnect @salena54 and @johnbishop into this discussion. @juneia @workwithkids do you have information to share with Pat about Elavil?

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Thank you Colleen for making me feel welcome and your suggestions are much appreciated. I am very excited about this site and am still learning how to navigate. I appreciate everyone’s responses to my question.

@hosta

I too have peripheral Neuropathy, only mine is in the left leg and foot. I also have restless leg, degenerative disc disease, kyphosis of thoracic region, COPD, OSA. The neuropathy is getting worse and the pain in my back is much worse. I am taking gabapentin, pramipexole. fentaNYL. Advair, albuterol, symbicort and am in the process of getting the machine for the sleep apnea. Things seem to be getting worse instead of better. I am wondering if some on the med. are doing it?

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@hosta, there is a lot of discussion about these medications in this discussion about Peripheral Neuropathy http://mayocl.in/2aWCYXq You may wish to read through it.

@hosta

I too have peripheral Neuropathy, only mine is in the left leg and foot. I also have restless leg, degenerative disc disease, kyphosis of thoracic region, COPD, OSA. The neuropathy is getting worse and the pain in my back is much worse. I am taking gabapentin, pramipexole. fentaNYL. Advair, albuterol, symbicort and am in the process of getting the machine for the sleep apnea. Things seem to be getting worse instead of better. I am wondering if some on the med. are doing it?

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Thank you, did read it, I admit that it does confuse me. How do I get the doctors to do more testing. He just seem to say, you have it, deal with it. I see him on Monday and hope I get some answers. I have 3 main doctors, I don’t think they communicate at all. Just more meds. I wonder if it is my age????

@hosta

I too have peripheral Neuropathy, only mine is in the left leg and foot. I also have restless leg, degenerative disc disease, kyphosis of thoracic region, COPD, OSA. The neuropathy is getting worse and the pain in my back is much worse. I am taking gabapentin, pramipexole. fentaNYL. Advair, albuterol, symbicort and am in the process of getting the machine for the sleep apnea. Things seem to be getting worse instead of better. I am wondering if some on the med. are doing it?

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Sorry to hear about your troubles. Frustration is the rule when dealing with neuropathic pain so you have a lot of company.
Here’s a link to diagnostic guidelines that might be useful:

http://peripheralneuropathycenter.uchicago.edu/learnaboutpn/evaluation/neuroexam/index.shtml

Do you have any diseases associated with neuropathy such as diabetes or an autoimmune disease?
Have you ever had an injury, such as a car accident, wherein you may have taken a hit to the spine or head?

At the end of the day you need a neurologist to do a full workup including a thorough bedside exam. If your neurologist is not taking you or your condition seriously, let him or her know that and see if you get them more focused. Failing that, find a new one.
What other 2 doctors are you seeing and are all 3 of them at the same clinic so they can easily share data?

Hope this helps

That’s a tough one Carol. Don’t give up on it.
There are many flavors of neuropathic pain. Since your pain is in the “midriff” has it been established as neuropathic pain? In other words have other possible contributors been ruled out, such as cardiac and other organ problems?
Have you asked your doctor if this could be a side effect of any of your med(s)?
When is the last time that your seizure med(s) were reviewed and is your seizure disorder under control?
You probably know but there are ‘abdominal epilepsies’ that can cause localized pain. Uncommon but possible.
Abdominal pain may also be a feature of other epilepsies. Like everything else neurological, its complicated.

https://en.wikipedia.org/wiki/Abdominal_epilepsy

I’m not saying that’s the cause of your problem but it probably should be considered.

Hope this helps.

@hosta

I too have peripheral Neuropathy, only mine is in the left leg and foot. I also have restless leg, degenerative disc disease, kyphosis of thoracic region, COPD, OSA. The neuropathy is getting worse and the pain in my back is much worse. I am taking gabapentin, pramipexole. fentaNYL. Advair, albuterol, symbicort and am in the process of getting the machine for the sleep apnea. Things seem to be getting worse instead of better. I am wondering if some on the med. are doing it?

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Thanks John, No I am not diabetic, as far as an autoimmune disease, I don’t know. I was in a car accident, and have had 3 spinal surgeries. I had shingles in the left let that didn’t break out & as I understand it, went in. I also had the left hip replaced & surgery on the left shoulder. So all in all I think it all adds to it. I have had some of the tests mentioned in the article.

I have a G.P and a Pulmonary Specialist. They are in the same net work. The Neurologist is not.

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