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355 total results

Comments (305)

@vicmar I wish you well in your road to recovery! Makes me feel optimistic. I have...

https://connect.mayoclinic.org/comment/1475853/

was before I was dx'd with LPL/Waldenstroms

Discussion: Neuropathy and Waldström

Support Group: Neuropathy

Posted: Jan 6 12:26pm

Hi @ewash55, I went to an annual physical in Dec23 and had a high WBC count(50k+)....

https://connect.mayoclinic.org/comment/1455066/

to decide what I actually had (CLL+Waldenstroms

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2025

@allessio77 I am no expert, but I understand that 90-95 percent of Waldenstrom’s patients have a...

https://connect.mayoclinic.org/comment/1538225/

I understand that 90-95 percent of Waldenstrom

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Mar 29 6:00pm

@dcuste Read page 20 of https://www.nccn.org/patients/guidelines/content/PDF/waldenstrom-patient.pdf

https://connect.mayoclinic.org/comment/1539494/

www.nccn.org/patients/guidelines/content/PDF/waldenstrom-patient.pdf

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Mar 31 10:09am

@hjw473 I am completing 2 months of self-injected Vyvgart hytrulo. Nest week is the last shot....

https://connect.mayoclinic.org/comment/1552066/

I have Waldenstrom's (supposedly

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Apr 16 1:00pm

Yesterday I was diagnosed with Waldenstrom's macroglobulinemia; I have the MYD88 wild type. My primary symptom...

https://connect.mayoclinic.org/comment/1537473/

Yesterday I was diagnosed with Waldenstrom

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Mar 28 5:16pm

My husband has been diagnosed with an unusual variant of WM. I am not sure if...

https://connect.mayoclinic.org/comment/1538064/

are connected to the International Waldenstrom ... get-support/ I follow a facebook group, the Waldenstrom

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Mar 29 1:21pm

I am a patient at the Mayo Clinic in PHX. I have been diagnosed with AntiMag...

https://connect.mayoclinic.org/comment/1552569/

diagnosed with AntiMag Neuropathy and Waldenstom

Discussion: Mayo Clinic / John’s-Hopkins - anyone receiving treatment at either?

Support Group: Neuropathy

Posted: Apr 17 8:19am

I've had chemo-induced peripheral neuropathy definitely 'full-bore' in my legs, feet, hands, and arms since May...

https://connect.mayoclinic.org/comment/1353444/

Lymphoplasmacytic Lymphoma (similar to Waldenstroms

Discussion: Chemotherapy-induced neuropathy: What helps get rid of it?

Support Group: Cancer: Managing Symptoms

Posted: Jul 21, 2025

Thank you for your comment, and I’m sorry to hear about your husband. I am in...

https://connect.mayoclinic.org/comment/1393317/

My symptoms which I learened after Waldenstroms

Discussion: WM / MZL

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2025

I have a question on Neuropothy. My husband has Waldenstrom’s and Neuropothy. He was treated through...

https://connect.mayoclinic.org/comment/1534810/

My husband has Waldenstrom’s and Neuropothy

Discussion: Is anyone suffering with Anti MAG neuropathy?

Support Group: Autoimmune Diseases

Posted: Mar 25 6:56am

I am 73 and am positive for Waldenstrom’s Macroglobulinemia, MYD88 positive, CXCR4 negative. In addition, I...

https://connect.mayoclinic.org/comment/1518410/

I am 73 and am positive for Waldenstrom

Discussion: Anyone diagnosed with both myelofibrosis and Waldenstroms lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 8:55am

@mphaddican - is WM the abbreviation for Waldenström Macroglobulinemia (WM)? Here's some information from Mayo Clinic...

https://connect.mayoclinic.org/comment/1525122/

mphaddican - is WM the abbreviation for Waldenström ... provides comprehensive care to those with Waldenstrom ... experts are included as needed." -- Waldenstrom ... www.mayoclinic.org/diseases-conditions/waldenstrom-macroglobulinemia

Discussion: Neuropathy treatments: How to avoid scams?

Support Group: Neuropathy

Posted: Mar 12 8:01am

I had an iron infusion (ordered by my GP) in August after months of taking oral...

https://connect.mayoclinic.org/comment/1493895/

Latest annual check in with my Waldenstrom

Discussion: Has anyone with MGUS had an iron transfusion?

Support Group: Blood Cancers & Disorders

Posted: Jan 30 6:08am

@mphaddican Unfortunately, I do not have any suggestions for your husband. But who was his doctor...

https://connect.mayoclinic.org/comment/1535901/

I suffer from anti-mag pn and Waldenstrom